Bx results/GI doc/Joint pain

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cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 10/3/2007 6:45 PM (GMT -7)   
Hi--
I got the bx results from the bloody spot in my small intestine and they didn't look like celiac.  I asked if it could be from my autoimmune disease and he said there are lots of AI things that affect gi and I guess he didn't think to check for that or something.  He said my diverticulosis was really bad for someone my age and that was suspicious.  so again, nothing, no treatement, no dx just maybe more tests in the future. 
 
I've been having another problem that I wanted to ask you all about, its joint pain and heat and swelling.  It seems like when I wake up from sleeping most of the time, either my knees will be in excruciating pain or like today my right elbow.  It was swollen and hot, but as I woke up more and moved it around and all the swelling went down quickly and the pain went away.  My knees don't clear up so fast when it happens to them.  Does anyone get this type of swelling that comes and goes so fast?  Somettimes I get it when I'm really tired or been out in the sun too, not only just after sleeping.  It's so weird because it goes away so fast but it hurts so much when I first get it.  Thanks in advance for any help you can give me.  I've never really took it seriously because it comes and goes so quickly, but my elbow was so swollen and red and hot this time that it seems to be getting worse and I'm wondering about RA.  My back is going nuts right now too.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


AlwaysRosie
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Date Joined Jan 2005
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   Posted 10/3/2007 7:38 PM (GMT -7)   
Sorry Marji . . . sounds rough for you.

My knees hurt sometimes, but I am a bit plump, so I'm not real sure if there is swelling. When my knees hurt, I sleep with pillows under the knees to support them and keep them bent a little. That seems to help . . . but I hate sleeping on my back so that is annoying . . . but no choice when all the hurting is happening. When my knees hurt, my hips are painful too along with other connective tissue stuff and my arms tend to go numb or pins and needles if I don't support them with pills as well. I have a real nest going on when I don't feel well. Anti-inflams round the clock is what helps me.

Hang in there and do call your rheumy to see what else you can do.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 10/3/2007 7:43 PM (GMT -7)   
I have reddness, heat, and inflammation in some of my joints- my hands are the worst. I was dx with RA from this. I have heard some other kinds of arthritis can cause the same symptoms though. I suggest taking pictures and also telling your rheumy ASAP because RA causes serious joint damage.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone


Trying2BFree
Regular Member


Date Joined Oct 2005
Total Posts : 251
   Posted 10/4/2007 8:04 AM (GMT -7)   

One of the main reasons my diagnosis was changed to RA was because my joints were doing as you described.  Mine are bad in the mornings, then get better, then in the early evenings they start hurting and stiffening up again.  Most evenings I won't sit down until 8pm or so because if I do, I know I won't be able to get back up.  I will stiffen up and my joints get sore quickly.  I have more issues with swelling at the end of the day rather than in the mornings.

As for your back, RA doesn't affect it.  It does affect your neck & hips though.  Another thought is that if your gate changes due to knee (or hip) problems, your back will give you trouble.

It's definitely something to bring up to your doctor.  I hope you feel better soon!


Jeannie 
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 15mg (RA); Metanx 5mg (RA); Orencia 750mgs (RA); Lunesta 2mg (as needed); Prevacid


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 10/4/2007 1:41 PM (GMT -7)   
Sorry about your GI problems Marji, as you know I can truly relate to what you are going on right now. I had a case of colitis not long ago and my doc is now convinced that it has something to do with the Lupus. I see my gyno next week to get a sonogram to make sure my IUD is still in place but I'm going to mention the pains to her as well. Maybe she'll look around while she is checking anyway. Still doesn't explain the blood in my stool but could be two different scenarios nonetheless.

I don't have too much trouble with waking up with swelling in my joints but stiffness and having a hard time moving my body when I first get up is a problem. In fact, my husband jokingly called me the tin (wo)man the other day because I couldn't move anything right away from my nap LOL.

"Des"
Co-Moderator ~ IBS Forum & Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/4/2007 8:13 PM (GMT -7)   
Thanks for all the great replies. LOL, des, I know how you feel. I'm walking like a have a big load in my jeans, my back is so locked up. My grandfather had RA and had all his finger joints and knees and hips replaced (I think hip?) well, whatever you could get replaced, he had it. They keep telling me its from my horse days but I didn't injure myself very much and definitely not in all theplaces I'm having it and it comes on so fast and intense, then goes away. Usually I wake in pain, like the joint is being torn apart and I lay there and try to wait till it goes away, moving it little by little and eventually it goes away. I sleep with pillows under knees and havent tried arms but sounds like a good idea. I was so stiff when I went to see the gi doc, he was really concerned, like what else could go wrong with me. Like one doc asked, "Does anything work right with you?" Ugh. It's pouring rain here and maybe that's it. the back half of my property is mildly flooded its rained so much. Well, thanks for the answers. It sounds like somme of you do have problems in the morning that goes away by the end of the day and I do have problems with stiffness toward the night. The funny thing is that only one finger is effected, mostly knees, big toes and now elbows. Thanks again and I hope you are all doing well.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 10/4/2007 10:26 PM (GMT -7)   
Hey Marji,

What a pain--get it? Oh, sorry--bad joke. Well, I'm glad the bx came back clear for celiac disease, But sorry that you have so much pain. I've got the stiffness too. I usually try to do some stretching in bed before I venture out of bed. It does seem to help (all except the bottoms of my feet; I don't know what to do for them yet.)

For my hands, my hand surgeon told me one of the best things to do is when in the shower take the wash cloth or sponge and squeeze it under the warm water. It helps with the pain, stiffness and the warmth feels soothing. Same thing for the back: stand under a nice warm shower or soak in a warm tub.

Feel better soon.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/5/2007 7:24 AM (GMT -7)   
Hi Emmi . . . the bottoms of your feet?? YES! I know what you are talking about. I had two years of dealing with that. Rheumy said it was plantar fascitis which is normally an injury . . . but in Lupus it can also be an AI attack of the tendons etc. in the bottom of the feet.

I was only able to semi-function because of some great trail hiking shoes (Montrail Trail Trecking shoes, Sierra Trading Post Outlet, online, had them for $39 - they are normally over $100). . . I found that if I put them on first thing in the morning, I was much better off. But making your way in the morning is very painful with that issue and standing after being seated for a while was also painful and it caused much hobbling around. I found that ice was my best friend. The cold did more to temporarily relieve the inflammation and pain than anything else. I know I've written this many times in other posts, but wanted to make sure that its communicated to you. It was also helpful to roll a tennis ball or a golf ball under your foot to massage that area.

The pain in my feet disappeared (after two years) abruptly after I had three days of extreme D and vomiting from an unknown cause. I don't know if my immune system was reset or what . . . but I had a good long break from most of my symptoms.

May we each have an immune system reboot!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/5/2007 12:29 PM (GMT -7)   
Thanks Emmi, Rosie, it is a pain. Makes running to the john difficult. It started before the immense rains started, so I guess I'm a barometer or something. I haven't had the feet thing in years, thank God, but used to roll pop cans under them. The big toe is a weird pain, like a ring around the joint squeezing. I hate arthritis. I wish I knew why all the sudden I was struck with it.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 10/5/2007 8:44 PM (GMT -7)   
Rosie,
I remember you having the plantar f. (not going to attempt to spell that!) and you loving those shoes! I know this isn't that, but yes, cold does make it feel better. We have hardwood floors with area rugs and ceramic tile in the bath. When I get up, I don't put my slippers on simply because I know that walking around on the cold floors (avoiding the rugs) will ease the pain on the bottoms of my feet! Oh, the things we do....must look pretty nutty, but who cares???

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 10/6/2007 9:11 AM (GMT -7)   
So Lupus can cause something like Plantar Fasciitis? Wow! I've had foot pain that mimics plantar fasciitis for several years, but the doctors couldn't figure out what it was from, since I hadn't injured my feet. Nice to know how this stuff all fits together. Thanks!
-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, malabsorption/malnutrition, etc.
Meds:  Pulmicort, Claritin, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 10/6/2007 9:40 AM (GMT -7)   
Hi Cured...

My Lupus affects my joints..... all over my body... My Dr. calls it Migrating..... my fingers, knees, just about every joint can swell and be hot... My fingers will actually draw down... to where I can't make it be straight because of pain....

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/6/2007 12:18 PM (GMT -7)   
Emmi . . . you are SO right! In the winter I stand with the arches of my bare feet on the sill plate of the outside door in the garage while I wait for the dogs to potty . . . that way I can skip the ice. Cold tile would feel good too!! At first I hated the ice and it actually brought tears . . . then it became my friend.

Razzle . . . YES! My first rheumy actually writes research papers and said that this plantar f. phenomenon is way under-diagnosed and it is a huge clue to indicate autoimmune stuff.

Weleetka . . . Oh . . . I can just picture your painful hands (((((Weleetka)))) . . . sending you some hot tea so you can hold the nice warm cup!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 10/6/2007 12:26 PM (GMT -7)   
Hi, Marji. Sorry you're still having SO much to deal with. Sometimes I just wonder why it is that I never get a break and I know you feel that too, especially times like now with so much on you. I'm sorry I don't have any suggestions for the joint pains you're experiencing. I only had joint pains one time and that was when everything was out of whack so the prednisone was started for me. I know I've suggested that "mean" drug before to you, but you can only take so much. Sometimes you just have to ask...do the benefits outweigh the risks? Maybe you will get to feeling some better when that rain lets up. We'll pray for that! I would love to take it from you. We haven't have a good rain here in months! Please rest and take care. Keep us updated.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/6/2007 5:35 PM (GMT -7)   
Hi Sharen, Emmi, Rosie, and Weleetka, thanks for your kind replies. I just would like to get a break, I hurt bad, but I am able to get up and out of bed a little easier lately, so that is good. I'm still in a lot of pain, but its not excruciating to get up and down, like it was and I"m a little less stiff. I broke down and took some muscle relaxers which usually make things worse because I have scoliosis so it throws my back out more not to have the muscles holding things in place. I'm trying to stay off pred till after the 13th when I see the new endo so my labs will be accurate because I think I have mild cushings. Anyway, I guess I'm a barometer now. These diseases just hit you out of the blue with the strangest things when you least suspect them, odd things that make you seem kookoo. They should write in the medical books, "causes a bunch of strange things to happen in any part of the body" because sometimes I think the docs think we are nuts. The bad thing is, I have such bad degenerative osteoarthritis, if I was a horse, I'd definitely be out to pasture or on my way to the glue factory. My boyfriend got an chameleon and it is the strangest thing, it looks like a big green leaf and has the funniest little feet and moves so funny. I don't like lizards, but have to admit this one is very cute and funny and smart too. What an odd little creature! It's nice to have things in the house to look at, I still can't go out and probably won't much after I depigment. Well, talk to you later and thanks for the shout!
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/6/2007 5:54 PM (GMT -7)   
(((((((Marji))))))))

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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