In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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You guys are all great! I missed ya and I really appreciate and ove every one of you. Thanks for the great welcome home and the information too.
Patty as for about the pnemonia,yes I get it 2 to 3 times a year. I'm actually right now on the border line of hospital or not. Doc saidto go straight in if I get a fever or chills. Heck how can ya tell? I mean just having lupus causes that. But yout also right about feeling bad enough for a transplant. I can swim a quarter of a lap in the pool and walk 20 feet and have to set down for 5 mins. to get my chest to stop hurting and my heart to stop pounding. My brain just wants to do so much more. I guess I tore the cartledge in my ribcage from cough so hard. At least I didn't break a rib this time so that's a possitive. My other pul. told me 2 years ago that would have to start considering a transplant. So I always had that in the back of my mind. Of course that was BL. (before Lupus)
Barb thanks for sharing. Yes I know that you blood cancer came from the lung treatments and that just scares the hell out of me. I hope you have had a few days of half way decent days since I've been gone. I don't want to jump the gun. Maybe it isn't Lupus Lung. Which I never heard it called that before.That was exactly the way she wrote it on my DX too. You know I was worried about the mass on my kidney which turned out to be a cyst so hey it could be somthing help. But I am feeling rather deflated right now. I've been fighting these lungs for 8 or 9 years now and they just get worse. I would like ore info about the biopsy though and how that all works but I am wondering if maybe they can find out if I have the gene like you do before they try somthing. However I would do just about anything at this point to just feel half way able to breath again. Plus my heart is beginning to be (borderline) because of the pounding it takes from my breathing problems. I just want this over.
Rosie and Ginny, even if you don't know much about lung issues you know about the pain fear and suffering first hand. I really love you guys for keepinng me in your thoughts and prayers. You really life up my spirits. I'm actually a little concerned because of the meds they just put me on because I have a new rheumy the 4th and I would actually rather go there when I didn't have all the antibiotics and stuff in me which will wack out my blood work I imagine and I want him to get the full effects of what is happening. I know the antibiotics and lots of steroids can effect wbc and rbc and of course sed rates. But I guess we will see what happens.
Hey sharen you don't live that far from me maybe if I have this biopsy you can come spend a couple of days. Are you still in texas? I hope you are having some better days. Again I am so sorry you lost you sweet baby dog. I actually started getting the pnemonia since I was about 15 years old. but just in the past 5 years or so I have been on oxygen because my lungs are not capable of sustaining them on their own. I' glad I'm back and love you too.
I'm actually feeling a bit better physically tonight. the drugs the doc put me on really kicked my butt so I wasn't able to function for several hours whih was actually a good thing for my body. I'm gonna at least spend a little time reading posts and trying to catch up. Not to worry if I can't respond I know everyone understands.
God where did my life go? This disease really sucks!
Love and prayers being sent your way from oklahoma to Gods ears.
p.s. if any of this was rambling please consier the source! LOL. I'm ramble when I'm not on drugs.
Love ya all sooooooooooo much!
Hi sharen, I know exactly where it came from. It's called Lupus brain! My 2 grandbabies lie in tennessee too. but up in the far north west. I really want to see them so bad! I too would love to meet everyone but unfortunately I know it would be such a hardship for everyone. I have enough trouble going to the grocery store. I will try to catch up a little at a time though thanks. I just feel a little better right now and gioving back is to everyone that has been supporting me is the only way I can say thank you for all you do. You take it easy too!
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