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kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 8/21/2007 12:16 AM (GMT -7)   
Hey Everyone,
 
It's been a while since I've posted on here, but I do read the postings a lot. My busy life seems to get in the way sometimes, almost to a point where somedays I forget that I have lupus. The daily medicine popping seems more like the vitamins I used to pop as a kid every day instead of life saving medications. Prior to having lupus, I thrived on stress. I loved having a high stress lifestyle and a high stress job. Once I got sick, I had no choice but to slow down.
 
Reading Barb's thread about being in the hospital reminded of when I first was diagnosed. It was a reality check about what's important in life. The ability to walk, pea, function, your loved ones -- that's what's important. Working for others, making other people happy all the time, playing 'politics' and games at work with other people -- it's so not worth our time and stress. Sometimes I forget that I am a very sick lady who is dealing with some amazing obstacles with class.
 
I have a situation right now that, after reading Barb's thread, seems so silly. (Most of you know I plan weddings for a living.) A photographer, who has been a long time mentor / friend, caught me in a situation with a (very!) difficult client's mother who was saying some very rude and inappropriate things to me. I stuck up for myself and the bride, who had even requested that I keep her mom away from her that day. (Isn't that sad!) This guy witnessed part of the conversation and has not only kept his distance from me, but has taken another girl with no experience, great taste in clothes (not all of us can afford a prada wardrobe) and a big rolodex and is now referring her business. Since then, I've also felt a very cold shoulder and almost judged by this person based on one negative incident (among the many positives and the oodles of money I've sent him over the years!) I felt like such trash and I was like, 'what did I do?' I have been so upset this week, comparing myself to this girl (who I personally have never cared for prior to this) and trying to figure out what I did that was so wrong.
 
Then I read Barb's thread about being in the hospital and it hit me. People who play games like this have not had a major tragedy hit them. You look at life a lot differently and you realize what is truly important. Life is not about making tons of money. It's about doing things you love, surrounding yourself with good people and enjoying what's around you. It's about sticking up for yourself when others try to treat you unfairly or like crap. As lupies, we need to surround ourselves with people who are a good, positive influence on us. We've been through enough as it is. We know that everything we have and know can be taken away like the snap of our fingers. I am so grateful to have made a decent recovery. Granted, I'll never have my pre-lupus body back, but at least I am alive. Life is too short and you need to live every day to the fullest as if it is your last. We're all human, we make mistakes, we have shortcomings, and we all deal with our own demons. Everyone is thrown a curve ball at some point in their lives. Our curve ball was lupus. How are you dealing with your curve ball today? If you're in this chat room reading these posts, you're dealing with it in a positive and resourceful way.
 
When I was in the hospital, my favorite character was killed of my soap opera. (Cassie on Y&R!) I bought the soap opera digest that week because it said on the cover that Cassie died. I keep that magazine in my desk drawer to remind myself about how that week, Cassie died but I lived. That meant that I still had living to do.
 
That's it -- reality check for kp!
Take care,
peachy
 
Diagnosed with lupus in May 2005
 
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
 
Supplements
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/21/2007 6:04 AM (GMT -7)   
Peachy,

I think that is a wonderful post and I agree with you 100%. I'm so sorry about the incident with your work, that's awful and goes to show how shallow some can be. You are right, you do see things in perspective when you are dealt a difficult hand. Thank you for this post, it was wonderful to read and you expressed yourself very well.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/21/2007 6:55 AM (GMT -7)   
Peachy, you make a good point! I believe that good mental health means being able to deal with the curves life sends our way and it sounds like you're doing just that. It's not easy, I know, but we can do it. Keeping things in perspective has become much easier for me too since I've gotten sick.

Slowing down can be such a challenge, and I was happy to read that some days you even forget that you have lupus. Good for you. Thanks for sharing.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/21/2007 8:27 AM (GMT -7)   
Peachy, thanks for your post and for giving all of us a reality check. I'm sorry about the incident with your work and it really stinks that there are people who really don't get it or see the bigger picture.

You are so right about realizing what is really important in life. I think having an illness like lupus almost forces you to do that. Everyone I've met here really is amazing and I'm inspired by everyone here.

It was good to hear from you Peachy and I hope you'll keep dropping by and updating us on how things are going for you.

Take care of yourself.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 8/21/2007 2:38 PM (GMT -7)   
Hi, Peachy. I think we can all use a reality check like that! I sustained a traumatic head injury in '94 (thanks to a car wreck which I am physically disabled from) and this lupus finally showed itself well enough to get diagnosed just this last year. I have finally reached the point where when faced with situations like you described: I try to just step back, separate myself, readjust my view to make sure I'm taking it all in, then if I still don't get it...just say "It's just not meant for me to understand". Drop it and move on. I know it's easy to say, because especially when something hurts you emotionally there are personal interests involved. But, you can not let it eat at you. I can about promise you that no one else involved has even wasted one second of their time thinking about it. People do strange things for crazy reasons. The longer and more you have personal or family trials to deal with, the easier this process will become. Just know that we all DO understand exactly what you mean here. This is a great place to release that frustration and get some understanding! It helps with the "step back and reevaluate" part. Take care.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


melissa2k12
Regular Member


Date Joined Aug 2007
Total Posts : 39
   Posted 8/21/2007 10:12 PM (GMT -7)   
Hi Peachy. It was really interesting to read your post. I was in the hospital a few days ago and it seemed like my life had turned upside down. Even now I'm trying to deal with how life will be different from what it once was. It felt like everything I thought was significant really meant nothing and probably won't ever mean the same again. I see little drama going on around me and I think why does it even matter? I'm glad that things are better enough for you that you can go on sometimes forgetting you have lupus! Take Care.

kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 8/28/2007 11:09 PM (GMT -7)   
Hey everyone -- I'm so glad my midnight revelation helped some people get perspective! It certainly helped me. Sharentriles hit the nail on the head ... "I can about promise you that no one else involved has even wasted one second of their time thinking about it. People do strange things for crazy reasons." That's for sure! On a happier note, last weekend's client was as happy as could be and the wedding went smooth as butter. Things look to be the same for the upcoming weekend as well. Have to focus on the good -- it's easy to swim and wallow in the self pity and the bad. That's what keeps us plugging away!

:-) kpl
Take care,
peachy
 
Diagnosed with lupus in May 2005
 
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
 
Supplements
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)

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