tapering steroids

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Regular Member

Date Joined Dec 2006
Total Posts : 185
   Posted 10/1/2007 10:28 PM (GMT -6)   
im curious as to what mg you need to be down to in order for the weight to start coming off and the puffy face to disappear... i was on 60 mg since novemeber and in april went down to 40 then 4 weeks ago went to 30mg and now im down to 20mg...any clue as to when the unwanted buldginess will go down.. just curious thanks
DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage II Lupus Nephritis. mitral valve and tricuspid valve regurgitation, 9 tia's and one pontine stroke('06)Seizures('06)steroid induced diabetes and pancreatitis, Photosensitivity since childhood, vasculitis, gangrene left thumb had amputated aug of 07,had mediport put in aug '07, discoid lupus sept 07
Meds: Lisinopril,Hydrochlorithiazide,Keppra, Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet,Lidocaine cream, Xopenex inhaler, Xopenex Nebulizer, prevacid solutabs

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 10/1/2007 10:56 PM (GMT -6)   
Hi Amy,
Well, it really differs from person to person.  A lot depends on how much water you retain while on the high doses.  So each person will notice it at different amounts. But I think most people see a change around 10mg or less.  That is because you're entering the amount of cortisol that the body makes naturally, (5-7mg). 
I notice the puffiness start to go away when I'm at 10mg or under.  If I've been on 5 or 6 mg for a long time, and then all of a sudden I"m up to 10mg I notice a change in my face and overall weight about 3 weeks into the higher dose.
So, my best advice is to drink lots of water.  It will help with the water weight and puffiness.  20mg is still considered a high/moderate dose, so I wouldn't expect to see much change until you drop further. 
Hope this helps!
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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Date Joined Jul 2005
Total Posts : 5403
   Posted 10/2/2007 2:18 PM (GMT -6)   
Amy, I agree with what ginny told you. I don't think you'll see many changes until you get closer to 10mg or below. I notice that I get really puffy and round at anything over 10mg and I'm moderately puffy and round when I'm at 7.5-10. My goal and my rheumy's goal is to get to a 5mg maintainence dose, but I haven't been able to do it yet. I'm in the process of a very slow taper right now which will hopefully help me successfully get to 5mg.

I hope your tapering goes well - I know how frustrating the prednisone side effects can be.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/2/2007 4:20 PM (GMT -6)   
Hi Amy, bless your heart you've been on some pretty high doses for quite a while. It will take time like the others said. I don't usually notice it if I am on 10mg. but 5mg. is my "quality of life dose". Good luck with the taper and congratulations on getting down as far as you have! that's wonderful news. Don't worry about the puffy stuff it will go away. Just think about how great you are doing. I'm proud of ya keep it up!
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

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