I had my first infusion last week (I need to change my meds in my sig). It only took about 30-40 minutes, no pre-infusion meds such as tylenol or benadryl, and no reactions or side effects. I was sleepy afterward but that could be a coincidence. I go back next week for my next one. The doses are 500mgs, 750mgs (I'm on this one.), & 1000mgs. I can't say I feel any differently, but they said it generally takes 3 months to see the full benefit.
I beging the Orencia a week from today. I really hoping and praying for relief. if anyone out there has any information about this or can tell me their experience - I would most appreciate it.
Jeannie, how is it working for you? I was told today by my nurse that the infusion will last about an hour or so. How are you doing on it now? Any results? I am just so anxious.
Hugs to you,
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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Sorry, I must have missed this before.
I've had 3 infusions, the last one was on the 11th. This week I *think* I'm starting to feel some improvement. At least, I'm hoping that is what is going on! I start going monthly now.
The first infusion was probably close to an hour, but since it has gone faster, more like 30 minutes....still no side effects. The drowsiness like I had after the first infusion hasn't happened again so I think that was a result of stress/not sleeping well the night before. I did get another UTI right after I posted about the first infusion, sigh. One more UTI and I'm going to have to reconsider the antibiotic maintenance dose. I haven't had another though so I'm hoping Orencia is going to be better than Remicade in that regard.
And yes, I totally know what you are talking about and feel that way most of the time. I hate the mind games that come with all of this.
I would tell you not to be anxious, but we both know that isn't going to happen.
Be sure and report back after your infusion! I'll be thinking about you.
I had my first Orencia infusion today. I have been very tired ever since. I am not sure if it has anything to do with the infusion or what. I slept very well last night and even got to sleep in til 5:30 this morning and only worked 4 hours today.
Unfortunatley I feel no relief yet...which I knew I wouldn't - but I am really looking forward to when the relief comes.
I'll kee you all posted of the progress of Orencia. If any more of you have tried it - I would still love to hear from you. This does not seem to be very popular yet.
Hugs to all of you.
I just got back on here today and realized I did not answer your question about what is Orencia. Orencia is suppose to relieve the pain and swelling of joints. It is also suppose to help with fatigue of RA and control the advance of joint dammage. I have only had 2 infusions so far and I have not had an ounce of relief YET. I was told though that I would not feel relief until I have had at least a few infusions. I am having my third infusion this Wednesday so I am hopeful this is the one I will feel the relief. I have noticed though I seem to have been a bit tired for a couple of days following the infusions. I am not really sure if it has anything to do with the Orencia infusions though. I do know that my doctor told me that it is going to get worse before it gets any better. Boy oh boy - she was right on the money with that. Also, it lowers your immune system considerably. This scares me as we are approaching - or are even in - cold and flu season. I have to be EXTRA careful when around anyone sick at all. I have noticed that my allergies have also been a LOT worse. I will let you guys know how things go with the Orencia since there does not seem to be many people on it yet.
Many blessings and painfree days to all. Also, I hope everyone has a happy Thanksgiving this week.