medport--- heparin flushes and a few heart ?'s

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Regular Member

Date Joined Dec 2006
Total Posts : 185
   Posted 9/9/2007 11:21 PM (GMT -6)   
my lupus took a turn for the worse a few months ago and i almost died and i had to have a medport put in and my left thumb amputated(vasculitis anjd raynauds') in august of 07 sooo im supposed to have heparin flushes every 2 weeks the only problem is i cant find anyone to do them...can i go to the hospital to have this done with a prescription?? anyone know..
all of my labs are looking up and im down to 30 mg or prednisone and came down on imuran too... i was supposed to start cellcelpt soon but it looks like i can wait on that since my labs are returning normal again...
anyone also have mitral valve and tricuspid valve regurgitation?? any worries from this..
DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage II Lupus Nephritis. 9 tia's and one pontine stroke('06)Seizures('06)steroid induced diabetes and pancreatitis, Photosensitivity since childhood, vasculitis, gangrene left thumb had amputated aug of 07,had mediport put in aug '07
Meds: Lisinopril,Hydrochlorithiazide,Keppra, Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet,Lidocaine cream, Xopenex inhaler, Xopenex Nebulizer, prevacid

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 9/10/2007 4:05 AM (GMT -6)   
Hi Amy,

I sure don't know anything about your questions . . . but surely the doc who ordered the flushes would be able to tell you where to have them done. Is this something typically done by a family member or friend who gets trained how to do it? I think PeacefulHarpist had or was going to have a medport . . . maybe she'll see your post and be able to help.

So glad to hear that your labs are improving . . . woooo hooo!!! Love that kind of news!!

In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
Co-Moderator ~ Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Irratable Bowel, Inflammatory Arthritis
Clickable Links:   Healing Well:  Lupus Resources ~~ Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org  ~~  Criterea for Diagnosing Lupus (4 of 11):  Lupus Criterea  ~~   Lupus Foundation Chapter near you  Lupus Chapter Locator

Regular Member

Date Joined Oct 2006
Total Posts : 193
   Posted 9/10/2007 6:15 AM (GMT -6)   
Your doctor should be able to order a home health care nurse to be able to do this - or you should be able to have it done in a physicians office. I've been taking care of ports for years and we only flush them once a month. Are the medications that you are receiving being given through the port? If they are, then your doctor will flush the port after the infusions. If this is being done at least once a month, your port will be fine.

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 9/10/2007 9:07 AM (GMT -6)   

I'm so sorry you had to have your thumb amputated and that you had a medport put in. I hope you can figure out how to get help with it and agree that you should call your doctor and ask for help. How great that your labs are coming back normal! I hope that means the end of this flare.

Take care!

Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

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