symptoms from med changes?

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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 8/19/2007 9:37 AM (GMT -7)   
I'm having a hard time figuring out if my symptoms are coming from my recent med changes or if they are lupus related.  My rheumy had me stop my neurontin and my amitriptyline.  I had been on neurontin for a year and a half, but was only on 200mg of it and it really didn't seem to be doing much for me.  I was only on amitriptyline for about 3 months, but it gave me tremors which wasn't good and I was also gaining more weight.  My rheumy put me on Doxepin which is in the same family as amitriptyline, but doesn't have as many side effects.  I quit my old meds and started the new one on Friday.
 
I already wasn't feeling great, but by yesterday I felt pretty bad.  I have been running a fever anywhere from 99-100 and feel flu-ish and achy.  The good news is that my tremors are already much better and the doxepin seems to work well for helping me sleep.
 
I have no idea if I would go through withdrawls from neurontin or from amitriptyline - I didn't even think to ask.  Does anyone know anything about this?  I told a friend last night that it's so hard with this disease to tell if your symptoms are because of the disease or meds or if something new is going on.  I also did a lot on Thursday and Friday, so my body may just be crashing from that.  On Thursday i had my rheumy appointment so while I was there I got all of my kids' school supplies too and then Friday I know I pushed myself too hard trying to get a bunch of things done.
 
I'm guessing my body is going through some kind of adjustment to the med changes.  I seem to be pretty sensitive to meds and their effects anyway.  I just wanted to know what some of you think.  If things don't get better in a few days I'll call my rheumy and see what he thinks.

Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 25mg; Neurontin 200mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 8/19/2007 3:03 PM (GMT -7)   

Hi Hippi, I'm sorry you are feeling so bad. I'm glad to hear the doxipin is working to help you sleep though. With what you have to deal with sleep is very precious. I know what you mean about trying to figure out what is happening. Since you have been sick anyway it may be that all the activity has brought you flare back. I really doubt is detoxing off of the drugs oud cause you to run a fever. it may make you a little spacey as your body adjust to the changes though. It could very well be a combination of things. I think you are on the right track with calling your rheumy. You need to get to the bottom of this. You could be having a bad reaction to the new meds. At any rate I don't think this is a time for a wait and see approach. I hope you get to feeling better try not to over due it and please talk to your doctor.

Love and prayers

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 8/19/2007 4:14 PM (GMT -7)   
Thanks Carol. A lot of what you said makes sense and helped me realize that how I'm feeling is probably a combination of things. Sometimes I get tunnel vision and can't see the forest through the trees. I bet you are right that this is a combination of overdoing it last week and my body adjusting to the med changes.

My fever has never gotten over 100, but it's enough to make me feel yucky. Today I took some Aleve in addition to my usual meds and some hydrocodone, but my fever still hangs on at about 99.5. The good news is that even though my body feels run down, my head seems a little more clear. Although the amitiriptyline helped with headaches and sleep, it made my already foggy brain more fuzzy, so it's good to have some of that gone.

I did sleep most of the afternoon and am hoping that all the rest will result in a better day tomorrow.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Audrey Ann
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Date Joined Jul 2005
Total Posts : 815
   Posted 8/19/2007 7:14 PM (GMT -7)   
Hippi, I am so sorry you are not feeling well, again. Wow, you are really adjusting to many changes with your meds and it really does seem like you over did things a bit the last few days. It is promising that you are dealing with less of the tremors and that you seem less "foggy", though. This is VERY good news. I agree with you and the others that a call to your rheumy is in order. Just to give you peace of mind at the least. Anyway, your nice nap was a good move for you today and maybe this will help you "make up" for being naughty and over-doing things again. It is soooo hard to hold back, though, isn't it? Especially when you have kids and things just need to be done. Over-all, however, you seem to do remarkably well, Hippi, so keep up the the great effort. We all love you dearly here!

Prayers, Audrey Ann
Audrey Ann
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), RelafenMethotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.


 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 8/19/2007 7:33 PM (GMT -7)   
Hey Hippi,

If you remember Ginny, I think she had a really hard time trying to get off the amitriptyline. Not positive it was here, but I think so. I didn't have such a hard time and I've been off of it for about 8 months and haven't replaced it with anything. The neurontin may leave you a bit on edge withdrawing from it though. I was taking it for nerve pain for a while.

I hope you get lots of rest and feel better soon. I think that your over-doing it could be the biggest culprit. Darned!!

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
 
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sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/19/2007 8:34 PM (GMT -7)   
Hi, Hippi. I'm really sorry you're feeling badly. I agree you are probably having a little set-back from the over doing, but those new meds should still be something to watch. I hate it when my docs make several changes at once. You are dealing with stopping two and starting a new one. It makes it impossible for you to know where the problems are coming from. If you still keep running that fever though, I would definitely give my rheumy a call. Sometimes, they may know right off as to whether or not the med they have just given you is causing it. They may even know if it is an expected withdrawal from one of the others you've stopped. Hope you get this figured out quickly. I know how feeling bad and running a fever can just drag on and make you feel miserable. Please keep us informed.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/20/2007 7:10 AM (GMT -7)   
Thanks Audrey, Rosie and Sharen. I'm doing better this morning. I'm still having a little more pain than usual but no fever so far this morning. The fever is what seems to make me feel the worst. It also turns out that I had been premenstrual and I always tend to have some kind of flare up during that time. I just didn't realize it was about that time of the month.

I did some reading yesterday and from what I read, the neurontin should be out of my system in a few days, but I'm not sure how long the amitriptyline takes to leave the body. I think all of you were right about it being a combination of doing too much and the med changes. I think things are starting to look up now though. The kids go back to school on Thursday and I'll be able to start taking regular daily rests again which will help. Overall, I did pretty well this summer and was able to do a lot with my kids. I had a few intense "mini flares", but in general, I'm really thankful for how much I was able to do. I can tell my body needs a break though and that I need some more consistent kinds of rest.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/20/2007 8:44 AM (GMT -7)   
Hippi,

I hope you continue to do better and that the worst is over for you. I have heard many people having problems getting off of anti-depressants but I'm hoping it won't be too long of a hard time for you since you were on it a relative short period of time. Again, I hope things get better and I'm keeping you in my thoughts.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/21/2007 12:49 PM (GMT -7)   
Hi, Hippi. I'm glad to hear that you're feeling some better. I hope it all was just from the combination you spoke of. It's always great to hear good news! Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

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