Question about over-doing it

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 10/3/2007 12:09 AM (GMT -7)   
Can doing too much physical activity in one day cause Lupus to "flare" for weeks?  I felt fine the day of the activity (just felt worn out that evening, like anyone would after doing too much), but for the next 2 weeks (and counting), I've felt horribly fatigued, much more so than before.
 
Thanks,
-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, malabsorption/malnutrition, etc.
Meds:  Pulmicort, Claritin, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/3/2007 1:09 AM (GMT -7)   
Razzle,

That is my experience. Right now, I can walk about 1.5 miles, maybe 2 if I walk slowly and I'll be just a bit sore the next day. But I have been building up to that very gradually. I could actually walk about 4 miles, but that would definitely throw me into flare mode. about two years ago, I had been in my worst flare and I just could not get past the fatigue. I got on the treadmill and started with 1/4 of a mile. After a couple days of that, I upped it to 1/3 of a mile and that was either too much or too often. After several attempts (and failures) like that and no gain in strength, I talked to my rheumy about it and he said that we need to add teeny bits at a time and only after tolerating that 1/4 mile for a full week, too not jump up to 1/3. He gave me a percentage and I just can't remember what it was . . . it was minuscule. Anyway, he said that the activity "turns on" the immune system . . . which, in a healthy person, is good . . . but in a Lupan the activated immune system is likely to turn on our own healthy tissue (flare). Same with the sun, it just activates the immune system (good for most, bad for us).

He said it is GOOD to work toward this very gradual increase, but to really pay attention to our body each day.

I hope this helps.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/3/2007 7:41 AM (GMT -7)   
Razzle, I've had the same experience as you many times. My problem is learning to pace myself because when I'm feeling particularly good I seem to want to do all the things that I haven't felt like doing so I overdo it. And then I crash. So like Rosie, I'm trying to learn to pace myself more and to rest even on days when I'm feeling real good.

It sounds like you are listening to your body and getting into the rhythm of lupus and I believe you'll gradually come to learn to pace yourself. I still struggle with it.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


aree
New Member


Date Joined Oct 2007
Total Posts : 11
   Posted 10/3/2007 10:02 AM (GMT -7)   
I can identify with half a day of joy and a week of pain/fatigue - my 11 year old had a soccer game I loaded up on spf put on my hat and tried not to get to excited but I missed his luncheon the next day and felt like crap days after, I was not sure if it was the sun or being out the house at the event for 4 or more hours. I am learning to pace myself even though my family always urges me to stay (the infamous statement is- we have you it will be ok, we will take care of things) but I am always the one at home struggling with fatigue and trying to hide pain from my baby boy.  You seem like you are becoming aware that our limitations are different and we really have to follow our internal clocks...when possible an appearance has to suffice and closing down the event will be out of the question.  Please take care hope you feel better and more energetic soon. Thanks Aree
SLE, PULMONARY EMBOLISM, RHUEMATOID ARTHRITIS, PERICARDITIS, PLEURISY, OSTEOPOROSIS, ANTIPHOSPHOLIPID SYNDROME
PREDNISONE 20MG, METHATRAXATE 17.5WEEKLY, ACTENOL, HUMIRA, DIAZEPAM 5MG, WARFARIN 7MG, VICODIN ES OR DILAUDID 4MG FOR PAIN, FOLIC ACID, IRON, NEWEST DRUG RITUXAN

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 10/3/2007 10:55 AM (GMT -7)   
Rosie -
I think I remember when you first talked about % increase your doctor suggested -- I think it was 10%.....it may have only been 5 but I really think it was 10.....

It's hard to learn the right pacing that works for each of us. I usually try to stop whatever it is when I feel like I've done about 1/2 of what I could do. Of course, depending on the activity -- some things are really hard to stop when we should -- hard to watch 1/2 a soccer game once it gets exciting....

take care

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 10/4/2007 2:33 PM (GMT -7)   

Thanks for helping me understand this.  Unfortunately I had no choice about doing the activity - had to move stuff out of the way for a new piece of furniture that is a lot bigger than what was there before.

Thanks,


-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, malabsorption/malnutrition, etc.
Meds:  Pulmicort, Claritin, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 10/4/2007 7:22 PM (GMT -7)   
Yeah, sometimes life infringes on being ill. It's a drag, but there are some things we just can't avoid, even if we know they'll make us feel bad for a while. Thankfully, sometimes we do manage to avoid some things that are bad for us....

It's all an evil trick....just not sure who the trickster is....

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 11:31 AM (GMT -7)
There are a total of 2,734,160 posts in 301,185 threads.
View Active Threads


Who's Online
This forum has 151309 registered members. Please welcome our newest member, waterfall79.
375 Guest(s), 15 Registered Member(s) are currently online.  Details
momto2boys, Psilociraptor, Tagier, 81GyGuy, Jen77, Skyy, Loutucky, Girlie, pmm73, maria2016, quincy, catti, poopme, ljimd, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer