Lymph Node Pain with No Swelling

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Gatsby54
New Member


Date Joined Sep 2007
Total Posts : 7
   Posted 9/10/2007 3:59 PM (GMT -6)   
Hi Everyone,
 
I have had SLE for 13 years.  I am currently having a problem with my left breast (pain, rash) and pain under my left armpit and in the collar bone and neck lymph node areas.  However, my GP and Ob-Gyn cannot feel any swelling in any lymph nodes despite my pain.
 
Has anyone ever heard of SLE preventing swelling of the lymph nodes despite having pain or a problem associated with the pain?
 
Any advice/comments would be sincerely appreciated!
Pam

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5409
   Posted 9/10/2007 7:44 PM (GMT -6)   
Has your rheumy done the blood tests & checked your inflammation markers to see if you are in a flare?

Are you taking any medications that might inhibit swelling but not inhibit pain (prednisone comes to mind)?

I doubt SLE would ever prevent swelling, but it does/can present as an inflammation, and inflammations can appear with and without swelling...best determined by the counts of the various types of white blood cells in your blood tests.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2512
   Posted 9/10/2007 8:32 PM (GMT -6)   
Gatsby,

I read your post in the breast cancer forum and can tell that you're scared out of your mind, as I would be too. A few months ago I had pain on the left side of my left breast which turned out to be shingles, to my relief, but prior to the diagnosis I had a mammogram already scheduled. The films were normal but the radiologist asked to have me wait so she could take a look at the "rash" on my breast. She took a look and told me it resembled the surface of an orange peel which could indicate IBC. Like you, I knew more than I ever wanted to know about IBC. She asked me to return in 10 days if it hadn't gone away so she could perform an ultrasound. I was so lucky because as the pain got worse I realized myself that it must be shingles and went in to my PCP and she concurred. I had felt a great deal of pain for several days prior to the diagnosis.

I mention this because if you have a good breast institute in your area you might call and talk to someone there and see if your insurance would pay for an ultrasound. Our breast institute has two sides - one for regular mammograms and one for high risk patients and in that area the doctor herself performs the ultrasound after she sees the films from the mammogram. It's very comforting to get that kind of attention. If I were in your place I would call around and see if there's someone at a state of the art facility that will talk to you and give you some guidance. I'm surprised your OBGYN hasn't given you either more information or more reassurance.

Whether or not it could be the result of your SLE is something I can't answer. Have you discussed it with your rheumy?

Good luck and please let us know what you find out. Don't hesitate to come here and post as often and as much as you want. That's what we're here for. There is a wonderful group of folks here who are supportive and understanding of each other and we're always here for anyone who needs to vent or get support. There is no need to hang out there alone when you can come here and make friends who will support you any way we can.

Hang in there and let us know how you are.

((((((Hugs))))))

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5409
   Posted 9/10/2007 8:35 PM (GMT -6)   
Hi Pam,

I'm sorry, in my earlier post I didn't notice that you are a new member! Glad you are here and hope we can help you find some answers soon.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1940
   Posted 9/10/2007 9:06 PM (GMT -6)   
Hi Pam--
I had terrible pain there and docs could feel no swelling, sometimes the nodes get so big and if you have some fat like me on top, its hard for them to feel them. Also, I got a gallium scan, which I would recommend you talk to your rheumie about and it shows cancer or inflammation in any part of your body, it is really good for lymph nodes because they tend to not show up on other stuff, also for any cancer. It does from the top of your head to your knees and can uncover alot of problems.
What I meant to tell you is that lymph nodes can calcify and you can see them on xrays as white spots, they tend to do this when they get burned out from chronic inflammation. They hurt alot when they calcify and they don't usually swell. I've had a lot of benign swelling and removal of lymph nodes and salivary glands and often the problems are benign chronic inflammation from our diseases and the lymph nodes calcify eventually--if they calcify it means no cancer.
Docs often drag out the dx and movement on lymph nodes since calcified lymph nodes require no tratment and stop hurting once they finish calcifying. Also, fibroids can hurt like that too and they are benign.
But I would definitely get the gallium scan, cat scan and/ or mammogram done asap so you don't worry. If you have been getting bad night sweats not from hormonal stuff but unusual for you occuring with this problem, you need to get them on the stick immediately. I'm sorry you are going through this and it is really painful, but the surgery is pretty easy, they don't keep you overnight usually and the scars are minimal if done by a ENT that is also a plastic surgeon and many are. Well, take care and let us know what happens. I hope you feel better soon and that some good radiologic studies show the problem and some really strong antibiotics clear it up for you.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/11/2007 2:09 AM (GMT -6)   
Hi Gatsby,

Welcome to the forum. I can't add to the advice already given, but I'm glad you found us.

Sorry you are having such scary trouble.

Blessings!
In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator ~ Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Irratable Bowel, Inflammatory Arthritis
Clickable Links:   Healing Well:  Lupus Resources ~~ Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org  ~~  Criterea for Diagnosing Lupus (4 of 11):  Lupus Criterea  ~~   Lupus Foundation Chapter near you  Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1940
   Posted 9/11/2007 9:03 AM (GMT -6)   
Oh for the armpit, you might avoid hard stick antiperspirants try a roll on or gell for a while. I used to get infections from the stick and I think that contributed to the calcification of those nodes. But you have millions of lymph nodes and calcification of them is normal part of aging, just happens earlier in people with diseases.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Gatsby54
New Member


Date Joined Sep 2007
Total Posts : 7
   Posted 9/12/2007 11:56 AM (GMT -6)   

Thank you all so much for your welcome and your posts.  I feel so much better (and so less alone) knowing you are all out there. 

Lynnwood - I haven't had a rheumy for 2 years since the one and only left our town.  I tried to get in with one in Tucson (75 miles away), but at the time, none of them were accepting new patients.  My GP has been trying to address my concerns, but didn't know how SLE might affect swelling in the nodes.  My husband just insisted yesterday that I get my GP to try again to get me into Tucson.  The GP thinks a couple rheumies are now accepting new patients, so hopefully I'll get back to a schedule of keeping track of my SLE status.  I used to be so good about my quarterly appointments and testing.        

Pat - My GP is working with the insurance company to get me into a high-risk breast specialist.  It just feels that time is dragging by during the wait.  The GP also did a skin punch biopsy at the place where the rash had been (you could still see a little pink area at the time).  Results should be in over the next few days.  He said a negative result wouldn't be definitive, but it would be worth doing it anyway.  Thanks for the hugs and the kind words - they mean a lot! 

Marji - Thanks for the info on the gallium scan - I'll look into it.  The info on calcification of the nodes was totally new to me, too.  I think when you have a chronic condition for so many years, sometimes one gets lax about keeping up on developments.  I have been having night sweats over the last few weeks, but I'm praying they're hormone-related.  I'm 53, have been perimenopausal for 4 years, and have had "odd" periods for the last year (some longer, some shorter, mostly lighter).  I had my first symptom of the breast problem 2 days before my period was due, but never got the period - just 8 days of very light spotting 2 weeks after the due date.  Again, praying it is hormone-related and not something more serious.

Thanks again to all of you for your warm welcome and input.  You're truly a blessing.

Pam       

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