maybe i am overexaggerating

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Daymay
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Date Joined Sep 2007
Total Posts : 36
   Posted 9/11/2007 1:49 PM (GMT -7)   
i don't know what to think anymore. I'm only 18, so I really can't complain.  It makes sense to me to think there is something wrong. I have a whole list of symptoms ranging from swollen legs and ankles (not all the time obviously) losing my breath when i walk upstairs, poor circulation, a swollen eye (it closes shut every once in a while, like 2 or 3 times a year and sometimes i get a fever with it...like a cold i suppose), and I have back problems and a whole bunch of little things that I don't want to drone on about.  My father and his sister have lupus as did their mother.  I've brought it up before and they gave me some sort of blood test when I was about 14 that came back negative and so they dropped it.  Everytime I say anything to the doctor, even if it doesn't contain the word "lupus" I feel like he doesn't believe me and thinks I am a hypochondriac.  Maybe I am.  But it would be nice to know for sure.
 
Plus my mood swings are terrible-- if not for the discomfort, please somebody help me fix these mood swings!! for the sake of my roommates.
 
Sorry for this rant :/  But I am thinking some of you may know what I am talking about?

hippimom2
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Date Joined Jul 2005
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   Posted 9/11/2007 2:11 PM (GMT -7)   
Hi Daymay and welcome. I really doubt you are exaggerating and your doctor really shouldn't be blowing you off, especially with the family history you have. Just because your tests came back negative when you were 14 doesn't mean they will be negative now. I'm wondering if your doctor would give you a referral to a rheumatologist so you could get the testing done that you need to have done. ALso it sounds like you might need a new primary care doc who won't brush you off and who will take your questions and concerns seriously.

Feel free to ask any questions you have. A lot of us have been through some of the same things you are going through with a doc who won't listen. Hang in there and don't give up.

Take care and I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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sharentrials
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Date Joined Jul 2007
Total Posts : 261
   Posted 9/11/2007 7:27 PM (GMT -7)   
Hi, Daymay and welcome! Feel free to come here and rant or ask any ?'s you may have. Lupus is a very confusing disease. You have found a very supportive, understanding group of people! I agree with Hippi that it sounds like it's time to give your PCP the boot! We've all have experienced the insulting ignorance of docs that don't listen to us or take us seriously. Hippi also gave you some good advice about being retested. Sometimes, it may take years for enough activity to show up in blood work. Our blood work can change as quickly as our symptoms do. I hope that you are able to find the help you need. It is your health! You are not imagining things. Don't give up! Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/11/2007 9:08 PM (GMT -7)   
Welcome Daymay,

Sorry you are feeling so poorly. Especially as young as you are.

Hippi is absolutely right. Get a referral to a rheumatologist and find a primary care doc who actually takes you seriously. Find a supportive family member (someone who takes your pain seriously) and bring them with you to the doc appointment. There are also some suggestions to new members in one of the posts in "Lupus Resources" . . . you can click the link at the end of my signature.

Glad you found us.

Blessings!
In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
Co-Moderator ~ Lupus Forum
UCTD (Undifferentiated Connective Tissue Disease), Hashimoto's, Inflamatory Bowel, Inflammatory Arthritis
Clickable Links:   Healing Well:  Lupus Resources ~~ Lupus Foundation of America (LFA) Facts and Overview: Lupus.Org  ~~  Criterea for Diagnosing Lupus (4 of 11):  Lupus Criterea  ~~   Lupus Foundation Chapter near you  Lupus Chapter Locator


Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 9/11/2007 10:22 PM (GMT -7)   
Thank you all so much! I'd like to get a referral but I don't really know how to go about doing that, especially since my PCP is 4 hours away from me. (I'm in college)  I don't want to worry my family either, especially since they've got their share of problems.  And my doctor is good with my father, who has lupus.  So I really  don't understand why he is that way with me.  I think I will call around to places over here and see if they will take me.  I want to do this the easiest and most worry-free way possible.  Thanks for the advice and concern!
 
-Dana

PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 9/12/2007 12:10 AM (GMT -7)   
Dana, I'm sorry you're having these problems at your age. It sounds as though you are having to battle your health issues alone, but not anymore. We're here for you whenever you need us. I'm glad you've joined our forum and want you to know that we're here for each other.

I agree that finding a rheumatologist in your college town is a good idea. Most of us changed rheumy's several times before we found one who diagnosed us. Autoimmune diseases are very hard to diagnose and most doctors are reluctant to give someone a diagnosis unless and until they are positive that they know what it is. But a good doctor will treat you and give you medications that can help even if you don't yet have a diagnosis.

As far as mood swings, I had them at your age and they were awful. That was another lifetime ago and I didn't know that there was anything that could help them. I suggest you also find a primary care doctor or a gynocologist who can help you with your mood swings. Are they related to your period? Mine were definitely pms and I hated them. I hope you'll find a doctor who can give you some relief.

Please let us know how you're doing.

((((hugs))))

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 9/12/2007 7:46 AM (GMT -7)   
Pat-- As far as I can tell they are related to my period. My gyno thinks I have PMDD so I'm starting the Yaz on Sunday. Hopefully those make a difference. I'm on antidepressants and a couple days before my period all the pills in the world won't help.

I'm going to call a couple places today and see if they accept my insurance and if they can get me in without a referral. If not then I will just lay low for a little while. As long as it doesn't get in the way of my ability to do work, I am ok. In highschool there were times where it would, but it was so much easier to get away with not doing something. College is a different story.

thanks all of you!

PattyLatty
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Date Joined Mar 2006
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   Posted 9/12/2007 8:11 AM (GMT -7)   
Daymay, I hope the yaz helps. I started taking compounded estrogen when I went through menopause and I haven't had a mood swing in the past several years. An added benefit is that the estrogen in yaz will do wonders for your complexion.

If you are diagnosed with an autoimmune disease, however, it's important that you tell your rheumy that you're taking it. In fact every doctor you see needs to know every medication you take.

Good luck and let us know if you succeed in getting an appointment.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


omega
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Date Joined Jan 2007
Total Posts : 607
   Posted 9/12/2007 1:12 PM (GMT -7)   
Hv u ever thought of talking to yr school nurse n see if there are anything they can help with? I mean the referral/insurance those kinds of stuff. I agree that u should search around n see if u can even change another PCP or find a Rhumy w/o referral.

sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 9/12/2007 8:17 PM (GMT -7)   
Hi, Dana. Considering that your Dad has lupus and you see the same PCP, that may be just the help you need. I know you said you didn't want to worry your family, but I would think your family would be very supportive and more than understanding with already having dealt with lupus. Your Dad might be the perfect person to accompany you to your PCP to get that handled. I just know as busy as you have to stay in college, you sure don't want to be dealing with lupus and all its' BS in the middle of a test or semester. It could really end up costing you, you know? Good luck with whichever way you do try to handle it. I just hope you can find a way to get relief so this doesn't interfere with your college work. Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 9/13/2007 9:46 PM (GMT -7)   
thanks guys (gals)
 
I made some phone calls and i can't see a rheumy w/out a referral, but my insurance won't let me see a doctor over here. I could switch plans but I don't want to cause even more stress on my family. (we already had to deal with college financial aid!!) I am afraid to say anything...my father may have lupus but he is not the most understanding person. Even if he believed that I do have it-- he would ignore or try to make excuses for it because it's already such an issue for our family. See, he is a perfectionist and the fact that he is debilitated in any way angers and frustrates him.  I worry that if I say something, he will think I am minimalizing his own pain, which I know is far greater than my own. His kidneys and heart are effected and sometimes he stays in bed all day-- which I know he HATES.  I'm sorry for droning but I'm just confused.  I want to know for my own sake but not at anyone else's expense, especially since we have to help my father out-- I don't need them worrying about me too.
 
I think I will continue on as normal and perhaps mention it again to my PCP at home whenever I go. But I would like for him to leave my family out of it. It's the first month of school and I'm already having a hard time getting to classes. I'm paying for it so I've got to do well!!
 

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/14/2007 6:05 AM (GMT -7)   
Hi Daymay,

So far you've named the following symptoms . . . could you list the others too? It might help some of the members here make suggestions.

18 yrs old
Father, Aunt and Grandmother have/had Lupus
swollen legs and ankles (not all the time)
losing my breath when i walk upstairs
poor circulation,
a swollen eye (it closes shut like 2 or 3x a year w/a fever sometimes)
back problems
terrible mood swings are terrible

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

 

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatroy Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 9/14/2007 8:59 AM (GMT -7)   
ok....let's see.....

1) I'm 18 yrs old

2) my Father, Aunt and Grandmother have/had Lupus

3) swollen legs and ankles (not all the time)

4) losing my breath when i walk upstairs

5) poor circulation,

6) a swollen eye (it closes shut like 2 or 3x a year w/a fever sometimes)

7) back problems

8) terrible mood swings are terrible

9) mouth sores. i have them right now.

10) being tired all the time. the past few days i stayed in bed while my roommates went out. And lightheadedness. That feeling when you stand up too fast-- that happens a lot.

11) i've had the butterfly rash twice in my life. i don't know if that really counts. for all i know, it may not have been the butterfly rash but just a rash on my cheeks.

12)stomach issues. i dont know what to call this. i feel nauseaus a lot, or my eating habits will be really odd. i'll be starving and then i take a bite of something and im not hungry anymore. i also have IBS. so that's part of it I think.

13) i don't remember if i said this: lower back pain. If I'm standing up for a long period of time I need to sit down. It needs to be stretched constantly, and even then it's like a permanent knot there.

14) My joints tighten up, especially in my knees. Being in the car for more than 10 minutes is all it takes.



i think that's about it. it could just be nothing. or be attributed to what my gyno thinks i have (PMDD)

(post edited to include symptoms from a previous post)

Post Edited By Moderator (AlwaysRosie) : 9/14/2007 12:31:49 PM (GMT-6)


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 9/14/2007 11:22 AM (GMT -7)   
Daymay,

I'm sorry that your family dismisses your problems. Unfortunately we hear that frequently on the forum and when I have some time I want to discuss it in a new post. You sound very mature for your age and I'm proud of you for handling things on your own even though life would be so much easier for you if you had a better support system at home. You have a lot on your plate right now and I understand how much pressure it is to start a new year of college and have the financial pressures as well.

I do urge you, however, when you have the time and can see a rheumatologist, to find someone who specializes in lupus and rheumatoid arthritis.

In the meantime you might consider keeping a log of your symptoms, whether or not you think they might be related to lupus so that when you do see a rheumy you'll have a history of your symptoms written down. Then make sure the rheumy knows your family history.

Research indicates that the sooner people with lupus or lupus-like symptoms are treated with medications, the greater the probability the disease can be slowed down. Once you have gotten more advice from the folks here, you might write down a list of questions for your primary care doctor. It seems to me that the more informed we are when we go to the doctor, the more open doctors are about talking to us.

Hang in there and keep coming back here! We're glad that you've joined us.

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 9/16/2007 9:11 AM (GMT -7)   
This is weird...my eye is swollen again.  It used to be when I was little it would swell up once a year or every two years.  This is about my 5th time this year that it has gotten like this.  And doctors don't know why.  I really don't think it has to do with an allergic reaction to something because of the times that I get it...and there isn't a consistent factor each time.  I don't know if that makes sense. 
 
Oh, and does anyone else swell up with bug bites. When I get bit I swell up like a balloon.

PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 9/16/2007 9:44 AM (GMT -7)   
Daymay,

My eyes swell up a few times a year and when they are at their worst, it looks as though a golf ball is wedged underneath my eyelids and my eyes are completely shut. Sometimes the swelling isn't as bad. This has gone on for 30 years. When my children were little they'd say, "Mommy has pig eye!" Now even I call it that and we all laugh about it.

But it's eally no laughing matter because it hurts, is uncomfortable, and there's nothing to do about it but wait for the swelling to go down. I put cold wet washcloths over my eyes and that gives me temporary relief.

My daughter is your age and is healthy and active. However, she has a positive ANA and once this year she also got "pig eye" I don't know if this is caused by lupus or not, but I have no idea what it could be.

I don't swell up with bug bites.

I'm sorry about your eye because I know how embarrassing it is to go out in public. A former boss confessed once that he thought my husband was hitting me in the eye. I assured him that wasn't the case.

Hang in there Daymay. You have a lot to deal with at your age.

I'm sending you a great big ((((((((hug)))))))).

Love,

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/16/2007 12:59 PM (GMT -7)   
Daymay,

Make sure to take a picture of your eye. I would think that if it was allergy, it would happen to both eyes. One of my boys was allergic to bug bites when he was little and that is what would happen if he got a mosquito bite near his eye.

Sorry you don't have an answer for your swelling.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

 

Co-Moderator - Lupus Forum

 

UCTD, Hashimotos, Inflammatory Bowel, Inflammatroy Arthritis

 

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


omega
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Date Joined Jan 2007
Total Posts : 607
   Posted 9/16/2007 2:34 PM (GMT -7)   

I don't hv swollen eyes, but I do have back problem.  I cannot stand up for a very long time, because my feet will get tired.  Do u mean "poor circulation" is Raynaud PHenomeon where your fingers/toes turn color when cold?  I am no doctor, but it sounds like one of us, especially when you have a family history that deals w/lupus. 

I wonder if you can check with your school health service and see what kind of insurance they available for students.  Sometimes they have a good deal.  IF they do, see if you can afford it instead of using your family's. 

I know this period is pretty suck when you cannot do anything but in pain.  Hang in there.  There will be a way out.

P.S. Butterfly rash is a classic marker for us. 

Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 9/16/2007 2:48 PM (GMT -7)   
yes Pat that is exactly what it is! It swells up big and ugly like that. All day today people were asking me if I got into a fight. All I know how to do is ice it and take benedryl (because we don't know if it's an allergic reaction). But I haven't iced it at all today and I've taken benedryl which has not helped at all. hmph.

omega-- that's what I mean by poor circulation. Generally, I just don't do well in the cold period. My friends can stay outside and watch football or soccer games for the entirety of them when it's cold, but I always feel like such a wimp when I have to go in before the second half.

and I was going to make a trip down to Health Services on campus today, but apparently they aren't open on the weekends!

thanks for all your support!

applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 9/16/2007 3:29 PM (GMT -7)   
hi daymay,
i have the same problem you do with the lower back, it feels like if you stand/walk or bend over like your back is gonna give way and you feel like falling over, mine has a lot to do with the way i walk, cuz i have avascular necrosis in both knees and my R ankle so walking correctly is very difficult. I had swelling before i was diagnosed with lupus especially in the joints, ankles and legs cuz the lupus affects my kidneys. i am actually the only member in my entire family (immediate and extended) that has lupus, and i know about the mood swings but thats from the meds, i was diagnosed at 13 and i know the easiest thing for me was that my mom was a fighter, she made sure that the docs gave us answers and did everything that they could to help me, i actually got then from her and now my docs work with me in managing my disease and not just talk at me.

in most colleges dont they have some sort of free clinic or something equal to that? if your college has one, that my not be a bad option to check out, cuz maybe if you can convince them that you need some kind of specialist maybe they can talk to your insurance company or you can try calling your pcp from school and get his office to get you your referral that way, i know that some docs are more open to helping with things like that especially when you are away at school. good luck, but dont ignore your symptoms cuz you never know what can happen, i tried that when i was in high school and it came back to bite me on the you know what.
Hugs and prayers,            God grant me the serenity to accept the
   ~Suzanne~                 things I cannot change, the courage to    
                                    change the things I can, and the wisdom
                                    to know the difference.
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN of R ankle '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 9/20/2007 10:03 PM (GMT -7)   
there is something called "health services" which is basically an on campus nurse. My school is not very large so I suppose they didn't see a need for anything more than that. I'm going to try (for about the 5th time now) to make an appointment with them. I don't know what's up, I just haven't wanted to do anything. My friends are all out tonight but I hadn't the slightest desire to go anywhere. All I've wanted to do all week is sleep. It's getting so bad with assignments-- even if I go down to the computer lab, all i think about is sleep!! I can't focus and it gets me frustrated. and when i was walking to class i just wanted to sit down. it wasn't that i was "tired" or sleepy, but I was physically taxed if that makes sense.

Is hair loss a problem for any of you? I was just reading that it is sometimes a symptom associated with SLE and I hadn't heard this before, but my mother always complains about the amount of hair I lose all the time.

I will update later when I have something of relevance to say!! Good luck to everyone else: you are truly an inspiration and I look up to you.

redrose77
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Date Joined Sep 2005
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   Posted 9/21/2007 12:33 AM (GMT -7)   
I would call your insurance company and ask them for a few PCP/Internists names who are closer to you. I would definitely change doctors. Does your Aunt have a more sympathetic nature than your dad? If so then I would see if she would go with you to the DR. Also it is possible your dad said something inadvertently during a visit with his doctor that made the DR doubt you. Then again DRs tend to ignore womens' complaints. I started showing signs/symptoms (enough for a dx) around 13-14. My ANA is negative yet I am dxed due to having way more than 4 of the 11 criteria. Go to lupus.org to look at symptoms and criteria for dx. You would be surprised how hard it is for us to get help. I was close to 28 before I got someone to take me seriously and dx and treat me. I say visit the ER for your eye so you have documentation. I swell with any bug or spider bite or sting. I am allergic to just about everything. You need an allergist. You also need to take pictures of rashes, fingers turning colors, swelling, even your face because sometimes we do not notice rashes if they are light and always there. I suggest a dermatologist and an ophthalmologist as well, the eye swelling could be dangerous or benign but you need a professional who specializes in eyes examine you. Please do not put off pushing for medical care. Switch doctors and get SOMEONE who BELIEVES and SUPPORTS you to accompany you. Often having a witness will make doctors do more to find out what is wrong. Look into a University Medical Center- usually sliding scale based on income and usually enrolled with a lot of insurance companies. For a good doctor travel how ever far and where ever you find one. If you give a state and generalize location someone here might know a good doctor. Please listen to your body and get help. Lupus and a lot of other diseases can be life threatening if untreated. Also to get more support from dear old dad remind him that if lupus is dxed and properly treated early on there is a very good chance you will have a better outcome and if left undxed and untxed then you will only get sicker and sicker until you become disabled and maybe even die from complications. Not trying to scare you but giving you the facts as my rheumy presented them to me- I got really bad sick and am now disabled completely. I am sure your dad loves you and would not want you to have kidney and/or heart and/or other organ damage. Point out that his helping you make a doctor listen could be the difference between you becoming an independent adult or having to depend on family for the rest of your life. I wish you the best of luck. Remember to call your insurance for doctors you can see closer to you. If you have a PPO then referrals are unnecessary and you need to make it clear you have a PPO to the rheumy offices you call. If you have any other kind of insurance then you likely need a referral. I am lucky I have a PPO so I refer myself to any doctor I wish to see.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 9/21/2007 12:47 PM (GMT -7)   
i went to the health center today and they told me i probably have a virul illness and that it's not a big deal.  i told her about my eye and she said i must be allergic to something and tried to provide an example. i just nodded my head.  she tried to say that its all this stress thats causing me to be sick, but i am fairly certain i am far less stressed in college than i ever was in high school. when i told her about being sleepy all the time she said thats what i have to do. this weekend all i should do is sleep. and that was my prescription.
 
i feel like i got absolutely nowhere.
 
when i told her what i thought and about my dad having lupus she just nodded and smiled and went completely off topic!
 
my words mean nothing.

Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 9/21/2007 12:49 PM (GMT -7)   
oh, and redrose, thanks for the comment! i wouldn't know if my aunt is more sympathetic because i haven't spoken to her in about 8 years. I really don't know much about her. and my grandmother died before i was born.

redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 9/21/2007 1:57 PM (GMT -7)   
I would reestablish contact if possible. I also can tell you school nurses are idiots. My hubby had a mini-stroke as per the ER but the school nurse sat there an told him he did not have one, all he had was a hypertensive episode- the old term for mini-stroke. Idiot woman. She also said he didn't have sleep apnea but instead ate too much. Yeah, a sleep study proved obstructive sleep apnea. So ignore the school nurse and find someone else to see. I am dxed with lupus and the school nurse said my rheumy was a quack- best rheumy on this side of the state and well known as being the best yet the idiot said she was a quack. So I don't trust nurses who claim to know more than we do about our bodies. You do need sleep but she still had no right to blow you off.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone

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