Sorry I've been gone

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CaptSue
Regular Member


Date Joined Jan 2007
Total Posts : 279
   Posted 9/17/2007 3:33 AM (GMT -7)   
Hi Everyone,

Got overwhelmed and haven't been reading here but I have been holding you all in my thoughts and wishing you all the best.

I'm happy to see I recognize lots of names on the front page. I just thought I'd write a hello to all before I leap in again and answer a few posts. Have to check out puppies! and write to some folks about Imuran and prednisone (my two meds, just a little bit of poison everyday to keep going).

Stay Strong,
Sue
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg), Imuran (2X50mg), Prilosec (20mg), AmbeingCR (12.5mg some nights)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/17/2007 5:46 AM (GMT -7)   
Hi Sue . . . its so nice to meet you.

I hope you've been pacing yourself and resting enough . . . but seeing the word "overwhelmed" sounds like that may not have been possible.

Glad you stopped back to catch up with everyone. I saw your post in "Puppies" . . . thanks!! I enjoy the pups too, although in a couple weeks, I'll have my hands full!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

 

Co-Moderator - Lupus Forum

 

UCTD, Hashimotos, Inflammatory Bowel, Inflammatroy Arthritis

 

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/17/2007 7:01 AM (GMT -7)   
Hi Sue, it's great to see you back here. I know you've had a lot on your plate with your brother living with you and everything else you have going on. How's your health been holding up? We've missed you here, but I truly understand the importance of taking care of yourself. You are a wonderful and supportive presence here, and we're happy to have you here anytime you are feeling up to it. How are things going with the prednisone - have you been able to stay at 5mg? I've had a hard time going below 10mg this summer, but am hoping that with the kids back in school and the cooler weather, I'll be able to start tapering soon.

Take care and it was so nice to hear from you.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 9/17/2007 12:59 PM (GMT -7)   
Its so good to here from you Sue. I'm hoping things are getting a little better for you.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


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CaptSue
Regular Member


Date Joined Jan 2007
Total Posts : 279
   Posted 9/18/2007 3:56 PM (GMT -7)   
Thanks Rosie, Hippie and Des,

It brought tears to my eyes to read your welcome backs. You guys are the best!

My bipolar brother who was living with me had a psychotic episode and I had to have him (struggling for the right word here) put away, committed, locked up, whatever for a while and he is out now in a halfway house. Better for me but still a strain.

Still trying to do the pace yourself thing but I have lots "on my plate" (as do we all). So cheers and, as always, stay strong.

Sue
Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg), Imuran (2X50mg), Prilosec (20mg), WellbutrinXL (150mg)


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 9/18/2007 4:17 PM (GMT -7)   
Sue,

What a nightmare you've been through. When my mother-in-law had to "put away" her husband of 60 years in a nursing home it nearly caused her to have a breakdown. In the 40 years that I've known her I have never seen her so distraught, not even when she lost her parents. She finally accepts that he's better off there and I hope you do as well. I'm sorry for all you have had to go through. We all take a break from the forum from time to time and it's always good to see an old friend again. Welcome back.

Pat
Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/18/2007 7:59 PM (GMT -7)   
Sue, So sorry about your brother. I had an older brother who sustained a head injury in the service when he was 19 years old and spent his entire adult life trying to compensate for the injuries. Needless to say he was SO misunderstood and it was very hard on him emotionally . . . my heart goes out to you. He had many stays in the VA psych ward as a result . . . very hard to watch. (I used to bring him contraband cigarettes because he enjoyed passing them out to the other patients . . . hee hee heee . . . good for his spirits . . . I was scolded by other family members, but it was fun espionage!!) BTW he spent his last few years in life as his best adult years because of being properly medicated for depression. I hope the docs find the right combination of meds and therapy to help your brother.

Some hot tea for you sis!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 9/19/2007 7:31 AM (GMT -7)   
Sue, I'm so sorry about your brother. What a emotional struggle I'm sure that is for you. Sending you my thoughts and hugs.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


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