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monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 9/11/2007 9:51 AM (GMT -7)   
This is probably a silly question, but it sure seems like our Lupus group feels pretty darn bad almost in unison. I know that none of us ever really feel normal, and we have good days and bad days, but it sure seems like we all get really sick as a group.

There is so much unknown about auto immune disease, makes one wonder what factors can be effecting it.

I often wonder if I am worse in the fall and spring because...1. In spring I start spending a whole lot more time outside, and 2. In fall I have just come from months of summer sun whether I try to avoid it or not.

Am praying for each and every one of us.

Love and Hugs,
Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/11/2007 10:22 AM (GMT -7)   
Darlene, it's a mystery to me. The hot weather bothers me more than anything and we're now having beautiful fall weather but I still feel achey all over and my joints are all on fire. I've just come back from vacation and I know that traveling is hard on me. When hippi got back from her vacation in Colorado she flared too. But I still haven't been able to figure out why so many of us are feeling worse than usual.

Thanks for your thoughts and prayers. I'm so grateful to have this group of friends to talk to!

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


melissa2k12
Regular Member


Date Joined Aug 2007
Total Posts : 39
   Posted 9/11/2007 10:36 AM (GMT -7)   
I noticed from most of posts on the board that you guys do have a hard time in the summer. I was actually telling my boyfriend about it, because for me the bad months are the cold ones. I always get joint pains and my previous flares were in the winter. I was considering moving further north, but one of the reasons against it was that I don't fare so well in cold weather. This flare right now is a summer one... if only there's a place where there's a happy lupus weather medium.

Take care!
Diagnosed SLE 2002, Raynaud's and Hives 2004, Lupus Nephritis 2007
cellcept, prednisone, plaquenil, zrytec, cozaar, nexium, furosemide, oscal + d


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 9/11/2007 11:23 AM (GMT -7)   
Maybe those of us who aren't feeling bad right now just feel uncomfortable saying that when everyone else is posting about feeling bad???

I actually feel pretty good, except for a 4-5 day bout w/depression after learning my oh-so-wonderful rheumy has to close his practice due to cancer in a heart muscle (he's waiting for a transplant).

Plus I think the weather changes in spring and fall have actual physical effects on people, plants, and animals and give us some energy spurts we wouldn't otherwise have....and we lupies do tend to over-do when the slightest amount of energy strikes!

Hope ya'll feel better soon,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 9/11/2007 1:29:02 PM (GMT-6)


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 9/11/2007 12:07 PM (GMT -7)   
Lynnwood, glad to hear you are feeling good. We need to know that too. I guess so many times I just come on here to rant and rave, but it is good to see others actually feeling well for a change (and me too when it is my turn). Yes, this time of year is tough for me with the flares, winter does seem to have it's problems too with the joints. No matter what there are ups and downs in life, whether I feel good or not. I guess with end of August the heat and humidity have an extra bang to it that causes some of our systems to go haywire or the change of season has an effect on us. Whatever the reason, I am glad we are all here through the good days and the bad. Take care everyone - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - Mitral valve sclerosis, MVP/regurg, dementia; GERD; vision loss, narcolepsy, RA, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 

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