So sick of being this sick

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monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 8/20/2007 6:53 AM (GMT -7)   
Hello my dear ones, I am so sorry I haven't been here in so long. I have been battling some pretty horrible stuff.

You know that I have relapsing clostridium difficile, and I am still waging war against that. It has been 5 full months now, and I am so ready to be rid of it.

I am also having problems I believe with lupus, but am unable to distinguish between something else being wrong.

How do you know a flare is a flare? I am running low grade temps again (have been for a week), have constant INTENSE muscle and joint pain (like the flu times 10) I am exhausted, not sleeping well, and have lots of stomach aches. But this started on the maximum dose of vancomycin for the c. diff. When I take the max dose I do not have symptoms like this. If I had not been on the max dose I would have passed it off as c. diff.

Can my rheumy determine if this is a flare?

Do any of you experience abdominal pain with a flare? Stomach aches? I am not vomiting, nor do I have "d".

Am wondering if a flare could make things already sick...hurt more.

I had a colonoscopy and everything looked fine. Biopsies came back completely normal.

Please know that I think about you all so often and you are in my heart and prayers.

Hugs,
Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/20/2007 7:22 AM (GMT -7)   
Darlene, you must have read my mind this morning. I was planning to e-mail you to see how you were doing since I hadn't seen you here for a while and I know how sick you had been. I can't tell you how sorry I am that you are still so sick and that you are still battling the c-diff.

I really think you need to call your rheumy and that you should be seen. It really sounds like you are flaring, but your rheumy would be the one who could help sort that out. Between your symptoms and running some labs your rheumy could tell you if you're in a flare. It wouldn't surprise me at all if you were flaring. The c-diff is so hard on your body that it could have set off a flare. For me, even a simple cold can throw my lupus into a flare. Hopefully your rheumy could figure out something to keep you more comfortable and maybe something to help you sleep better.

I wish there was something more that someone could do for you - you sound so miserable. I just wish there was something that would give you some relief. You have been on my mind lately. Just know that you have lots of people here who care about you and want to hear from you whether you are feeling rotten or feeling better. I'm praying you get some relief soon.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/20/2007 8:48 AM (GMT -7)   
I agree with seeing your rheumy. It does sound like you are flaring but you are right, how do you know for sure? I think the biggest lab test that rheumys use to see your if your lupus is active is the dsDNA test. I know that my rheumy runs this test each time I'm there "just to see what's going on". I hope that its not a flare for you but if it is, maybe you can get out of it quick. I hate to hear that you are not feeling well, I'll be keeping you in my thoughts.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/20/2007 10:08 AM (GMT -7)   
Hi Darlene,

I don't have anything to add to the suggestions above, but I wanted to say hello send you hugs and blessings.
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
 
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/31/2007 6:19 PM (GMT -7)   
Hi Darlene, I just wanted to check on you and see if you are feeling any better? Did you manage to get an appt: with your rheumy? How is the c-diff doing? At the risk of sounding like an idiot (again) lol. I have never ven heard of c-diff until I came here. Is it somthing people with AI get often? I have read some about it but I'm still notclear. Does it happen from the side efffect of medication? I hope you are feeling a bit better.
hugs and prayers
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/1/2007 7:09 AM (GMT -7)   
Darlene, I've been wondering about you too. I'm hoping you are getting some kind of relief, but I know how hard the c-diff can be to treat.

Carol, you are so good about following up and checking on people. It is very sweet of you to do that.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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