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Thanks for all the responses and the links. I really appreciate it. I am just feeling a bit frustrated. I hate waiting so long to see the doctor and I have no faith in my last doctor. I guess I am a little nervous. I don't want to take pills I don't need but I don't want to not take pills I do need. I spent 6 years taking meds twice a day for asthma. All while my lungs continued to deteriorate. Than to be told I can stop taking it now because I don't have asthma. However I have COPD which may or may not have gotten to this point had I been diagnosed with it earlier. Yes i used to smoke but how did I get COPD in my 30's. from smoking? Every doctor I ever saw said this is not likely the case. So is it scleraderma? The last hospital stay said I had scar tissue in my lungs. 2 years ago they were talking about a transplant if it got worse. They had even set me up with an appt: in california. (I didn't go). Would I even be a candidate for a transplant with AI?
Sorry I'm just ranting a loud. I wish I had thought about this stuff before when i had a doctor in front of me. and demand answers instead of some patranizing pats on the shoulder. I guess you gotta get tough when ya get sick. Take your health in your own hands. Ooops ranting again lol.
I better go
Hi Bill, wow that is interesting. I never thought about it being in your digestive tract. My previous rheumy said it could be CREST because I have had several bouts with painful swollowing. Like I was eat my steak with out chewing or somthing. I'm with you I hope it's none of it. I would be happy to wake up and find this has all been a bad dream. I hope you are feeling well and getting in a gulf game or two.