Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Has anyone checked your Vitamin B12 levels recently? Deficiency can cause peripheral neuropathy symptoms.
Also, I sometimes get burning feet when I eat potatoes. Maybe a food diary would help you figure out any patterns?
I hope this helps - take care,
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Co-Moderator: Lupus and CFS Forums
I found this... hope it helps
Connective tissue disorders and chronic inflammation can cause direct and indirect nerve damage. When the multiple layers of protective tissue surrounding nerves become inflamed, the inflammation can spread directly into nerve fibers. Chronic inflammation also leads to the progressive destruction of connective tissue, making nerve fibers more vulnerable to compression injuries and infections. Joints can become inflamed and swollen and entrap nerves, causing pain.
I get burning in one or both of my hips and shoulders and there is no pattern. I notice it if I am walking on the treadmill and for me it lets me know that I have an increase of disease activity coming. I just rest and go at it again. My feet don't burn, but in the morning I have pain on the bottom of both feet, have to walk around in my favorite bedroom shoes until my meds. kick in. I Take neurontin for neuralgia and also have neuropathy in my feet and hands.
I am new to this forum and posting things and don't know if my last post made it to you or not. We share the same Rheumatologist. He is the best and the most honorable man that I know. I have to believe in my heart that he will be up and running next year. I usually see him every 4 to 6 weeks. Every now and then I get an 8 week appointment. He has fought very hard through the years to keep me living and in the land of the living.
I saw on the forum discussion of excercise, massage, and meditation. I do Bodyflow, it is a combination of Tai Chi, Yoga and Pilate's with relaxation at the end. I love it and it is easy on the body.
I have really severe osteporosis and was prescribed Forteo injections in June. Medicare did not cover the shots. After much paperwork, I got sample injections and I had a reaction to the drug, I usually tolerate most anything. I asked my doctor for another try with Fosamax and very committed weight bearing excercise. I have so many meds. that the Fosamax was just hard to remember every single week. I have fractured five times. Though my diet is good and full of calcuim/D. I have been on steriods for almost 9 years averaging 20 mg each day and at times up to 40 mg. for almost a year everyday in 2000 to get my heart and disease under control. I am determined to build my bones back!
Hope your feet get better. Can you do Reflexology?
Nice to meet you all.
Hi Lynnwood, I don't know if this is what you mean but I have a chronic pain inside the joint in my toe right next to my big toe on my right foot. It's weird it feels like it's freezing hot if that makes any sense. It also feels like the outside of my toe(s) have a nylon stocking over them. The pain is there all the time. I do get the burning up my leg(s) which is from inflmation. It gets so bad the I almost swell out of my skin literally. I have had my skin split open and bleed from the swelling. Fortunately those things disapate within a couple of weeks.
I hope you get some releif