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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/30/2007 8:11 PM (GMT -7)   
Lately I've been doing things that are just not like me. I've been careless with my finances and my orgination skilled have really become nonexistant. I have always really thought things through before I did it and aired on the side of caution. Lately I feel like I have very little self control. My brain feels like it has completely turned into a trader against me. I am probably not even getting this out right but it's bad enough to look at myself in the mirror and not recognize me phsically but to not know who I am mentally is getting to be a bit to much.
 
thanks carol
 
 
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/30/2007 8:22 PM (GMT -7)   
Wow Carol . . . I was looking at your meds and I see that you take 800 mg of plaquenil. That sounds like a lot . . . I'm wondering if any of the others are on such a high dose. What I was checking for was an anti-depressant. Most people with chronic illness eventually need some type of anti-d. The pain and disease process tends to wipe out our naturally occurring "feel good" chemicals.

You should really talk to your Dr. about this issue . . . it might really mean something significant in your treatment plan.

I hope some of the others have some good ideas. I think its great that you started this topic because lots of us have at least an area or two where we struggle with self-control (food for one).

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Clickable Links:   Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/30/2007 8:45 PM (GMT -7)   

Hi Rosie, Thanks, I'm glad you understand what I was trying to say. It's so embarrassing to have weaknesses that wern't there before. I do take effexor for depression. They increased it a couple of months ago but I really don't think it's enough of the right thing. Yes your right about the plaq. at least I havn't seen anyone else taking 800ml. One doctor knocked it down to 400 just to have the other put me back on 800. I have a new rheumy to see oct. 4th so hopfully we can fix that problem. Otherwise I may have blindness to add to my problems. I don't really have a food issue but i can't seem to put the cokes down.

Thanks Sweetie I appreciate the input

love

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/30/2007 8:54 PM (GMT -7)   
Hey Carol . . . after reading the article about Anti-milarials helping to prevent type 2 diabetes . . . that may be why you are hitting the coke. The article talks about the plaquenil lowering your blood sugar. Between the sugar and the caffeine . . . you may be addicted to it. I swear . . . trying to lose weight on these meds is difficult.

Yes . . . you might need to try a different anti-d or a different dose or a combination. Takes some real trial and error. I hope you'll update us with a report on the new doc and how you are doing with this issue. Still watching to see what some of the others suggest.

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Clickable Links:   Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 8/31/2007 7:36 AM (GMT -7)   
Carol, it's funny that you brought this up because I was thinking some of the same things this morning. I used to be really good about paying our bills on time and keeping our checkbook balanced and now I just let those things slide because I don't want to do them and some of our bills end up getting paid late. I keep telling myself I'm going to stay caught up on those things better, but I don't do so well. Like Rosie said, food is another issue and also shopping is another one for me. If I have the energy to shop I love to buy things. I don't go way way overboard, and I use everything I buy, but I probably enjoy it a little too much. I think the food and the shopping are because those are two things I can still enjoy when lupus has taken away so many other things in my life.

When I first got sick, I remember not feeling like myself at all and it was so hard to explain. IT was like I would see myself in the mirror, but I felt like I was removed and it felt very weird. I felt like I had to try very hard to still be myself and to act like myself. I kept asking my husband and my mom if I seemed like myself. I also had a much shorter fuse than I had ever had and I snapped at my kids way more than I ever had before. Over time all of that has gotten better, althought there are still days I am kind of short tempered. I'm thinking that somewhere along the line some of the meds I've been on have helped me feel more like myself again.

It is a hard thing to explain, but I do hope you'll talk to your new rheumy about it when you see him. Hopefully it will be something as easy as a med adjustment. Hopefully it won't take too long to get it figured out and that there won't be a lot of trial and error.

Love and hugs


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/31/2007 8:12 AM (GMT -7)   
Hi Hippi, It's strange we seem to be in the same place at the same time alot. LOL. I know exactly what you mean about enjoying to much because Lupus has taken so much away from me. I told my brother this morning I am so greatful I have felt like getting out more on one hand but I seem to be getting out and (enjoying) to much. I'm like a kid in a candy store. He mentioned that my vicodin might be the culprit but I think maybe it's a combination of euphoria and steroids and the fact that I have a little energy and don't get out much. I feel the same way questioning myself. Where does the lupus start and I stop? How much of me is me and how much are the side effects of the drugs? I sure hope this new rheumy is on top of the game.
Thanks hun
love ya
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Candii
Regular Member


Date Joined Jan 2007
Total Posts : 135
   Posted 8/31/2007 2:57 PM (GMT -7)   

Hi okie,

Anti-d's can cause a loss or lack of inhibitions. The increase of Seratonin can cause a false feeling of 'I can do anything.' Also a compulsive feeling that makes you make decisions spontaneously. All these things can be looked up as side effects in a drug book. Don't sign any legal papers. LOL. And stay out of the mall or casino's. LOL. I'm glad you have more energy though. You just increased your Effexor and it takes 2-4 weeks to see a difference. Maybe you need to lower the dose again? Or try a different anti-d? I hope you feel better soon. Take care okie.

Kitty


Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SVT tachycardia/Arrythmia '06 (gone after ablation 07), SLE '07, Raynauds '07....Plaquenil,  NorQD, Naproxen, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 8/31/2007 5:22 PM (GMT -7)   
Hi Kitty, I've been on them for a couple of months at a higher dose. I will bring it up to the doctor. Oh and I did go to a casino . I could of slit my throat for that one LOL. All the things you mentioned sure do sound like me. I think I was safer when i was to sick to get out of the house LOL

hug
carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/1/2007 7:07 AM (GMT -7)   
Carol, I think sometimes when I start feeling better and have the energy to get out, it's almost like a natural high. When I go through a period of being too sick to do anything and then have energy again it's like 'Wooohooo, let's go' and just knowing I have a little energy again gives me that feeling of euphoria. I went shopping with a friend on Wednesday and had too much fun. I mostly bought stuff for my kids. One of the most fun things for me is to buy clothes for my daughter. She is only 5 but is way into fashion and she looks so darn cute in in the things I buy her. Everything I bought was on sale, but it still adds up. I bought myself a little manicure set to pamper myself.

I think this disease puts people on an emotional rollercoaster (or at least it does for me) and sometimes it makes me feel a little bipolar. When I'm really sick, I can get pretty down, but when I'm feeling better, I get very happy and excited. I also think, like some of the others have said, that our meds probably play a role in this too.

Carol, it's a good thing we don't live near each other or we'd be out at Walmart running people over in our motorized carts trying to buy everything in site :)
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 9/1/2007 2:20 PM (GMT -7)   
Hi, Carol. I think Hippi explained perfectly the way I experience what you're going through. I get out so little now days, that when I do if I see something (it still has to be somewhat reasonable$), I almost feel like I owe it to myself. I find that when I do get even small things, they make me feel somewhat better. I don't have a professional definition for it, I just know that it happens to me too. If you do go over it with your doc, please share his/her answer. I just feel like I'm not doing too bad as long as everything is pretty well "in control" and my health is pretty stable. You're certainly not alone in this one!
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

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