If you have never been to a walk, I encourage you to go! Walk whatever you can or just take it all in! We just had a walk in Atlanta and it was a beautiful day and event. Patients walking, their families/friends, volunteers, participants, vendors that gave, etc. I walked, but it was only a mile and I pushed to do it on that particular day. I had overdone the prior weeks. I had some supporters that did not attend but it meant the world just the same. My parents checked in walkers and served popcorn. I was overwhelmed with joy. I am glad to hear that your husband wants to go as well! Hope you have a great day.
Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
Co-Moderator: Lupus and CFS Forums
Alwaysrosie, I live 40 minutes from Cleveland. If you decide to walk let me know. I would love to meet you. I think what is so hard for me is that I have not had the guts to go to a support group yet and meet others with Lupus. I really need to. To meet other people with lupus in person will be very emotional for me. My husband and I are going to walk together. I hope your son does great with his marathon. My husband and I wish him lots of luck. It's wonderful he's running. You are very blessed to have a supportive son.
Bill have a great time in you walk. That is great on how much you have been able to raise.
Gagirl, thankyou for the reminder about the camera. And all of your advice is great. I'm so glad that your seeing good results from Fosamax and you can exercise again. YEA!!! I was nervous about the walk and didn't think about just enjoying the day. I used to be thin and such a work out type of person. I guess my old attitude is still here. It's like ok 3 miles how fast can I get it done. I don't have to do that. I can just walk at my own pace and enjoy the day.
hippimom, I know exactly what you mean about running marathons. I used to be so active and I loved to walk miles and miles. Now I get tired going from the car to the house. I have been taking short walks getting ready for the walk. I really want to participate. Sorry to hear that your son has arthritis. Mine has mild CP and autism. And we are trying to decide if he will walk or pull him in a wagon. His legs get tired. Now I feel really enthusiastic too. I think this walk will be really good for me and my family. It feels so emotional.
THANK YOU EVERYONE FOR THE SUPPORT!
Gagirl, I am at the end of my first year with Lupus. It's been very hard. The plaquenil helps. And finally I was able to try prednisone and it worked wonderfully. I am not on a maintance dose yet. My doctor puts me on the pred packs and so far they work but only for a very short time. I dont have organ involvement at this time. Although they are not sure if the Lupus caused my severe tachycardia and arrythmias. Some doctors say yes and some say no. I had a heart ablation and now the tach and arrythmia is gone. I just never know what each morning will bring. One day I'm semi ok and the next morning wake up and my world is inside out. Which I am sure happens to you too. I can't wait for the walk. I think my husband and I need it. And we are going to go to a support group too. I'm ready. This lupus thing has been an emotional roller coaster. Thank you for your advice.
Post Edited (Gagirl1) : 9/3/2007 5:28:20 PM (GMT-6)
I am participating in a Lupus Walk this Sunday, Sept 9th sponsored by the Lupus Alliance of Upstate New York. We have a wonderful team walking made up of my husband and I, my mom and stepdad, my in-laws, my DH's grandmother and grandfather, DH's two little cousins, my sister and brother in-law and some really great friends of ours. Thus far, between online and offline donations we have raised almost 1600.00 and I have a feeling we will be able to make our goal of 2500.00 by the day of the walk. We are all really looking forward to this event. After the walk DH and I are hosting a big party at our house for our team to show our appreciation. It should be a great day!
Here is our page (my pug is the team mascot!) www.firstgiving.com/ElmwoodVillage
We have had so much fun trying to get donations and being excited about the walk. I really encourage everybody to give it a try if they can. It doesnt matter how fast you walk or if you cant even walk the entire way. I really believe it is all about the spirit of the event and the cause at hand!