Para esophageal hernia

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emmi
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Date Joined Apr 2005
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   Posted 10/2/2007 10:57 PM (GMT -7)   
Hi my friends,
 
Back from vacation (great time except when encephalopathy flared);after we got home had small flare and not enough rest to recover.  Following week had an Endoscopy and colonoscopy: I had a reaction to the colon. prep. but had both procedures anyway, took 4-5 days to get over procedures then out of town daughter and grandson in town, again not enough rest to fully recover. Today first day I half way can tell I might rejoin the human race. Tomorrow I'm scheduled for an eeg: I don't think I have any brain waves left for them to look at!!!
 
Anyway, one of the things the endoscopy found is a para esophageal hernia. Evidently this is different from a hiatial hernia (I have one of those already). Does anyone have one of these or has anyone heard of this? If so, would you mind sharing? thanks much!
 
Hope all/most were well or reasonably so while I was away--you remained in my thoughts and prayers. Glad to be back!
 
xoxo emmie 
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


AlwaysRosie
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Date Joined Jan 2005
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   Posted 10/3/2007 1:14 AM (GMT -7)   
Hi Emmie . . . . OH NO! You really paid for your "fun" !!! I'm so sorry all of this happened so close together. Urghhhh!! I know you enjoyed your precious company, but we really do pay for every little increase in energy expenditure!!

I'm sorry you have another hernia in there . . . what's the game plan on that? I don't know a thing about either.

Let us know how your eeg goes. I hope you've held your ground.

Thanks for the prayers sis!! I do pray for you and everyone as well. Sometimes, when I can't sleep, I think about how we keep each other bathed in prayer and it is a great comfort!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

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PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 10/3/2007 7:33 AM (GMT -7)   
Hi Emmi,

I don't know what a para esophageal hernia is, but I do have a hiatal hernia and reflux and I wouldn't wish that on my worst enemy. I hope the hernia they just discovered doesn't give you a lot of discomfort. Like Rosie, I'm wondering how they are going to treat it. I take a wonderful liquid rx called Green Lizard for my hernia and don't have as many ER visits as I did before my PCP prescribed it. It's a combination of an antispasmotic, an antacid, and lidocane which numbs the area. It has been a lifesaver.

When I googled para-esophageal hernia, I found the following explanation:

"What is a Paraesophageal Hiatal Hernia?

There are two categories of hiatal hernias, sliding or paraesophageal. With paraesophageal hernias, the gastro-esophageal junction remains where it belongs, but part of the stomach is squeezed up into the chest beside the esophagus. These hernias remain in the chest at all times. With this type of hernia, complications can occur. "

So you lucky thing, you have both types of hiatal hernias and I hope you can find a good gastroenterologist who can help you.

I'm sorry you're having such a rough time. I just hate it when we go through times like this when we try to get a little pleasure out of life and pay for it so dearly. Good luck with your EEG & let us know what they find.

It's good to have you back active again.

((((Hugs))))

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 10/3/2007 7:34 AM (GMT -7)   
P.S. Emmi, when you do see a gastro, please let me know what he tells you and how he plans to treat you.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 10/3/2007 7:05 PM (GMT -7)   
Hi Emmi--
Sorry to hear about the hernias. Esophageal problems can be bad. I hope you have a good GI guy that can take care of them. Maybe they can fix them surgically, it might be worth it. My dad has the sliding one and he is constantly battling with gastric reflux and its bad because if your liver is bad, you can die from GERD--my grandmother did. I will keep you in my thoughts and prayers. Sorry the HE reared its ugly head. Sort of more of a vacation than you counted on? Well I hope you are feeling better soon and that you get a chance to rest up after your trip.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
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emmi
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Date Joined Apr 2005
Total Posts : 1529
   Posted 10/3/2007 8:24 PM (GMT -7)   
Rosie, Pat, Marji,

Thanks much for your support (and for taking the time to do a search, Pat.) I do have a gastro and so far I really like her and have a lot of confidence in her. I have to go for a "lactulose breath test" in a couple of weeks to check for bacterial overgrowth in the small intestine (a lot of these GI problems are related to the scleroderma.) I don't have an appt. with her until after Thanksgiving (!!!!!!) but I'm going to call and request a phone call from her so we can go over all of this. After T-giving is too far off for me.

The eeg is just a routine part of following my progress or lack thereof as far as the Hashi's Encephalopathy goes. I see the neuro on that in a couple of weeks. Still fighting with the insurance company to get coverage for the IVIG infusions for that. So frustrating. Ah well.....

Take care and again many thanks for your help and concern. You pals are the best.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 10/3/2007 9:41 PM (GMT -7)   

Hi Emmie, boy I must be tired the first time I read your post I saw you were scheduled for an eeg tomorrow. I kept thinking how many brain waves does an egg have anyway? I'm like patty I have a hiatal hernia but unlike patty mine rearly gives me problems. They only found it because they were looking for somthing else. I'm glad you are feeling a bit like joining the world. It really stinks being in that "but I can't move mode' I hope you had a good time on your vacation though. Like the others said please let us know how the egg goes tomorrow and if it has any brainwaves left.

night my little chickadee! tongue

love ya

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
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hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 10/4/2007 6:24 AM (GMT -7)   
emmi, I'm sorry you have something new on top of everything else you already have going on. It sounds like you really haven't had time to recover from your vacation and other things you've done. I hope you can take some time now to get some real rest in and recover as best you can.

Please keep us updated when you are feeling up to it. You are in my thoughts emmi.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
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