Now I Have NO Clue What I'm Going To Do!!!

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JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 9/17/2007 7:13 PM (GMT -7)   
Hi! Everyone,
Well as you all know I have a great rhuemy which took me forever to find and I'm on chemo (MTX) for it. I was to have an appt. Tues. the 25th at my rhuemy. Well, late afternoon a message was left on my ans. machine from his nurse telling me my appt. for the 25th had been cancelled now at first I thought no biggie.... BUT the message went on to say "it won't be re-scheduled as dr. Marbach is no longer part of Oak  maybe you can find a doctor somewhere else, maybe closer to where you live there in Indiana, I just don't know, I know this happened rather suddenly, not sure where that leaves us either, I think maybe you will be getting a letter, good luck, bye"!!
Needless to say I am in SHOCK!!! My new labs were just faxed to him on the 10th here I am left hanging with lupus on MTX and NO explanations nor any idea of where to go or what to do next??? This was my important 2 months appt.
I can't believe a good doctor such as he would up and leave his patients hanging and I was told by means of ans. machine?? The nurse sounded pretty final by wishing me "Good luck".... I called them back within 15 mins but it was an ans. service they normally close at 5:30 this was 5:15 and they were closed and service could give me no info. either.
I went to him in first place because I couldn't find any good ones in my area or state and they knew that. I'm just sick and worried by all this...
Any ideas??
Thanks! and Hugs!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 9/17/2007 8:01 PM (GMT -7)   
well, Just I am sorry to here that about your doctor. My frist question would be to them can you give me a doctor in my area or that you could refer me to else where?
PLAQUENIL, FLEXERIL, CELEBREX - UCTD, BENICAR - HIGH BP, SINGULAIR - ALLERGIES, REQUIP RESTLESS LEG SYNDROME, LEVITRA, AND METROGEL FOR ROSACEA 
Enjoy what you can today and leave the rest for another day.
 
Frank
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/17/2007 10:42 PM (GMT -7)   
Oh Cathy . . . I'm so sorry. I hope you can reach a live body tomorrow to get more information. Lynwood and I both lost our rheumy too and someone else here who was also seeing Lynwood's rheumy. Its a real bummer having to find another caring doc. My heart goes out to you.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 9/17/2007 10:49 PM (GMT -7)   
thank so much for your support and they gave me NO hint of anywhere to go??? Guess just left all his patients hanging... I don't understand
Hugs!
Cathy
Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 9/18/2007 5:49 AM (GMT -7)   
Cathy,

I'm so sorry that this happened. Its very curious and its awful that you lost a rheumy that you trusted. Is he affiliated with any particular hospital? I would try and call that hospital and see if they can give you some insight or at least let you know who his patients are being referred to. They didn't handle that well at all. (((HUGS)))
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 9/18/2007 6:32 AM (GMT -7)   
Cathy, I agree that this whole thing was not handled well at all. I would call back and ask if your rheumy is practicing somewhere else. Usually when a doc leaves a practice you get a letter that states when they are leaving and where they will be going. It's got to be a terrible feeling to finally have found a good rheumy only to have him leave. Hang in there and don't give up trying to find out where your rheumy went.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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JustChattin
Regular Member


Date Joined Mar 2005
Total Posts : 140
   Posted 9/18/2007 9:54 AM (GMT -7)   
I found more info. out this am. The place where he was practicing without warning Let him Go!! He was actually there in the middle of seeing patients when this happened!! He was the ONLY rhuemy in that whole practice in fact only rhuemy for many, many miles around. Reason Admin. gave was "There wasn't a great need for him" UNBELIEVABLE!!! Dr. Marbach is beside himself to say the least he don't know what he's going to do at this time. This is a very well educated man and very kind!! I will post a link so you can read about him. At this point all his patients are in panic and so is his nurse Karen. He also has treated lupus patients for 30 yrs.
http://www.zoominfo.com/search/PersonDetail.aspx?Personid=196524784
Hugs!
Cathy


Diagnosed dystonia 1982,COPD 1995,SLE(Lupus)2005,Subclinical hyperthyrod 2005,neuropathy 2004,mild spinal stenosis 2005, and the list goes on and on.....Raynauds March 2006, Bollous of SLE Jan 2006,chronic pain for many years, chronic pancreatitis, cysts on liver
Meds Sectral 200 mg 1 x day, Methotrexate  15mg per week, Xanax .5 4 x day,Hydrocodone 7.5/500 every 6 hrs as needed,  SVN treatments as needed,Folic Acid 2-400mccg per day


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 9/18/2007 12:24 PM (GMT -7)   
That is horrible... and very tacky, in the middle of his shift??? Is there anything you or the others can do? I know with privacy there is limitations. Maybe write letters. I'm so sorry hun for you, for him, and his other patients. (((HUGS)))


"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


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sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 9/18/2007 3:17 PM (GMT -7)   
Hi, Cathy. I'm SO sorry you have this to deal with. I know all too well about "The Search" for a really good, caring rheumy; I am on my third and hopefully last one! Those particular docs seem to be in short supply...good ones that is. Good luck in trying to get a referral or more info. about another quality one not too far away from you. Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 9/18/2007 4:14 PM (GMT -7)   
Hi Cathy,
   I'm sorry to hear about loosing your rheumy so soon...((hugs)). I hope you can find another one quickly. You will be in my thoughts and prayers.
                                                                    Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 9/18/2007 7:02 PM (GMT -7)   
Hi Cathy,
I thought it was standard practice for a medical office to reassign a doctors patients to another physician, in fact, I think they are negligent in not doing so. Also, I believe they have to assign you to another doctor that is the same type of doctor or can provide appropriate treatment. I would definitely complain to the office manager, and possibly call patient advocate at thepatientadvocate.org and have someone call the office to explain to these airheads in the office that you are on medicines that cannot be abruptly discontinued and that you need special care and find out what thepatientadvocate suggests you do. I would also talk to your insurance company and/or the state medical board. I really don't think they can legally just do that. It may be a case of patients rallying together to get him back at least part time or to see him at another practice.
I hope you find your rheumy and support him. Good docs are hard to find. Sometimes just having an outside agency calling a doctors office and talking to the office manager is all it takes to make them realize that there may be legal repercussions to the way they handled things. I wish you the best.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments

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