Thankyou alwaysrosie, babs and audreyann!! Thanks for the encouragement. I am hoping that my new med helps soon. The deep ache is a tiny better but nothing else yet. I just have to keep the faith that the new med will work soon. The new anti inflammatory is Nabumetone. The pharmacist said its pretty strong and better than Naproxen. Has anyone else taken it?? Sorry about the rant.... I was REALLY tired and just plain sick of it. Then I feel guilty because a lot of you are far worse than I am and here I am complaining.
Tx: plaquenil, Imuran, Enbrel, Celebrex, Tramadol, Norco, Singulair, Skelaxin, Evoxac, Clonazepam, Zonisamide, Baby Asprin, Relpax, Copper IUD
Post Edited (redrose77) : 9/8/2007 12:08:46 AM (GMT-6)
I am so glad that I am not the only one feeling this way!! My Rheumy said that he doesn't think my symptoms are from my Lupus. WHAT!!!! My head felt like it was going to explode. I was soooo confused. I asked him if it's not my Lupus then WHAT IS IT????? He said he would run my lupus labs to see if they are abnormal. And I told him that a few weeks ago when these symptoms were really bad my GP put me on the prednsione pack and it took away ALL my horrible symptoms. He just shook his head and said that prednisone right now wasn't appropriate. And he put me on the new anti inflammatory. He isn't explaining things well. Maybe he just doesn't want to see another one of his poor patients have to take prednisone or something else awful. I don't know. He is a very kind man and I know that he is concerned. It's just frustrating!! My labs from a few weeks ago didn't show any liver or kidney problems so that is when he said I don't think it's your lupus. Maybe you have the flu? FOR A YEAR OFF AND ON????????? I don't think so! He agreed. Whew! So lab work done again and the new med. He did tell also that I have a lot of arthritis in my neck and back. I am now wondering if the arthritis is giving me all the symptoms if the labs come out ok. I read on the internet that Arthritis can give you fatigue, mild fever, joint pain, swelling, high white count, and a flu like feeling when it is flaring. Now why didn't the rheumy tell me that???? I wish he would teach more. Or at least tell me what else this could be. Here I am going to the oncologist for my leukocytosis and it could just be my arthritis causing it. I'm going to ask him. Because he has no idea what is causing my high white count. He keeps searching for Leukemia. The lupus and arthritis blend together when it comes to symptoms from what I read. It's hard to distinguish between the two without the labs I guess. All of this is confusing. The Namebutone starting to work on my pain. YEA!!! But I still have a low grade fever and flu feeling in the late afternoon. I'm hoping it all goes away soon. It sucks that I know for sure if I took Prednisone I would feel better. And for now I can't take it. Which is good because of the side effects. But still its like a little carrot out there that you can't reach. Unfortunately it's laces with side effects.
Thankyou everyone for all your support!! You are all awsome!!! I've made a list of all the meds that everyone has listed and l'm going to look them up and see if any of them would help me. THANKYOU.
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