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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/18/2007 4:55 PM (GMT -7)   
Well, after 8 long years since my ex stole them and blackmailed me to give up custody by threatening to hurt or even kill them before he would let me have themmy daughters are finally going to spend time in MY HOME ALONE WITH ME (and hubby)!!!! I pick them up next Saturday and take them back Monday night. I stay Monday night at their place then Tuesday we go to my state's amusement park. I am so happy I could burst. This is a huge deal. A giant step forward because it sounds like it will happen again so long as they enjoy themselves. Not regularly due to distance but any time we can have them more than a single night it will likely happen so long as they wish it.

Screw the pain, I will make this the best weekend they have ever had.I could jump around and dance for how great this is, if I were physically capable that is.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/18/2007 5:04 PM (GMT -7)   
Rose I'm jumping up and down with you. I know you had problems with your ex. How hard that must have been. I hope you all have a wonderful time. I know you will do everything in your power to make that happen. Congratulations!
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 8/18/2007 5:28 PM (GMT -7)   
Hi Redrose:

Honey I'm so happy for you. I know you're anxious to have them. Try to not over do it though, I'm sure your girls will love just being with you. I'm certain that they will be happy doing anything with you. I'm praying that you feel good and can enjoy them to the fullest.

Have a great weekend.

Love Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/18/2007 8:02 PM (GMT -7)   
Hi, Redrose. I'm so happy for you. I wish you the most awesome weekend for this one coming up. My parents were divorced when I was 2 years old, and my dad got custody. I really looked forward to the times when I would get to see my mom. I'm sure your excitement will help to override any pain or problems you might be dealing with, as long as they're not too bad. It's funny the way your mind works. I'm sure your daughter's will love the time with you too! Take care and try to rest before then. (((Hugs)))
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/18/2007 9:36 PM (GMT -7)   
My husband is insisting I take it easy, and my girls know how sick I have been in the past so they both understand the amusement park visit will mean I rent a wheelchair. While they are here my husband will be here to help the entire time the girls are here.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/19/2007 12:45 AM (GMT -7)   
OH ROSE! This is such good news!! I bet your health will actually improve. The huge relief of getting to see the girls and spend time with them should be a medicine in itself. Of course you'll be carefull with your health . . . you have another little person in your body to think about. Enjoy your visit!!

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
 
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/19/2007 3:20 AM (GMT -7)   
Thanks, but I am not preg. yet, I just came off Imuran and have clearance to try beginning Mid-Late September, I am within days of my period and after this cycle is over I get to start trying.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/19/2007 9:19 AM (GMT -7)   
Redrose,

This must feel like 10 Christmases all rolled into one weekend! I'm overjoyed for you. I just know how excited I am when one of my grown kids comes in for a weekend from out of town and this is so much bigger than that!

I know you'll take care of yourself because I'm sure you want to be there for your daughters and for the new one you're getting ready to conceive. Your husband sounds like a jewel. It always warms my heart to hear of spouses who want to take care of their lupie wives.

The amusement park sounds great, and I know this will be a weekend they won't forget. I hope you also have quiet time with your girls so you can spend time talking and finding out what's been going on in their lives. That always seems to be what my granddaughers love the most -- having someone who wants to listen to them. Their mother is so busy with her work, her studies, and her AA that they don't often get to sit down with someone who loves them and who will put their arm around them and let them know they are loved. Listening does that more than just about anything.

I'm so very happy for you! We'll all be anxious to get a full report of your weekend.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 8/19/2007 7:25 PM (GMT -7)   
Yahoo! Great news Redrose! I am so happy for you. ENJOY!
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), RelafenMethotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.


 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/20/2007 8:26 AM (GMT -7)   
Redrose... this is wonderful news!! :-)

I know you will have a wonderful time and I bet your daughters are just excited as you are. Have a wonderful time and enjoy... YAY!!!!!
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 8/20/2007 9:10 PM (GMT -7)   
redrose,

enjoy and treasure every moment with them. I agree with Pat, some good "down time" will be some of the best time you can spend with them. This will give them the opportunity to relax and just be quiet with you and get to know you without a lot of distraction. They may not "open up" a whole lot, but they will feel your love by your presence. My girls always loved playing "beauty shop"... doing hair and nails etc. It gave us something to do and conversation would flow along with giggles and nonsense! Oh, don't forget food--girls can out eat the boys, I swear they can!

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/21/2007 1:26 PM (GMT -7)   
Hi, Redrose. I was thinking of you this morning when I woke up. You've probably already gotten every single detail outlined for this coming weekend. But, I was just remembering all the pictures my mom would take of us. As I think back, she was probably doing it more for herself and just included me too. But by doing that, I still have a love of photos and I can even to this day look back on special times we shared as I was growing up and smile. Even though we didn't get to spend every single day together, she poured SO much love into our special times...I treasure those! And the photos CAN sit around as reminders every single day! Just get some good ones of you and the girls together all "hugged-up" and share with them. Just thinking of your special weekend! Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/22/2007 9:04 PM (GMT -7)   

2 more days Rose! I'm just praying everything goes well and you all have a wonderful time! Don't forget to let us know and don't leave out anything!

love

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/22/2007 9:19 PM (GMT -7)   
Hi redrose,
Been through that with my ex for my first son, they were filthy rich and famous and I was working two factory jobs to try to support my son and I. It was so difficult, I make a deal with him that in return for liberal visitation, I would give him primary physical custody and we would share legal custody. Then, not only did they tell my son very bad things about me and estranged him and scared him, he would come for a visit and they would tell him it was his punishment. They were horrible and my son was really torn up by the whole thing. I had to get a lawyer and no one would take them on. It was horrible, I missed so much. I'm so glad you are getting this chance. Men can be so abusive to their kids in this manner, not letting them see their mother and all children need their mom. I'm so happy. One thing that saved my relationhsip with my son was that while they were telling him I didn't care and didn't want to see him and denying my wish to see my son or even to let me talk to him on the phone. I wrote him letters, at one point tactfully explaining what was going on and why I couldn't see him more. After really messing up as a teenager and ending up in a counselling program, the counsellor stood up for me and he found the old letters that seemed meaningless to him as a child and he saw how I tried and tired and didn't give up. It took a lot of guts for him to stand up to his father and his fathers family but he did and is doing better. Well, Good wishes and have fun with your kids. You know, at the time I was so poor, barely making it and I put my son before my own feelings and my ex made me regret that decision. I just wanted the best for my son and couldn't believe that they would do what they did to meand him. Well, take care and have fun! I'm really happy for you!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/23/2007 7:14 AM (GMT -7)   
Redrose,

Thinking about you as your big weekend comes up!
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/23/2007 8:05 AM (GMT -7)   
Thanks everyone. I am looking forward to this weekend, the only sour note is my period arrive this morning so unless the removal of my IUD tomorrow fixes the problem I will be suffering cramps pretty bad. Ironic I never had cramps until about 5 months ago and I have had my IUD a year next month. I hope it fixes the problem because I would hate to be crampy all weekend.

Marji, I was lucky the deal I made was that he and I both signed adoption papers so MY grandmother could adopt my girls. It only took 2 years after I left to get him to sign and I couldn't file for divorce until after it was finalized (6 months from signing). Yet he still had the chance of changing his mind for a couple years if he wanted to get a lawyer and start a big legal fight, yet I only had 6 months- it is some new legal thing that overcompensates for past neglect of father's rights. The thing is for several years I had to stay away to keep him from taking my grandma to court and trying to renege on the adoption. Now he can't say anything and I can finally have them over. Plus my grandma really needs a break. I am lucky in that no one has ever bad mouthed me to my girls. They did stop calling me mom but for now I can accept that. I have always been able to call them and have been able to go and see them whenever I am able but it isn't the same as having them with me.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/24/2007 8:51 PM (GMT -7)   
Well, I'm so happy for you redrose! And when they get older, they realize stuff too and you get even closer. I'm so glad you got your social security and can do fun things with them and have a nice place now and don't have to worry so much and try to scrape by so much. Make up for lost time. I spoiled my sons rotten when I got my money, since we'd been so poor for so long waiting for disability, I just felt I owed it to them to feel like real human beings again, at least for a while! I love amusement parks and I'm sure that you will have so much fun whatever you do!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/28/2007 5:04 PM (GMT -7)   

Hi Rose, Well I'm waiting on pins and needles to hear how the weekend went. I pray everything went well and that you have all kindsof good news to tell us.

love

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/28/2007 7:34 PM (GMT -7)   
Hi, Rose. You have all waiting to hear your weekend went. I'm sure it was great, but I can't wait to hear about it! Let us know as soon as you can!
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/29/2007 6:10 PM (GMT -7)   
IT WAS GREAT! Just got home tonight. Leaving in the morning for a visit to the in laws (yuk!!!) and some old friends (cool) Won't be back until late Monday.

I got to spend time talking with them, taking them shopping for back to school, and a whole bunch of stuff. The amusement park went great too though my sun screen failed a bit. I got some pink on one arm, my forehead, checks, nose, and upper lip- sunburn pink not malar rash pink. I can tell the difference by the fact everywhere my sunglasses were has no burn.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/31/2007 5:33 PM (GMT -7)   
Hi Rose I know you won't see this until after the weekend but I just wanted to tell you that I am so happy you all had a good time. Sunburn and all! Now with the outlaws I hope you aren't going to overdo it. I hope your ex has decided to be more flexible and let you have the kids a reasonable amount of the time. Thanks for sharing the good news.
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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