normal ANA for a lupus patient

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tulip1023
New Member


Date Joined Feb 2007
Total Posts : 16
   Posted 9/25/2007 3:47 PM (GMT -7)   
Can anyone tell me what a normal ANA would be for Lupus patients?  My doc said that mine was 1:80 and then the time before that was 1:140.  I am glad that it is getting better but not sure what normal would be for me or what might be considered in remission?
 
Thanks for your help.
 
 
Phl 4:13 "I can do all things through Christ which strengtheneth me".


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 9/25/2007 3:56 PM (GMT -7)   

Hi Tulip, my names carol, I don't think we've met I'm out of town until tomorrow. Anyway sadly that new ANA of yours does not nessesarily mean you are getting better. People have lupus that dont always have a possitive ANA. All that means is you may not be in a flare right now. My ANA is 1:2560 the past 2 times is was taken. once I felt like crap and the next time I felt good but it didn't change. You'll find that peoples ANA are all over the board. It's only one of many test to give you a diagnosis. That's why you can't go by ANA alone.  I hope this helps a little and I look forward to getting to know you

hugs

carol



God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 9/25/2007 3:59 PM (GMT -7)   
Hello Tulip . . . I hope that you are "feeling" better along with your numbers going down. Sometimes, the severity of the ANA is just no indicator of disease activity. We have at least one terribly ill member here who's ANA is normal. Actually, the ANA is just one of 11 criteria for Lupus . . . we need exhibit only 4 of the 11 for a positive lupus dx, so you could never show a positive ANA and still have Lupus and be quite ill.

I hope this helps. I know it is confusing and there are lots of doctors who don't understand this either.

I would still like to see what the others have to say . . . there is lots of knowledge among our members and we sometimes disagree on certain issues.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


tulip1023
New Member


Date Joined Feb 2007
Total Posts : 16
   Posted 9/25/2007 4:04 PM (GMT -7)   
Hi Carol and Rosie! Thanks for the quick response. I was actually diagnosed about 7 years ago and have been through quite a few bouts with my kidney involvment i.e. chemo, ect. I guess sometimes I still get confused about the whole thing. My kindey function is now great and I am only leaking a little bit of protein which is about 250g (something like that...they said normal was about 150). anyway my doc said that my lupus activity was high still and he measured it by my ANA. The only symptom I have right now is tired and anemia so I guess the ANA really doenst measure how active your Lupus is then???????

Confused????
SLE-Kidney
Prednisone 10mg, Lisinopril 40mg, Lovastatin 40mg, Plaquenil 200mg, CellCept 2000mg, Lunesta (whenever needed), DHEA
 
Phl 4:13 "I can do all things through Christ which strengtheneth me".


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/25/2007 4:13 PM (GMT -7)   
ANA "can" measure disease activity . . . but it doesn't "necessarily" measure it. We aren't sure if it goes up before a flare, during a flare . . . and some say their meds seem to make it go down, so the measurement is then relative to the meds . . . it is a very unclear topic but there are those who believe the numbers are everything.

I look forward to hearing from some of the other members. We certainly don't argue about it . . . but it's always great to get info from many sources. If I can find an article, I'll post it.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 9/25/2007 5:46 PM (GMT -7)   
I have never had a positive ANA, I have kidney, heart, brain, skin and joint involvement. My lupus was diagnosed after a renal biopsy. Dr. Wallace, who wrote The Lupus Book says if you've had at least 9 rounds of chemo and massive steroids it's possible that you will never have a positive ANA. Judy
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