Chaya, I'm sorry you are going through all of this - it can be very frustrating, especially when you begin to feel like a human guinea pig. I still feel like that sometimes because you never know how each new med will affect you, so it's a lot of trial and error to figure out what will work for you.
I agree with Rosie that if your pain isn't being managed, you need to continue to let your docs know. I don't know much about
the ANCA except that I had it done too when I initially had a lot of my labs run. I don't remember what it is for though.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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