New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/30/2007 8:48 PM (GMT -7)   
I noticed in another topic that someone has burning hips as a part of lupus.

I have had burning in the hip for years . . . I actually thought it was not related to my lupus/uctd . . . but now I wonder. My hip pain wakes me out of a sound sleep and often will prevent me from sleeping. When it gets going, there is just no way to get comfortable and I get busy making a "nest" in my bed to support everything and to try to get some relief. It really is worst at night but will be worsened or triggered with too much time on my feet.

I hope you'll pop in and post if you also have this issue.

Thanks!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Clickable Links:   Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 8/31/2007 4:03 AM (GMT -7)   
My left hip hurts all of the time and when I am having a flare it burns. I wake up several times during the night because of it hurting. I can't sleep on either side because I can't lie on it or if I sleep on the other hip, it somehow stretches out and gets painful. I snore on my back and this wakes me up - so my sleep is very unrestful - even with taking ambien every night.
Gloryroad


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/31/2007 4:46 AM (GMT -7)   
Thanks Glory . . . so sorry you have miserable nights too. You described it very well . . . I am forced to build a little ramp for my back to tilt me up a little, then take a small pillow and fold it under my neck, place a long pillow under my knees and another under lower legs as my heels and feet hurt if there is pressure on them. My arms need support or they fall asleep . . . so I call it my nest. I would really rather sleep on my side, but, as you described . . . the hip burning issue results.

Oh . . . sometimes I bring an icepack to bed . . . that helps too.

Hopefully some of the other members have some suggestions.

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Clickable Links:   Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 8/31/2007 5:46 AM (GMT -7)   
Hi Rosie,

When laying on your side, you can put pressure on the nerve which will cause it to do this. Its called meralgia paresthetica. This could be it or not. You may want to consider getting a nerve study done to rule out any nerve damage or maybe mention it to your rheumy or neuro. This DD comes with lots of gifts, doesn't it? *sigh
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin PRN, Miralax 17g, Supplements


http://www.healingwell.com/donate


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 8/31/2007 7:20 AM (GMT -7)   
Hi Des . . . funny thing is that the spine doc dx it as ruptured disc in my back and treated the hip pain as pinched nerve. The spine doc did do the EMG (nerve tests) and confirmed his dx. I had many spine injections and some up the side of my leg with little relief. Did lots of physical therapy with spine doc too. Rheumy followed suit and gave me back exercises. I have never been convinced that it has anything to do with my back. . . It actually started with me training for backpacking and walking 3-5 miles e/o/d with a light pack on. But in almost three years it has never gone away. I'm going to look up the MP you were talking about and see if it fits. I have a follow-up appt with the not-so-helpful pcp on Tuesday and I plan to discuss re-evaluation of what, exactly, is causing the pain so it can be treated properly *enough is enough* . . . (she says, while she still has nerve and is not intimidated by the hurried doctor)

Thanks!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Clickable Links:   Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator

Post Edited (AlwaysRosie) : 8/31/2007 8:28:02 AM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 6:49 AM (GMT -7)
There are a total of 2,732,021 posts in 300,982 threads.
View Active Threads


Who's Online
This forum has 151148 registered members. Please welcome our newest member, Bui.
257 Guest(s), 5 Registered Member(s) are currently online.  Details
81GyGuy, 0311, Ruey, Traveler, maioeiage


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer