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Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Don't know Amy, I seem to blow my diet and then it takes me a few weeks, but I usually don't gain 20 lbs. If you think it may be water, you might want to talk to the doc about it to see if there is something they can do. That weight can come off faster I would imagine.
Sharen, I know what you mean about wondering if its coming back--the flare. For me it seems incessant, though luckily milder than most people here probably get but recently was kind of bad. I usually get a UTI type problem that is not an infection, but chronic inflammation of the bladder and often will pick up a respiratory infection if someone has one, which is funny because I'm less surpressed than I was on the full blown pred, which I never seem to get sick at that stage of the pred. Just when coming off. Weird. Maybe I just notice it more because my immune system starts overreacting again and when I'm on pred I can be sick but maybe not have as severe symptoms. So far, its doing good coming down. I'm a little wired but not bad and achy and tired, just wrung out, but no crying spells. I've been really pretty upbeat on the whole thing so far, which is such a pleasant change from some of the other reactions I've had. Well, I hope you both are doing well and take care.