Prednisone for the first time

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Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 8/17/2007 2:50 PM (GMT -7)   
I have been gone for awhile. Still reading posts and hoping the best for everyone. After my heart ablation I was feeling really good. (almost normal) It was soooo nice. Took a nice vacation and planted in my garden without fatigue. I was almost thinking that the Lupus was gone. THEN, a week ago I started feeling fatigued, fever, and horrible muscle aches. Today was the worst. I feel like I have a horrible flu. Every cell in my body aches and is feverish. My fever is 99- 100.5. Higher at night. And the worst part is sweating while everyone else is cold. I don't have any cold sypmtoms or stomach symptoms. (thank goodness). I went to the doctor and he put me on prednisone for the first time. I'm in a lupus flare. And he did blood work and a urine test. I'm taking  prednisone over the next six days. It's a prednisone pack. So far I just feel like I have had a cup of coffee. I have heard such awful and good stories about prednisone. I'm not sure of what to expect. I see my rheumy beginning of September and I'll see what he says too. Anything else I should expect with prednisone? Will I feel better fast? Will the side effects be bad? I would love your advice.
 
kitty
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil,  NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 8/17/2007 3:26 PM (GMT -7)   
I haven't been on a quick pack like that, most of the "bad" stories are related to long-term usage, particularly in doses over 20-30mg day.

Other than having trouble sleeping and possibly some drastic mood changes, I don't know of any side effects from the packs.

Hope that helps,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/17/2007 3:28 PM (GMT -7)   
Hi, Kitty. We have all been expressing our prednisone woes here lately. You could probably just do a quick scan through the last week or so for more info., but I'm sure others will be by soon to share with you. Unfortunately, this is the only medicine I have found helpful in my bout with lupus; but once it's got you...it seems it's got you. Or that's how it's done for me. Those small dose packs were a life-saver for me before I was actually diagnosed. I did feel relief fairly quickly as I recall, but almost as soon as the pack ended; all the pain returned. I did not have the "tapering" problems then that I have now. I don't know if it was because those packs were in such small doses of prednisone and quickly took you on and then off or what. I just know since being diagnosed last year and having been started on the prednisone at a much higher dose, I have been finding it almost impossible to taper, much less come completely off. You can do a search and read of all the bad things prednisone can bring, but you have to weigh that against how bad you feel now without it. There are SO many possible side effects: weight gain, hair loss, possibly diabetes, confusion, don't sleep well, the list goes on and on; too long to list everything. But everyone may not have all side effects. After that dose pack, if your symptoms are at all tolerable, your doc could try something else for you that might take a few months to show hope. Other options are out there. They are just not as speedy as the prednisone. Please take care. I wish you well and hope you have relief soon. Keep us informed on how things go for you.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/17/2007 5:30 PM (GMT -7)   
Hi Kitty:

Like Lynnwood said the terrible side effects of prednisone are usually associated it high doses and taking the steroids for a long period of time. I hope the dose pack helps you quickly and that you'll be able to stop them and continue to feel better.

I've been taking prednisone for 6 years now. If you average out how much I take daily over the past six years I'd average about 30mg daily. I have gotten all the horrid side effects that it causes. Huge purple stretch marks, buffalo hump on my back, moon face, easy bruising, lowered immune system, weakness in my large muscles, facial hair growth, weakened bones, high blood sugars, and high heart rate. Also, I have troubles sleeping. I'm sure you're asking why do I continue to take the drugs. Well it's the only thing that really works for me and I can't live w/o them.

I hope things go well for you and I'm looking forward to hearing how you do on them. Wishing you the best always.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 8/17/2007 7:05 PM (GMT -7)   

Hi Barbara, Lynnwood and Sharen,

Thankyou for talking to me. I really needed it. Barbara I think about you often. I hope you are doing well. I have been tested for Leukemia many times this last year. It's awful. I pray that your's goes away soon.

Today I have taken 24mg of prednisone and severe muscle aches are just about gone. And my fever is normal so far. It's amazing how fast it worked. I thought it would take a couple of days at least. I am still very fatigued but have this hyper feeling too. I want to do something busy but don't have the energy to really do it. I feel a little jittery. I am NOT sleepy and normally by now I would be in bed. I actually have finished 2 movies. I am amazed. I do feel strange though. Like I have drank too much coffee and cold medicine at the same time. But it's worth it so far. I was so  miserable today that I was crying. Now I'm not crying but I am talking a lot. This is a wonderfully bad medication. My mind is racing too. And I am drinking so much water. Hope I am making sense. LOL. I was nervous about taking the prednisone. Now I'm just a little nervous.

kitty

 

 


Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil,  NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/17/2007 8:08 PM (GMT -7)   
kittly I'm glad you are getting some relief from the prednisone. So many of us have a love/hate relationship with prednisone, including myself. You described it perfectly when you called it wonderfully bad. I also got relief fairly quickly when I first went on it and anytime I'm having a flare a small increase in prednisone makes a big difference. When I first went on it I felt so much better it felt like a miracle and I wanted to stay on it for the rest of my life. Now that I've been on it for a year, I still appreciate all it does for me, but now I'm living with weight gain, moon face, bruising and lots and lots of sweating. So I look like a big briused sweaty pig, LOL.

Hopefully this prednisone pack and taper will take care of things and get you out of your flare and that when you taper off of it you won't feel awful again. If you do, it might be a good idea to call your rheumy.

I hope the predisone continues to help without making you too wired. I'm like Lynnwood and have had sleep issues with prednisone so I take a med at night that helps me get some decent sleep.

Keep us posted on how you are doing and how your labs turn out. Try not to stress too much about the prednisone and just enjoy the relief it gives you.

Take care and I hope you get some sleep.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 8/18/2007 10:10 AM (GMT -7)   

Hi Kitty,

   I have been on the dose packs in the past for a few days. I'm glad you are starting to get some relief already. It usually works pretty quick. As you taper down your pain may increase some, but hopefully not. Maybe this one dose pack will do the trick for awhile.

   From what I can remember from taking dose packs. I would just get a little bloating and gas. Maybe a little increase in appetite for a couple of days and a tiny jittery on the higher doses.

   Good luck and keep us updated. You will be in my thoughts and prayers.

                                                                    Babs


 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 8/18/2007 4:24 PM (GMT -7)   

Thankyou hippimom and babs for your thoughts and prayers. I really need them. :-) Today I haven't been as jittery but I still feel ADHD. Even though I'm really not. My thoughts are racing and I can't keep up with them. If my brain had way to get a job it would be able to hold down 10 of them. LOL. I am at 20mg today and I have had a small bit of pain. But still not as bad as day before yesterday. And my fever is still gone. Today I have a few hot flashes and hyper but it's ok. I am so worried that I will feel horrible at the end of the pack. I'm praying hard that I don't have any pain or fevers when the pack is done. I see my Rheumy first week of September. I slept all night last night. Probably because I haven't slept but a few hours each night for the past week before I started the pack. I have been exhausted. But not anymore.

Now I am SUPERWOMAN!!! yeah   I can get dressed, put on my makeup, clean the house and think of 1000 things in a single bound. LOL. It is nice getting dressed without having to take a break. I still get tired though. It's a restless tired.

kitty

 


Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil,  NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.


Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 8/18/2007 4:34 PM (GMT -7)   
Hippimom, your not a big bruised sweaty pig!! Your a wonderful smart lady. Hugs.

kitty
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil,  NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.

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