Prednisone is groovy...

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/10/2007 7:54 PM (GMT -7)   
Hi all--
I don't know if they gave me too much or what but I feel so good and calm, really calm, and relaxed and together and I can think and not depressed, I just feel, well, great from the pred.  and I wanted to share my happy happy groovy feeling because I know it will end soon so here's to feeling good, if only for a short time. 
 
And my liver is good, but my hepatologist is concerned about all the stuff I'm taking, but after I showed him all the tests, he couldn't think of one to drop.  And my levels have been normal and he does believe I have an autoimmune problem, which runs with everything else I have so I don't have a fight there.  And for a while, I feel good!  I hope you are feel good soon if you don't feel good now! 
 
I know what goes up must come down, but hopefully gently.  Medrol made me feel awful, but regular prednisone doesn't and I don't know why.  Different meds the rhuemy said.  All I can think is that I really need it now, which is why its making me calm and relaxed instead of high strung. 
 
Well heres some groovy smileys tongue tongue tongue tongue tongue
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 9/10/2007 8:55 PM (GMT -7)   
Hi, Marji. I just read your reply to me in the previous thread. As I already said, it really is nice to hear you saying that you're feeling good for a change. Last year when my lung had the pleural effusion, they started me on 60mg of prednisone and "Oh, What a Feeling!". I don't mean like a drug-induced high, but after you've felt SO near death for months IT IS A VERY WELCOME RELIEF!!! Just remember that this particular drug demands pay back. I just hope you don't get hit really hard when you start dropping and/or have to come off of it. I'll be thinking of you. Keep me up to date on how you're doing.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/11/2007 1:02 AM (GMT -7)   
Glad its helping Marji,

I hope it kicks your flare . . . or that you and the doc can find the lowest beneficial dose. It is great to feel better after feeling so *rappy for so long.

Blessings!
In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator ~ Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Irratable Bowel, Inflammatory Arthritis
Clickable Links:   Healing Well:  Lupus Resources ~~ Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org  ~~  Criterea for Diagnosing Lupus (4 of 11):  Lupus Criterea  ~~   Lupus Foundation Chapter near you  Lupus Chapter Locator


kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 9/11/2007 1:43 AM (GMT -7)   
Prednisone definitely helps you feel better. Just don't be tempted to snack and eat whatever you like .... it's tough to get the weight off!

Take care,
peachy
 
Diagnosed with lupus in May 2005
 
Daily Medications:
Prednisone, 5 mg
Imuran, 50mg 2x a day
Warfarin, 5 mg / day
Zoloft, 100 mg / day
Plaquanil, 200 mg 2x a day
Nexium, 20 mg / day
Tramadol, 50 mg 2x a day (as needed) and Tylenol
 
Supplements
1500mg calcium
2000 IU of Vitamin D
400mg magnesium
Centrum Silver (and I am 30!)


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 9/11/2007 5:30 AM (GMT -7)   
happy for u. Pred is a wonderful little devil (at least for me)

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/11/2007 6:09 AM (GMT -7)   
I remember when I first started taking prednisone I felt exactly like you described. It was like a miracle to feel better and was amazed how it helped with the fatigue, the pain, and also gave me more mental clarity. It still does a lot for me and I wouldn't be able to function without it, I just hate the side effects.

Enjoy what the prednisone is doing for you. I can't remember if you are going to be on it long term or if you are doing a tapered dose.

Take care and I hope you continue to feel this good.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/11/2007 2:35 PM (GMT -7)   
Hippi (and anyone-else on long term small doeses) . . . . do you have noticeable side effects even at a 5 mg dose???
In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator ~ Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Irratable Bowel, Inflammatory Arthritis
Clickable Links:   Healing Well:  Lupus Resources ~~ Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org  ~~  Criterea for Diagnosing Lupus (4 of 11):  Lupus Criterea  ~~   Lupus Foundation Chapter near you  Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 9/11/2007 3:02 PM (GMT -7)   
I've never taken more than 15 mg, which I consider small. At 10 mg, I definitely know it's working 'cause if I skip a couple days I turn into an exhausted bundle of rags. I haven't tried to go lower, but I still have the carb cravings -- it really does change your metabolism. Still have a little extra hair growth, too.

I think everyone's mileage may vary!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/12/2007 10:36 AM (GMT -7)   
Hi--
I notice more side effects coming down than I do on the full strength, so I think, at least for me, its the change in the amount that causes the problem. My body seems to adjust fast to whatever initial dose I've been given and I'm finally normal, then coming down I feel worn out like Lynnwood put it so so well, "an exhausted bundle of rags". I've gotten side effect from too much and also from medrol dose pack vs actual prednisone for some reason, I thought they were the same. Also, with shots I get more dramatic side effects and more wired when I first get the shot, often can't sleep.

There is a theory of medicine that says that drugs work differently at small doses, and antidepressants often do and maybe the same for hormones?
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 9/12/2007 7:59 PM (GMT -7)   
Hi, Marji. I hope the side effects you encounter as you come down aren't too bad...tolerable at least. I always wonder when I do have bad side effects start happening while I'm tapering, if it's just withdrawal from the prednisone or if I'm actually beginning to flare again. The usual negative effects I see are bad fatigue, fever, chills, nose ulcers, mouth ulcers, increased hair loss, heartburn? (it feels real painful like a heart attack), and my blood sugar spikes. I was told previously that when I begin to taper, as long as it doesn't completely knock me down hard with a flare that my body will slowly adjust to the taper if I can tolerate what is happening. It's so hard to tell the difference because prednisone withdrawal presents things just like a flare. At least the rheumy I'm working with now tests for inflammation BEFORE he starts a taper. That way, if something does go bad, he will be able to simply retest to see if there is actually increased inflammation or if maybe I am just withdrawing. I don't know if this method will work or not as I've been able to tolerate everything so far; but it certainly makes sense! Hope you're at least still having some relief from the all the crap you've been dealing with. Continue to update us. Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 9/12/2007 8:19 PM (GMT -7)   
anyone know how long it takes to lose the prednisone weight.. ive gained 20 pounds on it and i started off with 60 mgs and im not down to 20...and still going down\
DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage II Lupus Nephritis. 9 tia's and one pontine stroke('06)Seizures('06)steroid induced diabetes and pancreatitis, Photosensitivity since childhood, vasculitis, gangrene left thumb had amputated aug of 07,had mediport put in aug '07, discoid lupus sept 07
Meds: Lisinopril,Hydrochlorithiazide,Keppra, Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet,Lidocaine cream, Xopenex inhaler, Xopenex Nebulizer, prevacid
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/12/2007 9:03 PM (GMT -7)   

Don't know Amy, I seem to blow my diet and then it takes me a few weeks, but I usually don't gain 20 lbs.  If you think it may be water, you might want to talk to the doc about it to see if there is something they can do.  That weight can come off faster I would imagine.

Sharen, I know what you mean about wondering if its coming back--the flare.  For me it seems incessant, though luckily milder than most people here probably get but recently was kind of bad.  I usually get a UTI type problem that is not an infection, but chronic inflammation of the bladder and often will pick up a respiratory infection if someone has one, which is funny because I'm less surpressed than I was on the full blown pred, which I never seem to get sick at that stage of the pred.  Just when coming off.  Weird.  Maybe I just notice it more because my immune system starts overreacting again and when I'm on pred I can be sick but maybe not have as severe symptoms.  So far, its doing good coming down.  I'm a little wired but not bad and achy and tired, just wrung out, but no crying spells.  I've been really pretty upbeat on the whole thing so far, which is such a pleasant change from some of the other reactions I've had.  Well, I hope you both are doing well and take care.


Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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