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dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 8/20/2007 7:08 PM (GMT -7)   
Yeah, this is a new term to me. I was talking to my brother in law, who is an internist, on the phone and I was telling him about my SCLE rashes and I happened to remember about this different kind of rash that is located on my side (back area). It is about 1-2 centimeters in diameter and it looks kind of like an old burn has a whitish silky looking texture (best way I can describe it). It is very thick when you press on it and it is very tender beneath the skin. It feels like it is digging into muscle and into my ribs.

I first thought it was some kind of skin cancer and then forgot to mention it to my docs since I hardly ever see it. My BIL thinks it sounds like morphea (or localized scleroderma). He says its different than systemic scleroderma but it is not uncommon with connective tissue diseases. I already have a dermy appt next month but I wanted to see if anyone here has this. He also said it could be possible panniculitis.

Anybody experience either?
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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Lynnwood
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Date Joined May 2005
Total Posts : 7020
   Posted 8/20/2007 8:12 PM (GMT -7)   
From the pictures, I might also have a patch of this on the front of my leg. What kind of doctor treats scleroderma?

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


emmi
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Date Joined Apr 2005
Total Posts : 1529
   Posted 8/20/2007 10:08 PM (GMT -7)   
A rheumatologist generally treats scleroderma. Since it is pretty rare, you usually seek out a rheumy who is a "specialist" in treating scleroderma. You could also see a dermatologist for this type of scleroderma. Morphea is a type of scleroderma. It is NOT systemic i.e. it does not affect the internal organs. Let us know what you find out.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 8/21/2007 6:00 AM (GMT -7)   
My appt is on 9/26 (a long way from now but good dermy)... I'll let you know what I find out.

Thanks
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


http://www.healingwell.com/donate


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 8/21/2007 6:58 AM (GMT -7)   
Des, I'm sorry you're going through this and I hate to hear that you may have another diagnosis. Hang in there until your appointment. Thank goodness what you have is probably not systemic.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 8/21/2007 8:01 AM (GMT -7)   
I see my rhuemy 8/29 -- I'll ask him about my spot. We'll compare notes!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

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