Prednisone ups and downs

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Regular Member

Date Joined Jan 2007
Total Posts : 135
   Posted 8/24/2007 8:01 PM (GMT -6)   
I finished the prednisone pack that my GP put me on. I felt good on the pack till the last day. The day I finished it I was having horrible pain and fever. The next day it cut by 50% and today it was even a little better. I am so scared that the pain and fevers will come back. I am hoping and praying that it will resolve on it's own without having to go on a regular daily dose of prednisone. Cooler weather should be here in a few days! YEA! I am so ready for summer to be over. Any advice please?
Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil,  NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 8/25/2007 12:18 AM (GMT -6)   
Hi Kitty . . .

So sorry you are having such trouble. I hope your respit from pain will last . . . but if it doesn't your doc will know that pred can help if things get really bad. I see you take Plaquenil . . . have you been taking that for several months or did you just start??? Plaq takes up to 6 months to fully get into your system, although it can start helping much sooner. I see that you take Naproxen as an anti-inflam. Only with our doctor's blessings, some of us are encouraged to try different anti-inflams to see which works best. So you might find that naproxen is best for you or it might be motrin (ibuprofen). If you aren't getting relief, find out if you can try different types. Also, I found out that sugar can cause inflamation and I really have noticed that if I have ice cream or some sweet treat before bed, I really do wake up with more inflamation, pain and stiffness.

I hope some of the others will be along with some ideas for you. Be well!!

In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
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Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
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Regular Member

Date Joined Jan 2007
Total Posts : 135
   Posted 8/25/2007 7:09 AM (GMT -6)   

Hi alwaysrosie, I have been taking plaquenil for 8 months. It has help a lot with my fatigue and I am not in severe pain like I used to be. I am putting a journal together so I can keep track of my symptoms. When things change so often it's hard to keep track of how bad things are compared to how bad they were before. I hope this makes sense. Also with my journal I am tracking the weather and events in life to see what could cause a flare. And I want to see if symptoms repeat themselves at the same time of the year. I am going on my second year with Lupus. I do have to say it's better than the first. I take the Naproxen in the morning and in the late afternoon. But now the last few days I have to take a tylenol around noon. I see my rheumy in September and maybe he can give me a different anti inflammatory or increase the one I have. And I am due for blood work again too.


Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil,  NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 8/25/2007 10:07 AM (GMT -6)   
Hi Kitty, that does tend to happen quite often. Trying to get off of pred. after a flare. It's a slow process and it doesn't always work the first time. All though you said you were feeling a bit better so I would think that is a good sign.
Praying you do well with out the need for daily pred use.
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 8/25/2007 10:20 AM (GMT -6)   
Kitty, I really hope you can finish your prednisone taper without feeling too bad. Just make sure if things get too bad that you'll call your rheumy. Keeping the journal is a good idea because if you are like me, you can forget a lot between appointments.

I'm looking forward to cooler, dryer weather too. This heat and humidity and rain make my symptoms much worse. Hang in there and keep us posted on how you are doing.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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