drusen in my retina

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dbab
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Date Joined Jan 2004
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   Posted 9/4/2007 9:05 PM (GMT -7)   
Well I had my regular ophthalmology appointment today and the doc said he sees drusen in my eye. He said that its a pre-sign to macular degeneration which can lead to partial blindness. Because of my age (I'll be 32 this month) it is very rare. Thing is he didn't see it back in January when I went for my baseline appt before starting Plaq. Because of this, he is thinking that its the Plaq toxicity. He wants me to come back next week to see the top ophtho to look at it.

This is upsetting because this means that I will probably have to stop the Plaq. sad It has done so much for me in giving me some of my life back. I don't know what will be next as far as treatment goes. I know how important Plaquenil is so I'm just really upset about this whole thing but I know that its important to protect my eyes. Anyone else have this or had to go off of Plaq because of toxicity? I just don't know what is going to happen. I'm so so bummed about this.
"Des"
Co-Moderator ~ IBS Forum
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Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


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phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 9/5/2007 3:40 AM (GMT -7)   
Des, I am sorry to here that the plaquenil maybe causing you same trouble with your eyes. If the plaquenil is the issue maybe you can try half of what you need. The one thing good is that your eyes will clear up if it is the plaguenil, the down side is you will have to find something else.

Best to you...
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES, REQUIP RESTLESS LEG SYNDROME, LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 9/5/2007 7:14 AM (GMT -7)   
My brother was dx w/macular degeneration when he was in his early 30's. It's now 16 yrs later, and no signs of blindness. So it can come early and still not due much immediate damage to eyesight. Of course he was not taking plaquenil.

Macular degeneration would be an abnormal response to plaquenil. Usually, in the rare chance it affects eyesight, it has to do with minimizing the visual field (ie narrows where you can see) -- and sometimes affects night vision. They need to give you a visual field test, if they haven't already. They put your eyes, one at a time, up to a round chamber and have you 'click' every time you see a light flash, while staring directly straight ahead the whole time.

I hope what the dr spotted was just a contaminated or unusual reading, and that it will clear up before the next appt.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
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AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/5/2007 7:33 AM (GMT -7)   
Hi Des . . .

Hugs for you sis. That news must be so unsettling for you. GAD! if not for the plaquenel and the optho appt, you might not have caught it early. Like Lynwood, I have not heard of this as a side affect to the plaq . . . but it might be the kind of thing that they wouldn't want you taking the plaq along with a problem like that. Like Frank said . . . if the plaq is causing it, it will usually go back to normal after you stop taking the plaq.

I'm sorry you have to wait to see the other doc. I hope he has some better insight into this.

We sure do ride our own personal roller coasters . . . don't we?

Keep us posted!!

Hugs and blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
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dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 9/5/2007 8:55 AM (GMT -7)   
Thanks Frank, Lynn, and Rosie

Yes, I know it sounds weird but I am hoping its from the Plaq because that would mean that it would possibly stop the progression by stopping the Plaq if there is macular degeneration versus if it wasn't caused by any other reasons. I'm anxious to find out because now I'm really worried about my eyes... the internet is an evil thing let me tell you. Lynn, thanks for letting me know about your brother. That does ease my fears a great deal. I did do the visual field test with the blinking red lights and that came out okay which is good. Really makes you appreciate your sight when you are faced with scares like this.


"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


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AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/5/2007 9:38 AM (GMT -7)   
Hey Des . . . information is power . . . its always scary doing the initial search and then, it seems, the more you can narrow it down, the more help the information becomes. Hang in there!!!

Blessings!
In His Grip,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's
Clickable Links:   Healing Well:  Lupus Resources
Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org
Criterea for Diagnosing Lupus:  Lupus Criterea 
Find a Lupus Foundation Chapter near you: Lupus Chapter Locator


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 9/6/2007 11:55 AM (GMT -7)   
Hi, Des. I had an eye problem stemming from my taking the Chloroquine. That med had to be stopped. But, *Good News*, since stopping the med; the problem has not reoccurred. What was happening to me was not considered to be typical either. (Tell me this...Why do they think they can describe things as TYPICAL for a disease SO TOTALLY ATYPICAL???) I only have eye sight in my right eye already due to third nerve damage from my head injury that effected the vision in my left eye. I may have already went over the exact details of what happened in an earlier post (can't exactly remember?), but parts of my field of view were completely blacked out (And this happened while I was driving!). My Optho. was left scratching his head. I'm sorry if you do have to stop the Plaquenil since you were getting benefits from it. I know the pain of having to try other meds to find something to replace it. Maybe it will work out quickly for you though, IF it ends up being necessary. The main concern is protecting your eye sight! Keep us posted.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/6/2007 5:43 PM (GMT -7)   
Hi Des,
Sorry to hear about your eyes and I hope it is something that can be fixed by discontinuing medication. You might want to check your other meds too, some meds, like anticonvulsants and neuropathy stuff can have effects on your eyes and it would be good to make sure its the right one, maybe it is something else that won't be such a big deal to change. Well, just hopeful anyway. I know lots of those meds effected my vision and I had to discontinue them. I hope the good optho figures it out and everything turns out to be reversible. Will be thinking of you and praying for you.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 9/7/2007 2:24 AM (GMT -7)   
If it is any consolation, I was on Hydroxychloroquine for a while and it started affecting my eyes. I stopped taking it and my eyes got better. Then I found a homeopathic remedy that works for my joint pain even better than the Hydroxychloroquine ever did. The homeopathy is nice because it doesn't have side-effects and I only need it once in a while, not all the time. The name of the remedy is Causticum. You can look it up on http://www.abchomeopathy.com/ I have no financial or other interest in this company other than being a satisfied customer. BTW, I get my Causticum from a local health food store.
-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant Allergies, Asthma, gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?)
Meds:  Pulmicort, Claritin, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.

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