In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Post Edited (okie) : 9/28/2007 4:33:12 AM (GMT-6)
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barbara... i hope your doing better.. its hard for me to post much but now that i had my thumb amputated i dont hurt as much... as far as your patches not sticking get little alcohol wipes and wipe the area before applying the patches... it should get rid of residue on your skin and help stick better.. as far as SSDI i applied in august of 06 and i didnt qualify for SSI either because we made too much but i was told that i qualified for SSDI and even if i hadnt worked 5 years they would lean back on my husbands income.. but anyways i was approved immediately for SSDI with the minor exception of not getting medicare until august of 08....well through a companay that keeps hiddeen secrets i found out if i was to be put into a nursing home with medicaid pending that i could get medicaid.. well of course i did it but normally it takes 30 days but i was there for 3 months.. and i left with medicaid.. all you need to do is contact nursing homes in the area who accept medicaid pending and they will help you out...thats what i did since i was unisurable... btw with the duragesic patches i went physchotic(SP?) because between the pred and the patches i went into steroid induced physchosis...so i went off the patches and i loved loved loved demerol... it did great for me... even after my thumb was amputated the demoral in the butt did me good...in the muscle makes it lasts longer...
have a question how often did you get your port flushed...because i now have one and i have had it flushed twicee...but the saline they flush with also made me so lightheaded....
anyways i hope your doing better or trying too... i know sometimes we feel like we're a burden to our family and sometimes get down feeling like it would be better off as us not being here... but trust me its not you thinking that its all the meds we're on......keepo your chin up..
((((Gentle Hugs)))) I just wanted to let you know your always in my thoughts and prayers sweetie. I'm sorry your having more problems on top of everything else.
When I used the patches I had to tape them on. I hope you can find one that will work right for you and give you the pain relief you so desperately need. The skin peeling where the patch is sounds awful. Bless your heart!
Hang in there sweetie and know you are loved and thought of often. Update us when you can and take care.
Love and hugs, Babs