PMS, Premenstrual Lupus Flares

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AlwaysRosie
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   Posted 8/24/2007 5:41 AM (GMT -7)   
The following is a quote from an interesting paper written by Dr. Grahm Hughes. It's full content can be read at: http://www.infotech.demon.co.uk/Crit.htm . . . the full article contains some great diagnostic information.

Premenstrual exacerbations
All rheumatic diseases are clinically influenced by the menstrual cycle, and none more so than lupus. Some patients are almost immobilised during the 2 to 3 days preceding menstruation. It is my practice in some cases, to alter the dose of medication during this time. Although difficult to quantify, I believe that significant pre-menstrual disease flare is sufficiently prominent in lupus to be included in this "alternative criteria" list.


In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
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hippimom2
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   Posted 8/24/2007 6:46 AM (GMT -7)   
It's so nice to see that at least one doc is confirming and validating what so many of us already know. It was always strange for me to mention some of these things to my old rheumy and she would look at me like I had two heads. My new rheumy seems to be more up to date on this stuff.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 8/24/2007 1:47 PM (GMT 0)   
Wow, loved the entire article. How informative.

And it sure helped answer my questions about ovulation and pms fevers.

I know that Ovulation can cause a raise in body temp, but the amount is very small and so hard to read that you should use a special basal body temp thermometer if you are trying to conceive.

For me, my temp is raised from 97.9 (normal for me) to 99.4 or around there.

Thanks for the article I really enjoyed it.

Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


AlwaysRosie
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   Posted 8/24/2007 7:20 AM (GMT -7)   
Your welcome!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


karasmommy
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Total Posts : 589
   Posted 8/24/2007 8:33 AM (GMT -7)   
Rosie - Great article, thanks so much.  I printed it out for my hubby to read also!  Nice to know that someone backs up some of my gut feelings!

Ellen
Diagnosed with Lupus - April 2002
Diagnosed with Crohn's Disease - January 2003 (problems since early 1990)
Fibromyalgia 2005 
Meds:  Flexeril 10mg as needed, Plaquenil 200mg, Probiotics, Multi-vitamin, fish oil, Cal/Mag Supplement
Off Immuran as of April 1st and doing well!!
 


AlwaysRosie
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Date Joined Jan 2005
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   Posted 5/13/2008 11:20 AM (GMT -7)   
Bump!! Up you go for ansandragel!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 5/13/2008 7:45 PM (GMT -7)   
AMEN!!!
 
It's about time this was addressed and confirmed.  Dr. Hughes rocks!  I'd like to just reach right in there and yank all that crap out of me and get it over with.  Stupid uterus, stupid overies, stupid hormones, stupid lupus...... YES, I'm PMS'ing, LOL!!!  SIGH........ eyes
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 10:58 PM (GMT -7)   
LOL Ginny!!! I do remember crying and praying that I'd have a reason to have it all yanked. Sorry you are having so much trouble. You sound just miserable!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 5/14/2008 10:41 AM (GMT -7)   
Hahaha, Rosie.  Well, I'm not miserable, just ticked!   mad   hate being a woman sometimes.  I wish I was a good candidate for a hysterectomy.  I'd totally do it.  For now, I just cope!  I'll take menopause any time too..... Bring it on! tongue
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


jessieb578
New Member


Date Joined May 2008
Total Posts : 11
   Posted 5/30/2008 12:24 PM (GMT -7)   
Wow!! This is the first time I'm hearing of anything like this! My daughter is 6 and has been diagnosed for a year with cutaneous lupus.  I wonder if this is going to be a symptom for her?  I certainly hope not!! 
 
I'm so nervous with what this disease is going to bring in her life, being so young and it being so rare that someone her age has this, we don't really know what it will develop into.
 
As if that time of the month isn't bad enough for us gals without lupus, the poor gals who do, suffer even more! sad  
 

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/30/2008 9:14 PM (GMT -7)   
Hey jessie,

Gather information, but PLEASE don't use any emotional energy worrying about what might happen later. You'll miss all the fun stuff that's going on right now. *sigh* I know its got to be incredibly difficult figuring things out and watching your little girl go thru this . . . . but honestly, she will pick up on your fear or your courage. Kids just do that . . . they can "feel" the spirit of their parents and that's what they use to move forward (or not).

(((((((( jessie ))))))))))). Just make sure you understand that most people who post here are the one ones who are either new or were hit hard with this disease. We are each SO different. So make sure you don't lose a minute of fun with your little girl.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 6/1/2008 5:55 PM (GMT -7)   
Finally some validation for this!!!! I can count on my symptoms getting worse every month before my period. My old rheumy just looked at me like I had two heads when I mentioned this to her and she acted like she'd never heard of that before.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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Bumble30
New Member


Date Joined Oct 2010
Total Posts : 16
   Posted 10/19/2010 10:12 PM (GMT -7)   
I am so glad I found this. For the last few years I have been suffering with random bouts of severe joint weakness and pain along with fatigue that putts me in bed for days. From the time I ovulate to the 3rd day of my period I am not human.

I started having these odd thing happen to me like this redness on my face that would come and go. It is also accompanied by one seriously red ear. These flares can come every few days, but every so often they go away for a while and then come back with a vengeance out of the blue ready to make up for lost time. They have recently become very pronounced while I am ovulating. It's not enough that I have crappy periods, now I have to suffer through ovulation all of the way to my period.

Now I have serious joint pain that can be so bad that I cannot open a water bottle because my wrists give out. I have went form working horses to not even being able to ride one. My knees feel funny too, like they have too much fluid in them, then they ache. My body feels like it is on fire.

It was not until the last year that I noticed that this was closely related to my cycle fluctuations. I told my doctor, but I might as well have been speaking Chinese to her. She prescribed Prozac. That did not do anything but make me very stomach sick.

So here I am at 12:08 am burning up and red in the face trying to find people that can relate. I know this post is old, but just thought I would chime in and see if anyone was able to get help or find answers.

No, I have not been diagnosed with anything. Even with all of the "signs that doctors can see with their own eyes" They give me antidepressants. I don't want Antidepressants. I just want to feel good and not lose my job because I cannot get out of bed for three or 4 days a month. Is that sooo much to ask?

ShinyLight
Regular Member


Date Joined Sep 2010
Total Posts : 24
   Posted 10/20/2010 5:16 AM (GMT -7)   
Wow! I was wondering myself if it was just me! I'm actually on my cycle now and felt horrible! for the past week... the symptoms go back to normal once its over. I'm so glad I am not alone once again... I love the online community support group. :-)

**** PS: I can't seem to get the article through the link could you repost it and place the name of the article?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 10/20/2010 5:35 AM (GMT -7)   
The article was posted here in last 2007. It is no longer available online.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Bumble30
New Member


Date Joined Oct 2010
Total Posts : 16
   Posted 10/20/2010 8:28 PM (GMT -7)   
I am sorry guys. I looked up the article. Here is the link.

http://www.lupus-support.org.uk/Crit.htm
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