Pregnancy and Lupus

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Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 8/27/2007 7:30 PM (GMT -6)   
I was diagnosed with Lupus about 3 months ago, but have been going through the tests for over 3 years now.  Since we started looking at possibly having Lupus my Dr. has talked to my hubby and I about having children.  Today I switched to a different NSAID as the one I was on was no longer effective (I've only been on that 1 for about 2 months).  I will be returning to my doctor in about 3 weeks, but his nurse suggested we seriously consider whether or not we are wanting to have children of our own.  There are better meds I could be on, but at this point we really want kids.  I'm looking for some insight from anyone who has been pregnant while having Lupus.  I know that I can read books about this, but to me its not the same as having a real person inform me.  Thanks.

Regular Member

Date Joined Oct 2003
Total Posts : 262
   Posted 8/27/2007 8:05 PM (GMT -6)   
hi, well i have never been pregnant while having lupus, but my mom and i (i was diagnosed when i was 13) made decisions that would make it possible for me to have kids in the future. like you, i could have been on other medications but we chose the ones that wont hurt my fertility, and now 12 yrs and one kidney transplant later, my hubby and i are waiting for the doctor to give us the go ahead, and hopefully in about six months we will be able to start trying, but really only you can know what's good for you, especially if you and your hubby want biological kids. i'm not really sure that this is any help whatsoever but it's just my two cents. good luck with your meds.
Hugs and prayers,
diagnosed in May '95 with lupus nephritis, hypertension,hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 8/27/2007 9:24 PM (GMT -6)   
Hi Firebabe:

This is a hard one, it's gonna boil down to how you and your hubby feel about things. I've had lupus for 19 years now and I can say that, yes I was pregnant while having lupus. My pregnancy was pretty good, except for a few kidney issues. My delivery was difficult and I ended up with an emergency C-section. Again, I did pretty well with it. I however, had a major flare when my daughter turned about 2 yrs old.

It took me about 3 years to rebound from it. I'm sure the difficulties we had with our daughter is what sent me into a tail spin. My daughter is a high functioning autistic and she didn't begin to speak until she was 5 yrs old. There are several members on this board that have had autistic children and have lupus too. There's never been a formal research on the link between the two. My daughter is 14 yrs old and has a positive ANA of 1:640 she has to be watched for any signs of any auto immune diseases. Again, many of us have children with positive ANA's or auto immune like symptoms. There's no positive proof we pass this stuff on to our kids but you never know. There are days I worry that I've passed on this terrible disease to my child. That I may have caused her to be like she is. She's doing well in life, but I've needed to accept that she'll probably never marry and have kids.

Anyway, yes you can be pregnant and have lupus. You need to be treated at a high risk pregnancy and if you've got "sticky blood syndrome" it needs watching. I wish you the best in making your choice as whether to have a baby, adopt, or not have kids. I love my daughter with all my heart, and even though the stress of having her HAS made my lupus worse, I wouldn't trade her in for anything.

Hope this helps,
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Regular Member

Date Joined Sep 2005
Total Posts : 250
   Posted 8/29/2007 1:31 AM (GMT -6)   
My hubby and I decided it wasn't worth the risk to have kids. My sister died of breast cancer, which she developed while she was pregnant. I am also on medication to prevent blood clots and my kidneys were damaged during my lupus onset. All three of my docs said that, in my case, it would be a really good idea if I didn't. However, every case is different -- talk to your doctor. He or she will be honest with you about the situation.
Take care,
Diagnosed with lupus in May 2005
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)

Regular Member

Date Joined Aug 2007
Total Posts : 206
   Posted 8/29/2007 8:45 AM (GMT -6)   
I have talked with my doctor about this in the last several visits.  It may be interesting to know that until I had an ectopic pregnancy last October, my rhuemy and I were kind of stuck as far as going any further to diagnose me.  When I mentioned I had an ectopic a lightbulb went off in his head and he decided to do a different series of tests for me.  That's when we discovered I had some kidney involvement and did a biopsy-tagging me with Lupus.  I see him again in about 3 weeks.  He would like for us to have decided to have children right away or not at all.  We've been trying for months-almost since we lost the baby last year.  I've also read somewhere that if you are having a flare it may be almost impossible to become pregnant.  I have had a flare since March this year.  I'm so torn.

New Member

Date Joined Sep 2010
Total Posts : 1
   Posted 9/21/2010 7:40 PM (GMT -6)   
Hi there firbabe!
I myself have Lupus and was diagnose with it for atlease 11 years now. I was diagnose with Lupus at the age of 17 and now since I was diagnose with Lupus at a early age my Doc. said that 9 times out of 10 my body has a rare case of it now, which I can be a witness to that!! I am also 10 wk. pregnant and have had no complication til this day. THANK GOD!! however this is not my first pregnacy. I was prgnant of Sept. of last year and miscarriage due to high antibodies which was found in my blood during the pregnancy. I had just finish recovering from a flare up and somehow I conceived. This merry go round I must say that I am doing find and have had no complication. My Doc. told me that she was going to put me on perering, which is blood thiners and start me on baby aspirins later on through my pregnancy... You do need to wait atlease 6 months if you have just had a flare up, this is to make sure you is out of danger and the baby as well, so any miscarriage would not come abord! I think you are going to be fine. just eat and drink well and have plenty of FAITH that everything is going to be fine!!! WISH U N YOUR HUBBY WELL N MAKING THE BABY!!!! you can email me personaly if you have any other concerns.

<clip, we recommend no email addresses in text to avoid spammers - you can put it in your profile. thanks for the comments, but the conversation you joined is 2 yrs old, I beleive the babies & mothers are all fine.>

Post Edited By Moderator (Lynnwood) : 9/21/2010 11:05:11 PM (GMT-6)

New Member

Date Joined Mar 2011
Total Posts : 4
   Posted 3/18/2011 2:48 PM (GMT -6)   
Hi everyone!

I posted in another spot, but I thought I might post here as well. I am a senior in college at NYu doing a research project on lupus and pregnancy. I have been involved with the lupus community for three years now, and have taken a special interest in pregnancy and family planning.

I am conducting a small online survey, that should take less than five minutes of your time. I would really appreciate your taking a few minutes to fill it out.

The survey is open to any woman who has been diagnosed with lupus. The link to the survey is:

Thank you so much!

If you have any questions, please do not hesitate to contact me.
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