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Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 8/20/2007 9:44 AM (GMT -7)   
The Dr. called m e today and told me to get to the pharmacy for meds. My labs are 100% conclusive for Lupus. No doubts. Thank you all for being with me during me wait. The Dr. was a royal jerk to me but he came through with all my tests. I am sad. I have Lupus and IBD and 2 sick kids. I am tired and I wish all this would just go away.

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/20/2007 9:50 AM (GMT -7)   
(((Chaya)))... I know its a bittersweet moment for you to hear that you are indeed sick, not wanting to be but now having confirmation. I hope you can get a treatment plan going right away so you can get yourself in remission. I understand how hard it is to cope with so many illnesses at once. Having to care for sick children too is a lot to bear. Please know that we are here for you and you know that you can always come here to get it off your chest and hopefully let off a little steam to make you feel better.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 8/20/2007 10:01 AM (GMT -7)   
Congratulations.. I think? I always believe that with a diagnosis you can get better/proper treatment. No fun being diagnosed with Lupus, but it is a relief to know what you are dealing with and to have hope that your condition may not deteriorate with treatment. Glad you now have some closure on this chapter of life. Take care & HUGS - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/20/2007 10:05 AM (GMT -7)   
Hugs and blessings to you Chaya. You have expressed feelings that many of us share with you. We really do "need" the affirmation of a conclusive diagnosis because it helps explain our problems and it gives us some credibility with doctors and family. . . . but knowing that we will need to adjust our lives forever to accommodate it is a lot to take in. It takes some time to go thru the stages of mourning for our old self and our old health, but once you work thru that, you will find a new "normal" and a new balance. Just make sure you learn how to pace your limited energy and how to really make good decisions on how to spend it.

I'm sure the others will have some encouragement to share with you too.

Blessings!!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
 
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/20/2007 11:16 AM (GMT -7)   
Chaya, what the others said about a diagnosis is so true. It's really a bittersweet moment. None of us wants to be sick, but it's worse being sick without a diagnosis than being sick with a diagnosis. At least you and the doc know what you are dealing with now. Hopefully the doc will be more helpful and compassionate now that you have a diagnosis. What meds did he start you on? Hopefully he'll have a follow-up with you soon to see how you are doing on your meds.

I'm sorry to hear about your kids being sick. It's hard enough to be sick yourself and take care of healthy kids. My son, who is 9 has juvenile arthritis and it can be a real challenge at times.

We're here for you through all of this. There are all kinds of both emotional and physical ups and downs with this disease and it's nice to know you can come here where people really understand and can relate to what you are going through.

Make sure you take time to take care of yourself. Lots of ((((hugs))))
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



MGeddes
New Member


Date Joined Jul 2007
Total Posts : 18
   Posted 8/20/2007 5:12 PM (GMT -7)   
Chaya..... I know hearing the diagnosis can be bittersweet. It is a relief to have someone validate the fact that you truly are sick but then comes the dealing with it.... I know what that is like. It took me about 3 years to be accurately diagnosed. I was bounced from Dr to Dr and then finally someone was willing to give me the diagnosis. Now I have been dealing with the ups and downs of the disease. I have had some issues with the medications. This site is truly a wonderful place to find support and information. I was relieved to know that I am not crazy and there are other people out there that experience alot of the same things that I do.... Hope you are doing well!
SLE diagnosed 2003, Pulmonary Embolism 2002

Plaquenil 200mg 2xday, Coumadin 15.5mg alternating with 17.5 mg per day, Cellcept 500mg 2xday


kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 8/21/2007 12:21 AM (GMT -7)   
at least you know ... now you can plan a course of action and attack. at least you know you're not a hypocondriac and you're not crazy.
Take care,
peachy
 
Diagnosed with lupus in May 2005
 
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
 
Supplements
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/21/2007 2:05 PM (GMT -7)   
Hi, Chaya. I second what everyone else has said about finally being diagnosed. It was SO nice for me actually having all my crazy symptoms come under one title. I had several misdiagnosis' that ended up costing me a good-sized chunk of completely unnecessary money that could have gone far toward the valid treatment of my disease! Just don't make the mistake that I made, by thinking that because they have diagnosed you, they'll know how to fix you. Unfortunately, that was disappointment #2 for me! As you will read on many posts here, there are all kinds of things that can come and go at any given time with this stupid disease. Just be glad you have found this place! You can come here and vent, discuss problems you're having and possibly even find the help that you need with something you're dealing with. You will certainly find people in the same boat who more than understand what you're dealing with. I'm sorry that you have sick children on top of your diagnosis. Just try to take it one day at a time. That's all we can really do.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

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