Thanks, Tash and Hippi, for your nice replies! I am rather confused, still, because it seems that the MTX helps with much of my pain and it has been great for giving me my energy back. But, because I tried to go off the MTX, I ended up in another flare and the joint pain was horrible. When my rheumy added prednisone back to my meds I couldn't believe how much better I felt! I actually felt NORMAL again for the first time in over three years. Of course, the water weight and the pounds came quickly and that makes me somewhat uncomfortable and I was starting to look so much better (I had lost about
14 pounds - and that is almost all back - boo hoo)! Still, even with the prednisone, my inflammation remains a problem. Anyway, we are increasing my MTX to see if that might help. I go back in five weeks and if the inflammation has not gone down, she wants me to try the Arava.
Also, she has scheduled me a DEXA bone scan for this Friday because of my noticeably increased ankle pain. This increased pain is actually the worst I have ever noticed. Taking prednisone while also having oste
openia is not really the best thing for me. I have soooo many kidney stones that my kidney specialist would prefer I do not take calcium supplements. Gee, I wish things did not need to be so complicated! The increased pain is quite bad even though I take methadone for my kidney stone and RA joint pain. It's a sharp, shooting pain that I get when walking and, also, if I turn to look a different direction or "lean" wrong. I cannot get up from bending down without incredible pain in both ankles. Hopefully it is just from the inflammation.
On top of all this, my first day of staff meetings and professional development for teachers began today and we are getting ready to welcome students for
open House on Wednesday evening. Classes start on September 4. I LOVE this time of year but it is extremely busy for me. Please be patient with me if I don't keep up with my posts these next few weeks! My Type A personality really is good for giving me guilt pains when I can't keep up with everything! Please remember, I love you ALL and I keep you all in my prayers!
Diagnosis: Lupus and RA
Medications: Plaquenil (400 mg), Relafen, Methotrexate Injections, Folic Acid, Aldactizide for High Blood Pressure, Lipitor for High Cholesterol, Actonel for Osteopenia, and Allegra & Patonel Eye Drops for Allergies.