Question about Plaquenil

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nursecarrie
New Member


Date Joined May 2007
Total Posts : 11
   Posted 9/25/2007 7:48 AM (GMT -7)   
For those of you who are on Plaquenil...Are you still having joint pain and stiffness? I began taking it back in May and just recently have noticed a decrease in pain and stiffness. However, as the day progresses and I do my daily activities the pain and stiffness return. I have an appointment with my rheumy on Thursday and will ask her about it. I just wanted some advice from some everyone else! :-)

One more question...Does anyone suffer from muscle pain, weakness, and loss of strength? I have noticed an increase in these symptoms since I was diagnosed with Lupus in May. I am a nurse and work long shifts and I have attributed these symptoms to that, but now I wonder if they are related to lupus? Any replies are appreciated!!!

Carrie
Dx: SLE (4/07), IBS (1/99)
Meds: Plaquenil, Celebrex, and Lisinopril


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/25/2007 8:59 AM (GMT -7)   
Hi Carrie . . . welcome to the forum!!

Plaquenil takes almost 6 months to get to its peak performance in your body. Even at that most everyone here who takes it for pain and stiffness also takes an anti-inflammatory med as well. I have tried many anti-inflams and my favorite was Viox sad . . . but I didn't have success with the other rx anti-inflams. Each of us will find a different one that works best for our body . . . mine is rx strength ibuprofen. I take 600 mg 3-4 times a day. My doc puts me in charge of my dosing . . . so when I'm feeling really well, I only take it 2x/day. When I'm flaring I take it 4x/day. At one point even that wasn't enough and my doc had to add Methatrexate (MTX) to my rx list. That actually began to help the fatigue. OH . . . I see that you do take Celebrex which would be your additional anti-inflam. I wonder if you doc would consider allowing you to try a couple others . . . its amazing how differently they each work with our wacky lupan systems. Also make sure that your blood pressure med isn't too strong. When my bp is consistently low, I feel very weak too.

Your second question was about weakness and loss of strength. I try REALLY hard to describe this accurately to the doc. My definition for fatigue is . . . everything I do is like walking under water . . . everything I do takes SO much effort. Then there is weakness . . . like, I'm not strong enough to lift this bowl to the upper shelf of the cupboard or I can't carry a basket of laundry down the steps. With fatigue, I can lift the bowl or carry the laundry, but then I need to rest.

Muscle weakness needs to be looked into because there are overlapping conditions like Myositis that should be treated if present. The fatigue IS part of Lupus.

Last, but not least, we really need to pace ourselves. When we push past a certain point (in terms of using our physical and emotional energy) we push ourselves right into a flare. Most of us here are go-getters and we each had to find a way to pace the energy we have on any given day so that we don't reach the point of exhaustion. You also need adequate and deep sleep to heal your body.

I hope the others have some good input for you as well.

Again . . . welcome to the forum sis!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


nursecarrie
New Member


Date Joined May 2007
Total Posts : 11
   Posted 9/25/2007 9:07 AM (GMT -7)   
Thank you for the reply! I am looking forward to my appointment on Thursday to discuss the problems. I will mention possibly trying another anti-inflammatory as Celebrex doesn't seem to help that much. I find myself taking Tylenol Arthritis on top of Celebrex. I guess I'm expecting a magic wand to come and wave my problems away! tongue

Thank you again!!
Carrie
Dx: SLE (4/07), IBS (1/99)
Meds: Plaquenil, Celebrex, and Lisinopril


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/25/2007 9:18 AM (GMT -7)   
Hey Carrie . . . when you find that wand, would you please take a moment and wave it over the bunch of us!! LOL

This really has become a dance of sorts. For some reason the Lupan body receives meds a bit differently than norm and its amazing what little things we find that make a difference. I was just shocked to find that the ibuprofen worked better than all the rx's available. I would love it though, if I found one of the 24 hour timed release (like vioxx) so I wouldn't have to be taking meds all day.

Do be sure to write a detailed list of your symptoms and take it with you. Mine is done on the computer so I only need to update it with changes. The docs LOVE it. . . I always bring an extra copy so they can keep one and I give abbreviated one to hubby for his wallet (docs and meds) in case we end up at the ER. . . of course I carry one too. It starts with my doctors names, address and phone numbers, my Rx meds and dosing, OTC meds and dosing, Allergies, then I list my current symptoms and I finish by listing a couple questions for the doc and what I want to accomplish on this visit. Make sure you list every symptoms every time, because if you don't mention one, the doc thinks it disappeared.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 9/25/2007 10:19 AM (GMT -7)   
From my very first visit, I was prescribed Piroxicam for the daily aches & pains, along with the plaquenil. It seems to help a great deal, and I supplement it when necessary with Ibuprofen, as per drs recommendation.

I agree w/Rosie, take a details list of all aches, pains, any oddness at all that you can think of. Something that seems normal to us can sometimes be a major clue to our doctors. Lupus is a strange disease with many, many variations & convolutions.

Good luck w/doctors appointment,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

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