Just had a kidney biopsy on Wednesday.

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Veteran Member

Date Joined Jul 2007
Total Posts : 2142
   Posted 8/31/2007 2:05 PM (GMT -6)   
Don't know what the dx is until next Wed 9/5.  I've looked on-line and this looks like it is a possibility of why I am having kidney problems.
It is going to be the longest weekend of my life.
My questions are, what other symptoms did you have?
Mine are proteinuria with hematuria.  I have regular blood pressure and not a diabetic.  I have been on Diovan for about 2 weeks.  Seeing a Nephrologist at this time.
I also have ulcerative colitis, it's pretty mild so I am lucky in that regard.
Thanks for your input!
Beth, 31
UC Diagnosed March 2000
Lialda 1.2mg 1xday 8/24/07 (prev. Asacol 4800mg day)
Calcium and Vitamin D 600 mg 2xday
Simvastatin 20 mg 1xday
Diovan 80mg 1xday (dx: hematuria w/proteinuria): I have normal blood pressure, this is for my kidney - waiting for a dx.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 8/31/2007 4:28 PM (GMT -6)   

Hi Beth, I really can't help you out as far as kidney problems. I do have a cyst that gives me trouble from time to time but that is about it. I just wanted to reply to you about the long weekend. I know after you see all this stuff on CSI miami and Law and order you get to thinking boy they got the results in an hour It sure would be nice if it worked that way wouldn't it? Just try to be good to yourself this weekend. if you are to ill to get out try to rent a couple of movies with some comedy or somthing light hearted. I hope they get to the bottom of this and Hey if they figure it out that will be a good thing. Then they'll know how to treat ya. I'm going out of town the day you get your results but I will try to check in from someones computer and see how you are doing.

I'll have you in my thoughts and prayers



God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
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Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 8/31/2007 6:05 PM (GMT -6)   
Hi Beth . . . just wanted to send you hugs and well wishes . . . I don't have kidney disease so its not my area . . . some of the others will see your post and I'm sure they'll give you some info . . . there is also a link in my signature to the Lupus Foundation website. I really feel for you having to wait for your results. I hope its something the docs can treat and cure.

Hugs and blessings!
In His Grip,
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Psalms 139
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New Member

Date Joined Aug 2007
Total Posts : 2
   Posted 8/31/2007 6:18 PM (GMT -6)   
Hi beth,
I am new to here but I have kidnry involvement and have had it for 10 yrs now.Like you I also have protienuria and hematuria. I had a kidney bx, in 2004 which shoed thin wall basement dx. this is where the walls of the kidneys are not stong enough to keep the protein where we need it to be. They told me to lower or cut the protein from my diet. Wow from someone who loves lots of things with protein I could not do it I tried. I do pay attention to how much protein I intake but cannot cut it out. as for the hematuria they just watch my kidney levels.
Hugs to you Hope you feel ebtter soon.

Veteran Member

Date Joined Apr 2006
Total Posts : 1296
   Posted 8/31/2007 9:55 PM (GMT -6)   
Had the same and have been treated with lisinopril for the past 2 years....everything is fine.  Damage was early stage 2 and it has probably healed since then.  Doctors are not concerned now but feel I should take lisinopril indefinitely.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone (6mg & tapering), 75mg imuran, lisinopril 40mg, maxide 37.5/25mg, norvasc 5 mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 9/1/2007 8:58 AM (GMT -6)   
Beth, I only had some mild kidney involvement at one time and it resolved with medication and I never had to have a biopsy. My only symptoms were severe fatigue with it and proteinurea, with some white blood cells present at times. I can't imagine how hard the waiting must be. You'll be in my thoughts over the weekend. Please let us know what you find out on Wednesday.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Veteran Member

Date Joined Jan 2005
Total Posts : 659
   Posted 9/2/2007 8:41 PM (GMT -6)   

Hi Beth,

My kidney problems started with terrible fluid retention, which was due to heavy protein loss. I also had some hematuria. The results of my biopsy were membranous nephropathy and questionable lupus nephritis. At the time I really didn't have any other symptoms of lupus so it was decided I didn't have lupus, even though my neph was pretty sure I did. He just couldn't prove it. Two years later, due to my growing number of problems I was sent to a rheumy and almost immediately was given my lupus dx. I do have a lot of permanent kidney damage but overall am doing well. Good luck and keep us updated.


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus 2005
DX: Anorexia and Hypokalemia 2006
meds: plaquenil, lasix, klor-con

Veteran Member

Date Joined Jan 2005
Total Posts : 659
   Posted 9/2/2007 8:47 PM (GMT -6)   

I forgot to add I also have normal blood pressure. That is a very good thing, because most people with kidney problems have high blood pressure. I am not diabetic either. The fact you have regular blood pressure is an encouraging sign as your kidneys control your blood pressure. Keep good thoughts in mind, it isn't always as bad as it seems.


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus 2005
DX: Anorexia and Hypokalemia 2006
meds: plaquenil, lasix, klor-con

Veteran Member

Date Joined Jan 2005
Total Posts : 659
   Posted 9/6/2007 12:30 PM (GMT -6)   

Hi Beth,

How did things go with your kidney biopsy? Hope all is well and thinking of you.


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus 2005
DX: Anorexia and Hypokalemia 2006
meds: plaquenil, lasix, klor-con

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 9/6/2007 2:37 PM (GMT -6)   

Hi Beth,

   I hope you have your results by now. When you get a chance let us know what you found out. Take care and you will be in my thoughts and prayers.


 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
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JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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