Someone Please Help!! I'm Scared!!

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JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 8/24/2007 4:48 PM (GMT -7)   
Hi! Everyone I am scared to death I had an MRI of brain and it is showing small dark area in center of brain. Has this happened to any of you?? I've been on Methotrexate.
Hugs!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 8/24/2007 5:30 PM (GMT -7)   

Cathy I don't know what your MRI means but I wanted to let you know that your in my thoughts and prayers. I hope it's just a shadow!! That does happen sometimes. When do you go to the doctor to get a better explanation? Take care  and lots of hugs.

 

Kitty


Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil,  NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.


IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 8/24/2007 6:17 PM (GMT -7)   
Hey Cathy!!
DO NOT GET WORKED UP!!! Like Kitty said it could be a shadow!!! The Methotrexate should not have caused anything like that. (from the literture I have read)!! I am sorry I have not called you back yet I will try sometime this weekend. I have been taking my pain pills and sleeping and answering the phone and trying to rest after surgery.
I Love ya Girl!!! We LUPIES have to stay together!!!!!
Nicki
SLE 9/99-Autoimmune Hepititis 2006- The list is tooo long for me to type!!  Just ask I will tell.
Most important of the 19 medications is Methotrexate and Predisone.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/24/2007 7:09 PM (GMT -7)   

Hi Cathy, I'm sorry I didn't respond sooner but I was having a problem getting on this site for some reason. I'm really surprised they told you that but gave you know explaination. Like the others said try not to get to upset about it. I think if it were really serious they would have had you come in right away to discuss it. Do you have an appt set up with your doctor yet? I know it's easy for me to say to slow down and take a breath. I'm not real good at taking my ow advice but try to not get to stressed. It won't help and in most cases it will make your lupus worse.

We are all here for you

Keeping you in my thoughts and prayers

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 8/24/2007 8:44 PM (GMT -7)   
Hi Kathy,
Did you get the reading for your MRI or are you looking at films? Some stuff looks pretty weird on MRIs. I've had head trauma, was stabbed in the temple and my ex had some brain problems, and my son has epilepsy due to a problem in his parietal lobe. I have diffuse atrophy of the brain, a sign of early aging, my brain is twenty years older than it should be. At any rate, I agree with the others about relaxing. Are you functioning all right mentally and intellectually? This might be something you always had since birth. We only use a tenth of our brains. It may be a shadow, nothing wrong at all. I've known people with holes in their brains from drugs and they ended up being fine, you wouldn't know anything was wrong with them. If you are not having some symptoms, then hopefully it will be nothing to worry about. The brain has lots of wrinkles and it is normal as we age for the brain to change, have fewer wrinkles or some atrophy, like I have, but mine is spread out through my brain. The main thing is that you are doing alright and aren't going bonkers and your doc knows and will likely follow up with a more focused MRI on that particular area to check out for sure that it is only a shadow and nothing else. I'm sorry you have this scary thing happen and I know it is really scary when something like that shows up. But don't worry too much because lots of times it's just nothing, like they say, a shadow, that's all. Please let us know what happens and if there is a problem. Best wishes and prayers.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 8/24/2007 9:48 PM (GMT -7)   
My doctor called me personally at 5:30pm my time to tell me the news. I see the neurologist on Monday and will have another MRI Wed. am at 7 with contrast to define the edges better. It is on brain stem deep into brain but size of pea at this time. Keep me in your prayers and thanks!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/24/2007 10:01 PM (GMT -7)   
Cathy,

I'm so sorry about your scare, and to get it on a Friday afternoon to boot. I can tell you to try to take it easy this weekend and not worry about it, but I know you'll worry anyway. Just know that we're all thinking about you. It sounds like you have a good doctor and I'm glad you're going to have another MRI on Wednesday. My hubby had a scare earlier this year that was so bad that he got his affairs in order, and today he's as healthy as an ox.

And you can bet you'll be in my prayers!

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 8/24/2007 10:14 PM (GMT -7)   
I am so sorry that you are having to worry about this all weekend!

What you are experiencing is so very hard. Waiting is horrible and our minds race off in all different directions. Not knowing what is going on can be worse than the reality.

You are most definitely in my thoughts and prayers.

Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/24/2007 10:29 PM (GMT -7)   
Hi Cathy . . . sending you prayers and hugs. No idea at all about anything with the brain . . . but the neuro's are sharp. I hope your appointment goes well next week and that your neuro will reasure you about what the spot is and what that means as far as your health.

Keep us posted!!

Hugs and blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Clickable Links:   Healing Well:  Lupus Resources
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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 8/25/2007 8:36 AM (GMT -7)   
Cathy, I am sorry that you are going through this and that it has been such a scare for you. Like the others said, it's too bad you don't have more information about it, but I'm glad you are going for another MRI so that hopefully you'll get some more definite answers. Please let us know what you find out.

Just try to take it easy this weekend and do some things that you enjoy that will hopefully help you to get your mind off things for a little while.

Take care and lots of (((((hugs)))))
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 8/25/2007 12:21 PM (GMT -7)   
Thank you all for your support and kindness it is greatly appreciated :) I even asked if they were sure its not a lesion that sometimes us lupies or MS patients get but they said no. See I'd had lots of light headedness trouble with balance headaches etc but those are also lupus symptoms so its hard to figure this all out. I figure if we pray and wish hard enough maybe whatever it is will go away!! This week without the MTX I feel horrible!! They are not sure if i will take it next week either.
Hugs!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/25/2007 12:32 PM (GMT -7)   
Hi Cathy, bless your heart. I know you must be really worried. But like you said lots of prayers and possitive thinking. I'm for that idea! When I hard the MRI of my liver and kidney they called and told me I had a mass in my kidney. I said I have a cyst in my kidney that has been there for years are you sure it's not that? They said absolutely it's not a cyst it's so mass. So a week later and more grey hairs I had another scan and low and behold ....................it was the same cyst I've had for years. LOL. Of course I asked for and got plenty of prayers so if it was a mass by the time they checked it again it had turned back into a cyst. I hope the doctor monday can give you some news that will set your mind at ease.
Lifting you up in prayer
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 8/25/2007 1:04 PM (GMT -7)   
Yes Okie I agree with you!! Previous brain MRI's were ok.. Could it be a mistake?? I've been trying to search and see if lupus lesions are dark but no luck...
Hugs!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 8/25/2007 3:51 PM (GMT -7)   

Cathy - just wanted to say you are in my prayers.  This stuff gets very scary sometimes.  I get freaked out a lot too if there is something not quite right with the major organs.  It is normal.  Until you hear from a doctor and sometimes a second opinion from another doctor, we really don't know what to expect.  The not knowing is the scariest part, I need the feeling I can do something about it.  I am sure you will handle whatever comes your way.  You are still here, and at worst,  they found the cause of your symptoms.  There are a lot of things they can treat, even with the brain. 

I wish you the best and look forward to hearing how it goes - remember we will be here for you.  Hugs - Kristin

 
 
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 8/25/2007 4:17 PM (GMT -7)   
Thank you Kristen and all!! I think I am going to put a positive spin on this as I like Positive so I am going to say I'm having 2nd MRI Wed. to rule Out Tumor :) I mean why not they could be wrong
Hugs!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/25/2007 9:05 PM (GMT -7)   
Wow, Cathy, sorry to hear about that pea sized thing. I'm surprised they could see it without contrast. I'm sure with contrast they will be able to tell you much more about it and whether it is something benign and not worry about or something more serious. There are glands and stuff near your brain stem and maybe its just a misreading of something like that. If they find it early that's definitely a good thing, what ever it is. You haven't been putting peas up your nose have you? (tee hee)
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 8/25/2007 9:13 PM (GMT -7)   
cured4real? That was funny lol Maybe I did as a child and it took that long to show up lol Maybe its just some artifact or malfunctioning MRI. Yeah seen that without contrast
Hugs!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 8/25/2007 9:15 PM (GMT -7)   
Hi Cathy,
I like your spin. You'd better be careful or all of those presidential candidates will be all over you wanting you to work on their campaigns! Seriously, the place you are in now, "no man's land", is the worst. You are doing the best thing possible: thinking positive and asking others for positive thoughts and prayers.

You can be sure that you've got my positive thoughts and prayers with you. Let us know how things go for you next week and remember how much we are thinking of you!

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 8/25/2007 10:15 PM (GMT -7)   
I have to get regular MRIs or Cat Scans of my brain. I know that without contrast some areas can look shadowed and not really be. It is actually a rather common thing which is why I have to get them with contrast every time. If the MRI still shows a shadow and they have no clue insist on a Cat Scan with contrast before you agree to anything being done. Trust me on this one. Often the Cat scan will show stuff that the MRI can't quite get. Even if it shows something there are a million things it could be so try not to worry right now.
Dx:fibromyalgia 2002, systematic lupus 2005, psoriasis 2006, rheumetoid arthritis 2006, early sjogrens 2006, low positive anti-phospholipid antibodies/lupus anti-coglutant 2001-2004 and 2007, osteoarthritis 2005, Migraine 1994, Compression fracture 2001, Disk problems 2006, Multiple allergies 2006, Post traumatic stress disorder (PTSD) 2007, Bipolar type II 2007, possible siezures 2005, probable lupus CNS involvement 2007

Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD


JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 8/26/2007 10:42 AM (GMT -7)   
You guys are super!! What a support group I have!! Emmi that was funny lol You bet I'm not going to settle for just this answer from the other day. I know I'm allergic to CT contrast hopefully the MRI contrast won't bother me either. Hugs and thanks to all!!!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/26/2007 7:33 PM (GMT -7)   
Just a quick note letting you know I'm thinking about you and hope everything turns out ok and they tell you the results soon so you don't have to worry.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 8/26/2007 9:42 PM (GMT -7)   
Cathy,
I'm also allergic to the contrast they use with CT scans (I have an allergy to iodine which is why I can't tolerate the contrast). The contrast they use with MRIs is different. I can have it. Hopefully the same is true for you.
xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 8/27/2007 11:40 AM (GMT -7)   
Cathy,

I'll be thinking about you this week and will be anxious to hear how your next MRI comes out. I'll check in when I get back in town next week. Hang in there. :)

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Willow73
New Member


Date Joined Aug 2007
Total Posts : 15
   Posted 8/27/2007 3:19 PM (GMT -7)   
Cathy,
I am new here, but I want you to know you are in my thoughts and prayers! I know things will work out just fine. Like you said - positive thoughts.

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/28/2007 7:21 AM (GMT -7)   
Cathy, I also wanted to let you know you have been in my thoughts and I hope the new MRI shows that there is nothing serious going on. Take care of yourself. ((((Hugs))))
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


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