biopsy update and more....

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applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 8/19/2007 6:46 PM (GMT -7)   
hey all,
i haven't been online for awhile since we moved to GA i have had doc appointment up the waazoo, but i finally had the second kidney biopsy since april and now with the meds that they had put me on in april it seems to have worked becuase the docs say the prelim reports say there is no sign of lupus or rejection in my new kidney, and i know that i should be happy but right now i have mixed feelings cuz my creatinine is still up, the docs are not that concerned because they dont have the final report yet.  i just want everything to be normal again.  i also have a new pcp and he is wonderful.  he put me on an anti-depressant and i am seeing a therapist, she is surprised that with my disease and all that i have talked about so far (i have only seen her 3 times, but she has me coming to see her every other week) that i hadnt been seeing one before. i probably should have been i wasnt.  i think that is helping some and of course i have a wonderful husband who does more than his fair share around the house without too much complaining.  so hopefully we can get on and in about six months start trying to have a baby. 
 
a question i wanted to ask was, does anyone take diamox?  i have been on it and i am thinking that maybe it is the reason that my creatinine is going up because it acts as a diuretic and some diuretics can make your creatinine increase, at least that what docs have to me? 
 
so that's my update for now, i will let you all know what happens when i get the finally report from the docs.
Hugs and prayers,
~Suzanne~
 
diagnosed in May '95 with lupus nephritis, hypertension,hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/19/2007 7:13 PM (GMT -7)   
Hi Suzanne,

Great news about your biopsy. YES . . . it is unsettling when you are waiting for all the info to come in. Your docs sound like they are kind and concerned. I hope you are feeling ok as well.

I'm sorry I don't know anything about diamox. I don't have organ involvement . . . just skin and connective tissue. I'm very grateful for the limited complications.

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
 
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curlyhair
Veteran Member


Date Joined Jan 2005
Total Posts : 659
   Posted 8/19/2007 8:40 PM (GMT -7)   

Hi Suzanne,

I am so happy to hear the prelim results of the biopsy are good. I can understand your concern over your creatinine but I have also heard that diuretics can cause it to rise. I always look at it this way, the docs are the specialists so if they are not overly concerned then I shouldn't be either. It is good you are seeing a therapist and feel that it is helping you. Let us know what the final results are and good luck!

Sandy


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, lasix, klor-con


applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 8/19/2007 8:47 PM (GMT -7)   
thanks rosie and sandy, yea and usually i am like that about some things but i have been doing this for about 12 years now and i know that doctors have other patients and things that get in the way, and they dont alway connect the dots especially with medications if they are not the only doctors that are prescribing a patient their meds. because for me the diamox was given to me by my neurologist and not by my nephrologist, and not say that they have over looked it but that they my have not mode that connect. but it also why i stay on top of things especially when it comes to medications and all of the info about them. doctors are smart, but they are human and we all make mistakes. but i did point this out when the doc called me so she told me to stop taking it two days before i come see her and she would do some bloodwork to see if that indeed may be the case.
Hugs and prayers,
~Suzanne~
 
diagnosed in May '95 with lupus nephritis, hypertension,hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/20/2007 6:50 AM (GMT -7)   
Suzanne, I have been wondering how you have been doing. I am really glad to hear about the results of your biopsy - I know things weren't looking so good a while ago. I don't know much about the med issues. It's so hard sometimes to tell what could be causing the creatine levels. Hopefully your docs will help you be able to get to the bottom of it and that it won't be anything to worry about.

I hope you'll keep us posted on what you find out. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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