what this test?

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Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 8/23/2007 2:51 PM (GMT -7)   
Doc ordered an  ANCA  panel. Why in the heck would this one be ordered? I have IBD and Lupus , am I feeling a pissing contest over one Dr. thinking my problems actually belong to someone else? This has not been a pleasant process whatsoever. The GI told me she would go over thi results with me in 4 weeks lol. They also told me they were considering immuran for " future" treatment. What the hell is " future" treatment. I feel like a gerbil in a plastic tank.

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/23/2007 4:15 PM (GMT -7)   
Hi Chaya . . . it is VERY difficult to have to sit and play the waiting game while the docs figure out the fine details of our illness and how to best treat it.

The tend to use meds with the least side affects first to see if we can get relief from them. Some of them take a while to see if they'll be affective. Some of the fine tuning with dx is really important. Some of our least bothersome issues can be the most dangerous . . . so the docs really do need to do lots and lots and lots of testing. You'll see that this is an ongoing process and will continue throughout your medical care.

You sound like you are in such dire straights that you should call your rheumy and explain that the current meds are NOT managing your pain and that you need to either see the doc ASAP or have him re-evaluate strength or type of meds. They really should be controlling your pain at least to a tollerable level. Give them a call first thing tomorrow and see if they will help. OR . . . you can use the ER and get some immediate help.

Keep us posted.

Gentle hugs and blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/24/2007 7:11 AM (GMT -7)   
Chaya, I'm sorry you are going through all of this - it can be very frustrating, especially when you begin to feel like a human guinea pig. I still feel like that sometimes because you never know how each new med will affect you, so it's a lot of trial and error to figure out what will work for you.

I agree with Rosie that if your pain isn't being managed, you need to continue to let your docs know. I don't know much about the ANCA except that I had it done too when I initially had a lot of my labs run. I don't remember what it is for though.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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