I'm wondering?

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ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 9/9/2007 6:49 AM (GMT -7)   
Yesterday I went with b/f to cornhole tournement. It wasn't to bad out. We weren't in direct sun all day which was great. Anyways here's what I want to  know.
 
Him and I walked and put out signs and then we chalked the numbers of boards while doing that my face turned beet red. It started at first around nose and cheeks and went to rest of face. At first Mitch thought that I was rubbing my face and then when he saw that I wasn't he got worried. He wouldn't let me help out the rest of the day.
 
From doing little things like walking does that make face red? My skin hurt like a small burn across both my arms but no rashes. tongue I have sore on tip of tonge but I figure maybe I didn't drink enough waterfor the last two days since this started on FRiday. I do feel a little sick today and very tired.
 
Veronica
 
 

sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 9/9/2007 8:18 AM (GMT -7)   
Hi, Veronica. Last year, I spent a lot of time out in my flower bed as well as my neighbors. My neighbor told me the same thing about my face that your BF told you. I would actually feel like I was losing my balance and was about to pass out. After telling my docs what I was experiencing, they did some basic blood work. It turned out that my potassium was dangerously low. You don't have any of your meds listed in your signature, but I take prednisone. I was on 60mg prednisone daily then for my lung involvement, and that med. is known for depleting you of potassium among other things. They had not told me that previously, so I had to start taking it in liquid form to get back in balance. Now that my prednisone is lower and I know about it, I eat differently and can keep the potassium at a very good level. Don't know if that will help, but that's my experience with it. Take care. Maybe others can give different ideas.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/9/2007 8:30 AM (GMT -7)   
Veronica, I have found that even when I haven't been in direct sun, I can still get a reaction from it. I don't know if it was cloudy when you were out, but even on cloudy days the UV rays get through. Also I found that on sunny days over the summer I thought I would be okay of I sat under a big umbrella at the pool while the kids went swimming, but I came home with a rash on my face and arms and figured that some of the UV rays must have gotten through the umbrella. From then on I took my own umbrella and sat under two umbrellas and also used a cover up.

If you can take pictures of your rashes when they are at their worst, it will help the doctor to be able to see them. I hope the reaction you had doesn't last too long pr throw you into a flare. Try to get some rest and take good care of yourslef.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 9/9/2007 6:24 PM (GMT -7)   
The reason why I don't have any meds. written down the dr. that I went to awhile back after she did the test had her nurse call me and tell me all test came back norm except for my iron was low. I do take Iron tabs.

I have flexeral for aches that I had gotten from Emergancy room for pain in my left arm awhile back.

I eat a lot of bananas and different fruits to help with Potassium.

I have not been dx as having Lupus or anything else but from what I have read and people that I have talked to says it is just a matter of time before I get that dx.

The dr. did tell me to take (iberprophine) for swelling. It's been a couple of months since I have seen her.

Also she told me that she wasn't worried about the rashes just the blood work.

Veronica

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 9/9/2007 7:09 PM (GMT -7)   
Veronica,
I don't know if i'm misunderstanding your doc or not. Is she suggesting that the symptoms of Lupus don't bear any significance in making a lupus diagnosis? If that is in fact what she is suggesting; I take exception. I have lupus with kidney, heart, brain, skin and joint involvment and have never had a positive ana. If that is not what she means forgive my little rant. I hope you get to the bottom of your situation soon.
God Bless You,
Judy

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 9/9/2007 7:10 PM (GMT -7)   
I have gone though the samething for the past 3 years...This year has been better. I saw a dermatolgist this year and was classified with ROSACEA, so he put me on a face cream...and has worked for me.

My co-workers always asked me "Are you okay?" because my face would turn red and it looked like I was going to pass out, but for the most part I was alright.

It's just another question to ask the doctor...
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES, REQUIP RESTLESS LEG SYNDROME, LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 9/9/2007 7:41 PM (GMT -7)   
Judy yeah that's pretty much the way it was put to me. Because all test came back fine I'm fine.

Frank, that would be a good thing for me to talk to dr about but I only get red face when out in sun or in my bathroom with the ultra volet light. It starts out just on my nose and cheeks and then gets worst.
My neighbor a couple of weeks ago noticed that when I'm out in the sun I get a rash on my neck also.

Thank you all for replying.

Veronica

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 9/10/2007 2:30 AM (GMT -7)   
veronica,, that is how it is...look it up. The rosacea web site shows pictures.
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES, REQUIP RESTLESS LEG SYNDROME, LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 9/10/2007 3:57 AM (GMT -7)   
okay Thank you Frank.

VEronica

ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 9/10/2007 4:09 AM (GMT -7)   
I did look at pics Frank and yeah that's kind of what my cheeks look like and nose after being in sun and my small bathroom but not my chin nor forehead. but when I'm out in the sun my whole face turns red not just what they showed.

Veronica

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/10/2007 7:16 AM (GMT -7)   
Veronica,

It's frustrating when you get rashes and don't know what's causing them. For years my nose, cheeks, and chest have gotten beet red whenever I get hot, get busy and stressed, or of course, when I'm outside in the sun and heat. I've never found a solution, but it's rough to be around other people when my face is bright red and I'm sweating like a man. If it gets too hot outside I sometimes carry a cold wet washcloth and pat my face and neck with it.

Hope you feel better.
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


ladybug44r
Veteran Member


Date Joined Jul 2006
Total Posts : 831
   Posted 9/10/2007 7:36 AM (GMT -7)   
thank you Patty

Veronica

kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 9/11/2007 2:00 AM (GMT -7)   
I had the same issue with my potassium being really low. My rhummy didn't catch it -- my kidney doctor did. He runs that test on the urinalysis and caught it. He put me on a horse pill of potassium and I felt a ton better. (Potassium, in high doses isn't measured in mg or g.) The equivelant of an over the counter bottle is about a 4 day supply of my pill, if that puts it in perspective! I had the same thing where I was really tired. I figured it was my blood getting too thin so I simply waited for my weekly finger prick. That was normal. That's why it's so important to keep track of any changes, even small ones. With potassium supplements -- remember that you can't lay down for a half hour after taking them.
Take care,
peachy
 
Diagnosed with lupus in May 2005
 
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
 
Supplements
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)

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