Why don't the fevers go away?

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MissAlicia
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Date Joined Sep 2007
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   Posted 9/13/2007 2:08 PM (GMT -7)   
I've been having fevers every day....for  many hours....I take ibprophen and tylenol and it doesn't make them go away....why?  Is there anything that can be done?

omega
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   Posted 9/13/2007 3:42 PM (GMT -7)   
Do u hv lupus/MCTD/or any kind of autoimmue disease? If u do, go call yr Rhumty. If u do not, go chk w/yr PCP, because if u r having a constant fever, it indicates that yr body has something that is not right.

AlwaysRosie
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   Posted 9/13/2007 6:05 PM (GMT -7)   
Hello Alicia!!! Welcome to the forum sis.

More important than the fever is what is causing it. Lupus can cause chronic fevers, but your doc really should be part of determining what is causing the fever and how to manage it and other symptoms.

If you have reason to think you have lupus, you will probably be best to see a rheumatologist because lupus can be difficult to diagnose and most pcp's are not trained to do the sleuthing required to dx this one.

Tell us a little more about your symptoms and your progress with your current doctors.

There is lots of information in the links at the end of my signature if you want to click on those and check out those links.

Welcome to the forum!!!

Blessings!
In His Grip!,
AlwaysRosie          "We can't control the waves, but we can learn to surf!"
Psalms 139
 
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monkeyme
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Date Joined Mar 2007
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   Posted 9/13/2007 7:29 PM (GMT -7)   
Just wanted to welcome you, and to say that when I have my "lupus" fevers, tylenol or advil does not bring them down much at all. It doesnt even take the pain away.

Sorry that your not feeling good.

Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


MissAlicia
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Date Joined Sep 2007
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   Posted 9/13/2007 7:59 PM (GMT -7)   
I am from California and I go to college in Virginia. I'm 19 years old. While I am at college I don't go to the doctor because our insurance isn't taken over here. My PCP set me up with a Rheumatologist for December 23rd when I am home for Christmas break. I've had these "Lupus-like symptoms" since the Spring semester of my Freshman year. I am now a Sophomore in college. I've read that Lupus can sometimes be worse during the warmer months but then go away in the Winter months. Does this mean when I go to the Rheumatologist in December that they won't be able to figure out if I have Lupus or not? Over the summer they did blood work and found that I have a positive ANA.

My sytoms have been extreme tiredness and fatigue, frequent headaches, a sudden eczema on my eyelids (which prevents me from being able to wear any eyeshadow or else my eyes will form pus inside of them and my eyelids will become really red, dry, itchy and swollen) the only eye make up I've been able to wear is a little bit of mascara for sensitive eyes as long as it is only on the tips of my eyelashes. Also I've been having these random fevers which have been getting progressively worse (they are lasting longer and they are more extreme and more frequent). I've also been having a cloudy/foggy feeling in my head at times and have been having more than usual mood swings...I'm very much more easily agitated and angered and I have a difficulty concentrating at times.

I'm a straight A student and it has made studying difficult but it hasn't affected my grades thus far. It is just annoying and bothersome...and I don't like feeling as tired as an old lady despite getting adequate rest....when I'm only 19 years old! I used to love hiking with my boyfriend on the weekends and he's disapointed that I haven't been feeling well enough or energetic enough to want to hike with him....I feel like he thinks I am being a bit selfish or a hyperchondriac....but I really just don't feel like I have the energy and I know if I try to do what my body isn't feeling strong enough to do that I'll just end up in a really bad mood.

Does this sound familiar to anyone?

sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 9/13/2007 9:46 PM (GMT -7)   
Hi, Alicia and welcome! Yes, what you describe sounds all too familiar to every single one of us! I'm sorry you're feeling so badly and unable to get any relief with your insurance deal the way it is with you away at college. Lupus effects everyone so differently, there's really no way to know how you'll feel come time for your appt. You do at least already have your positive ANA to stand with you. There are many other things they will look at. There are 11 criteria for lupus and you need to have 4 of them. You don't have them all at the same time either. This disease changes quickly, so you may have different complaints by the time of your appt. Just try to make a list of everything you've experienced. I keep a journal of everything that happens to me. As you can already see, it may be a long time between doc appts. and sometimes it's hard to remember every single thing. This will help them with your diagnosis too. You have found a great place to help you. What amount of ibuprofen did you try? I'm certainly not a doc, but I'd probably try to take whatever the maximum amount ibuprofen is called for at the most frequent intervals allowed to see if I could get some relief since you've got a heck of a wait. Take care and welcome.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


omega
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Date Joined Jan 2007
Total Posts : 607
   Posted 9/14/2007 1:56 AM (GMT -7)   
It does sound like lupus symptoms, especially if yr fever get worsen. I would suggest u call yr PCP in CA, and see what he/she can do for you. This is important, as u dun wanna wait till it gets worse. If he can set u up an earlier appt, go for it. Your health is more important. I am no doc, but I think u need to take med. to control yr symptoms.

omega
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Date Joined Jan 2007
Total Posts : 607
   Posted 9/14/2007 1:56 AM (GMT -7)   
BTW, they can perform tests to see if u hv lupus.

MissAlicia
New Member


Date Joined Sep 2007
Total Posts : 13
   Posted 9/14/2007 9:54 AM (GMT -7)   
I really don't know what to do.

I woke up this morning with a slight fever it was 100.7 Within a few hours it jumped to 105.6 then slowly went down to 104.4 and then increased a little and then went down to between 99-100.9 which is where I am now. I am feeling extremely exhausted. I also woke up with a sore throat and ear ache pain and I have some chest pain/shortness of breath (but maybe this is because I'm worried?) I am wondering if perhaps I've caught some sort of sickness due to the fact that my immune system has been down and that maybe is bringing the Lupus symtoms out more?

I called my grandma (she's the one I live with when I'm home in California) and she was worried about my high fever but since it has gone done I dont think I have to go anywhere. She doens't think I have Lupus (or at least doesn't want to believe that) she just thinks I'm "sick". Is this anything to worry about?? Will it go away eventually? I've been having these high fevers for about 4 days now....this weekend I'm going to Pittsburg for a concert on Saturday....I feel horrible but we paid 70 dollars for the tickets so....I guess I'm going to go still....I'm just so upset and frustrated....

MissAlicia
New Member


Date Joined Sep 2007
Total Posts : 13
   Posted 9/14/2007 10:00 AM (GMT -7)   
 
 
Also, I just feel like nobody understands just how horrible I feel....and everyone wants to be in denial....they don't think my positive ANA result and all my symtoms are enough to really think I have Lupus...it is so frustrating to wait until December....just to finally see if I do or do not have Lupus...and meanwhile...waht am I to do?  Suffer and feel like people think I'm making this all up or seeking attention?  The only people who even know that this may potentionally be Lupus are my family and my boyfriend...I just tell others I'm not feeling well and that I'm tired and "don't know why".  My boyfriend is the only one who really seems to believe me and think that Lupus is definately a big possibility and my home doctor also said this but he said it isn't something like cancer and doesn't need immediate attention...

Post Edited (MissAlicia) : 9/14/2007 11:06:40 AM (GMT-6)


omega
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Date Joined Jan 2007
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   Posted 9/14/2007 4:22 PM (GMT -7)   
I am sorry that you are going through so much frustration. Sometimes it is hard for others to u/stand us at all.
I suggest that you start record your temp every day. You can temp yourself three times a day (morning, afternoon, night), and write down yr temp. Also, write down a list of your symptoms.
Chk w/yr insurance company n see where is the closest city to where u live right now that will take the insurance.
Can u afford to pay for yr school's insurance? If yes, u might as well give it a try.

hippimom2
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Date Joined Jul 2005
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   Posted 9/15/2007 7:40 AM (GMT -7)   
Hi MissAlicia and welcome.  I'm sorry you have gotten so sick and I hope the rheumatologist can help figure out what is causing your symptoms.  The high fever you had sounds really concerning.  Even though your fever went down to 104, that's still a very high fever for an adult.  I would strongly recommend  that you see someone if your fever gets that high again.
 
You are certainly not alone in this and it is so hard to get others to understand just how miserable you feel.  The sick feeling and the fatigue go way beyond what healthy people consider fatigue to be.  For your family, there is a great website: http://butyoudontlooksick.com  At that website you will find something called the Spoon THeory.  It's one of the best ways to describe to healthy people what it is like to live everyday with a chronic illness.  You might want to print out a few copies and give them to your family.
 
I hope you ended up feeling a little better so you could go to Pittsburg.  One of the most frustrating things about these chronic illnesses is not being able to plan ahead.  It can be so frustrating to plan something fun only to find that you are too sick to go or too sick to really enjoy it.
 
Hang in there and know we are here for you.  Take care and I'm glad you joined us. 
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
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monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 9/15/2007 2:47 PM (GMT -7)   
Alicia I just wanted to say that if you have fever of 104 or 105, you really need to be seen, even in an urgent care setting. They can take your blood and check your white cell count to see if you have some sort of infection going on. That is really a pretty high fever.
 
Did it come down on its own or did it come down after you took ibuprofen or tylenol?
 
I really hope you are feeling better soon sweetie and you'll be in my thoughts and prayers. My son is about your age, and he suffers from chronic fatigue. I watch him and know how hard it is, for a young kid to be so tired he cannot move.
 
Keep us posted on how you are doing, because here, we do understand and we do care. For a lot of us, its the only place we can come to where we know we will be understood.
 
Hugs,
Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


MissAlicia
New Member


Date Joined Sep 2007
Total Posts : 13
   Posted 9/16/2007 3:39 PM (GMT -7)   
I'm going to call my home doctor tomorrow and see if he can find me a doctor here that will take my insurance. Should I request a regular doctor that can treat the sickness that I think I may have gotten or should I request a rheumatologist who can test for lupus now instead of waiting until my Dec 23rd appointment with a rheumatologist in CA who is going to test for that? Right now I think I have a combination of a really bad double ear infection and terrible allergies with a very bad sore throat...and I feel greatly fatigued and tired...others who are getting sick around me are not getting hit as hard as it seems I am getting hit with it...

AlwaysRosie
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Date Joined Jan 2005
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   Posted 9/16/2007 4:49 PM (GMT -7)   
Hi Alicia,

IMHO . . . If you are sick now, you need a pcp who can help you with your "every day" stuff and keep the rheumy for your lupus things. Problem is, it is sometimes hard to tell the difference. Do keep the December appt, but get in to see a primary care doc right away.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

 

Co-Moderator - Lupus Forum

 

UCTD, Hashimotos, Inflammatory Bowel, Inflammatroy Arthritis

 

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MissAlicia
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Date Joined Sep 2007
Total Posts : 13
   Posted 9/16/2007 7:01 PM (GMT -7)   
Thanks for the advice. I'm going to get an appointment with a local doctor here and hopefully get into better health soon!

Lynnwood
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Date Joined May 2005
Total Posts : 7020
   Posted 9/17/2007 2:07 PM (GMT -7)   
Most colleges require you to sign up for the student health center as part of tuition and so you might as well use the facilities they have since you have already paid for them. If you go there they will help you deal with the fever and help you find someone to deal with the ear stuff if they don't have the facilities for it.

A fever that is remaining high like that can do permanent brain damage, so please check with the school health center or a walk-in clinic asap. Your current fatigue may be related to your fever, or it may need further attention. I urge you to take care of it as soon as possible -- otherwise you get more & more tired and it's really, really hard to catch up.

Hang in there,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
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MissAlicia
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Date Joined Sep 2007
Total Posts : 13
   Posted 9/17/2007 6:21 PM (GMT -7)   
My University is a Private Christian University which doesn't require that. They have a Light Medical facility that isn't very good though. I am going to either go to a walk in facility locally this Wednesday or an emergency room (if I do that it will be covered by my insurance).

Thanks again!

AlwaysRosie
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Date Joined Jan 2005
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   Posted 9/17/2007 10:33 PM (GMT -7)   
Keep us posted Alicia . . . I'm sorry you are still having trouble.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MissAlicia
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Date Joined Sep 2007
Total Posts : 13
   Posted 9/19/2007 7:39 PM (GMT -7)   
I went to the doctor today and he said he thinks I have Hay Fever and gave me a perscription for Singulair. Does anyone else have hay fever?

Lynnwood
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Date Joined May 2005
Total Posts : 7020
   Posted 9/19/2007 7:43 PM (GMT -7)   
No hay fever for me...is this your first year at school? Sometimes 'hay fever' occurs if we aren't used to the pollens/etc in a new area.

I didn't think that sort of think would ramp your temp up as high as you've noticed though... hang in there...

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
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   Posted 9/19/2007 7:43 PM (GMT -7)   
I wasn't aware that it could cause a fever??????? Did he address the fevers???

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MissAlicia
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Date Joined Sep 2007
Total Posts : 13
   Posted 9/19/2007 7:48 PM (GMT -7)   
Yeah I told him about the fevers...but he didn't seem to really say much about the fevers...and when I looked up hay fever online it said it usually isn't accompanied with a fever....but it did say that:


In children, hay fever often is a contributing factor to middle ear infection (otitis media), which causes pain, fever and fluid buildup in the middle ear. (I'm not a child though...but I guess it can happen to young adults too??)

This was on a Mayoclinc website...


This is my second year of college and I told him that and he said that sometimes these things take two seasons to really "show up"?

Also when I went into the doctor today my temp was 97.8 degrees...which is what is normally is when I'm okay....but earlier just morning my temperature was 101 and I told him that...and I told him about the 105 temperature on Friday that spiked down quickly....but he still seemed to think it was hay fever.

AlwaysRosie
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Date Joined Jan 2005
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   Posted 9/19/2007 7:53 PM (GMT -7)   
Urghhhhh . . . . sorry Alicia . . . we get our 5 minutes with the doc and don't you know it chases away our measurable symptoms. I hope the fever stays gone for you. Keep us posted!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MissAlicia
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Date Joined Sep 2007
Total Posts : 13
   Posted 9/19/2007 7:57 PM (GMT -7)   
Yeah....I do too! And I will...I just hope that maybe he is right and that maybe I do have hay fever....and that this medicine will help with my ear pain and such....and that the fevers stop.... I hope I get more answers in December when they do more Lupus specific blood work on me at home...

This doctor knew nothing about my ANA test result and I didn't tell him because I am not yet diagnosed with Lupus and I didn't figure he would know much about it anyway...
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