In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Hi. Thanks for the welcome. I did see my rheumatologist on Friday (for my regular checkup for my vasculitis). He was surprised at the biopsy (the report says "consistent with DLE"). I do get bloodwork done on a regular basis. When I was at my sickest with the vasculitis in 2002 the ANA was low? positive. A few workups after said equivocal. The past few years have been negative. The rheumy nows is trying to figure out if there is a correlation between my vasculitis and my DLE. He is getting a copy of the original biopsy for the vasculitis because he thinks, maybe, it could have been a misdiagnosis and maybe it was DLE even back then(?). He has always thought it odd that my vasculitis didn't manifest itself in any other way than with my skin.
The rash I get on my face is not a malar rash.
I do take Plaquenil for my vasculitis so if I have lupus, I am taking a drug that would be prescribed for it anyway. I will speak with the rheumatologist next week to see how my bloodwork is.
It is my daughter who has ulcerative colitis (not me). She is fighting a flare again and is on the hydrocortisone enemas.
However you are right, I am on plaquenil for my vasculitis. Except for the crazy, various spots I got on my body over the summer, I have been feeling fine. Since the weather has turned a bit cooler, all my rashes (although they are more like a spot here or there) are gone. I am still following up with my rheumatologist and will keep you updated.