Do you have this pain?

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Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 8/26/2007 5:46 AM (GMT -7)   
I have pain in my legs. I find when I walk around during the day I make it much worse. Sitting makes it worse unless I am able to put my feet up. I do not have arthritis per sey. I have tendonitis,sinuvitis, and bursitis but I do not have RA. I walk for exercise and it helps the knees but bugs my hips . I cant seem to figure out why standing for more then 30 mins triggers pain? I went to synagogue services the last 2 days and the motion of standing from sitting causes white knuckled reactions from me. I feel 102! I do not think I am ever going to feel young. Hell I am going to be 40 and by the time I feel young I am going to be too old to enjoy it. I want to be fixed!

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 8/26/2007 6:46 AM (GMT -7)   
Hi!  Unless your doctor says its not a good idea to exercise with everthing going on, keep on walking on a daily basis if you can.  I find that when I'm feeling my worst (swollen, stiff, achey joints) walking, biking and even running seem to help me the most.  Granted I have been running for years, so I'm not sure that you'll want to pick this up.  I think it not only makes the joints more flexible, but in a mind over matter sort of way you don't pay as much attention to the pain.  If you are having pain after exercise, be sure to ice or heat the area.  A bath can help or if you have access to a hot tub thats the best.  Also, have you tried any analgesics?  My chiroprator recommend Bio-Freeze-it help with pain and cool the area.  I really like it.  Keep in mind that if you are in pain after doing exercise, cutting that time in half and trying to do it 2 smaller sessions a day might work.  You'll have to test yourself.  Hope this helps.  I'll be thinking about you. 

Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 8/26/2007 10:23 AM (GMT -7)   
I walk 4 miles a day in the evenings. The problems I am having are just plain pain. It starts when I am up and on my feet and plagues me through the day. The legs feel better when they are up and I am not on them. I agree exercise has helped my morning stiffness tremendously! but it aggravates the crap out of my bursitis too so its a double edged sword. There is NO way this side of hell I could ever run. You would be picking me up in a coffin on the side of the road. I have pain from walking that makes me cry somedays but I do it anyway. The weight makes the pain worse and to prevent being overweight I have to walk. Its a rotten cycle of life.

firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 8/26/2007 10:36 AM (GMT -7)   
Hi Chaya.  Do you swim?  Thats a really low impact exercise, and it's also great for flexibility.  Also, I forgot to mention that biking is supposed to be great for the knees and less stressful on your hips.  I hope this helps.

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/26/2007 7:53 PM (GMT -7)   
Hi Chaya--
Sometimes I have that problem and I almost think it is a vascular problem, like my muscles in my legs are fully of blood and ache and are so stiff. My joints do too. I use those patches that have bengay type stuff on them, Salon-Pas, and they are very cheap, like a couple bucks for eighty. But I think that the up and down at religious services isn't as important as simply being there. Walking four miles is impressive. I swim, but would be hard put to walk a mile. I hope you feel better and find a way to deal with the pain. I know i used to take Aleve because it worked better and lasted longer, but some people can't take that. I also have a stationary bike but my knees and hips have been too bad to use it, but then you can do some, take a break, then do more and you don't have to rely on a certain time of day.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 8/27/2007 12:49 PM (GMT -7)   
Chaya - I have recently had severe pain in my legs, felt like bone pain. I get the RA pain, stiffness and cracking in the AM (and bad weather) but as long as I don't sit or stand to long it usually doesn't cause me a problem and forget it is there. The bone pain feeling only came on after about 20 minutes of walking. It was excruciating and eventually went away when I relaxed. I also get fatigued and my muscles hurt after any physical use. Funny I use to go to the gym and 20-30 minutes later felt on top of the world. Now if I go it feels like the world is literally on top of me. Total pain and exhaustion. Every time I try to go back into the gym, a week later I am in the E.R. again because of a flare. I don't get it. I love sports and going to the gym. Now I have to take a back seat to everything. It is a very sad thing for me. I am not much of a spectator in life. The doctors never said why I have it or what it was and always ignore me when I ask. I have been asking for years and would love a response.

I too sometimes think it is vascular and other times wonder if it isn't some part of RA. Perhaps a mixture of both. ????????????????????

Whatever it is, I do hope you feel better and that we all find out what this is. - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - kidney disease, enlarged heart, MVP/regurg, dementia; GERD; vision loss, narcolepsy, rheumatic arthritis, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 8/28/2007 11:27 PM (GMT -7)   
It's not a flare, is it? When I am flaring, my knees and joints get really stiff. Is it an ongoing thing?
Take care,
peachy
 
Diagnosed with lupus in May 2005
 
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
 
Supplements
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)

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