Hospital Again

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/5/2007 1:16 PM (GMT -7)   
Hello Everyone:
 
I just wanted to let you know that I'm back in the hospital.  My INR is 10.7 which is way way to high.  I'm feeling rough and the feel that I need to be here in the hospital in case I begin to bleed.
 
I'm having lots of pain in addition to my INR being high, which of course I've got a new team of doctors and they don't think I need to have a much pain killers as I normally would.  So I've got to wait until Wedsnday and discuss this with my regular doctor.  They removed my fentanyl patch last night and are just giving me oral meds every 4 hours.  Anway, they're giving me vitamin K and we have to wait for my INR to lower before I can go home.
 
Take care,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/5/2007 1:32 PM (GMT -7)   

Oh Barb, I'm so sorry you have to go thru al of this. I really don't understand why doctors are so quick to change meds. Obviously your doctor has you on them for a reason. So I take it that your doctor is out of town or somthing? I really don't understand all the things that go on with your blood but I know it is not good. Is there some way you could throw a bed pan at your new doctor until they give you some good pain meds?

take care

sending love and prayers

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 10/5/2007 3:07 PM (GMT -7)   
I had to go look this up, here is what I found:

Most laboratories report PT results that have been adjusted to the International Normalized Ratio (INR). Patients on anti-coagulant drugs should have an INR of 2.0 to 3.0 for basic “blood-thinning” needs. For some patients who have a high risk of clot formation, the INR needs to be higher - about 2.5 to 3.5. Your doctor will use the INR to adjust your drug to get the PT into the range that is right for you. A prolonged, or increased, prothrombin time means that your blood is taking too long to form a clot.

BUMMER, Barb!

(((Barbara Lee)))

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/5/2007 6:02 PM (GMT -7)   
Hi Barb,
 
Oh, girl, I know exactly what you're dealing with.  How often do you normally get your INR checked?  Have you gone a while between tests?  One of the reasons why your doctors might have taken you off that medication is that it might react with your blood thinners.  So they want to normalize you as quickly as possible and then reintroduce that pain med and keep a close eye on your INR. Just a thought.
 
After I had that drug allergy back in June, my INR went up to 6.4.  I was also given vitamin k.  Ever since that happened, my INR has been all over the map.  We can stabilize it at all.  I'm getting poked 3 times a week, and that's been happening for 3 months now.  I'm absolutely SICK to death of all this. One day it will be 4.2, we'll adjust the dose, and 2 days later it's down to 1.5.  That was this week.  So it's a total gong show. mad And the adjustments are teenie-tiny!  BAH!
 
So I'm here if you need some advice or encouragement about this okay.  I really know what it's like to have issues with blood thinners.  Are you on Warfarin/Coumadin?  Or Heparin?  I'm on Warfarin.
 
One thing to remember, and I'm sure you already know, but make sure you don't make any drastic changes to your diet.  Anything with vitamin k in it will make your blood too thick.  Spinach, leafy greens, kidney beans, some fruits, etc. You'll be okay, and things will normalize soon for you.  It's a good thing you're in the hospital.  Very smart.
 
Take care Barb,
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/5/2007 6:45 PM (GMT -7)   
OH Barb . . . . I'm so glad there are people here who know about this topic. What a great place this is!!

I'm sending you a great big hug dear sister. I'm so sorry your dominoes just keep tumbling. Someone needs to run ahead and stop them for you!!!!

I hope you are resting well while you are there . . . but I have a feeling it is very interruptive as most hospital stays are.

Pain meds lowered???? Ouch . . . maybe Ginny's got a point here. I'm so sorry Barb . . . sending you a prayer and some hot tea!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 10/5/2007 10:12 PM (GMT -7)   
Barb,
I'm so sorry you're having more complications to deal with and that you are back in the hospital. And on top of that you have pain to deal with. I hope they can get this under control soon so you can get as comfortable as possible. You know you are always in my thoughts and prayers, sweetie. Take care.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/6/2007 10:12 AM (GMT -7)   
Hi Barb, well it's been a day since I checked on ya so pretend like I am at the hospital sneaking you in some of your favorite carry out food. I'm sure they did some blood work on you already this morning. Hopfully things are going in the right direction. I hope the pain has not been too unbareble and you have been able to rest.
love
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/6/2007 10:18 AM (GMT -7)   
Barb, you poor thing, I just read this post and I just about cried when I heard that you're back in the hospital. Honey, you just need a break from all of this and I wonder how you keep going. But then, I know you're strong and that you have a family who loves you and supports you and is there for you, so I know you can do this. And all of us here love and admire you. Be sure those nurses take special care of you!
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/6/2007 10:19 AM (GMT -7)   
Well, my wrist inadvertently send my message even though I wasn't through writing.

I'm thinking about you a lot Barb and praying that your test results improve and that you get to go home real soon.

Love you,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 10/6/2007 12:16 PM (GMT -7)   
Bless your heart!!!!!!  I am sorry to hear that you are not well again.  You will be in my prayers and hope that your lab works will back to the acceptable level and will go home soon.  Hang in there.
 

sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 10/6/2007 12:48 PM (GMT -7)   
(((((Barb))))) I just hate that you are having to go through this again. I really don't understand why some people have it SO BAD and others just skate through life without a care in the world. It just seems SO unfair! I hope they can get everything leveled out for you quickly so you can get back home. I pray that they will keep you out of pain through this process though. I'll be remembering you in my prayers,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 10/6/2007 2:53 PM (GMT -7)   
I just tracked down Barbara and she has been released under her own recognizance (i.e. w/promises of good behavior), so at least she's home w/access to her pain meds.

I imagine she'll be posting or on chat when she's up to it.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/6/2007 4:36 PM (GMT -7)   
Thanks Lynnwood!! how kind of you to update us!!!

Barbara . . . rest well sis!! Hurray for pain meds!!! None of us like to use them, but when we need them, we need them. So glad that you were well enough to come home. Take care Barbara!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 10/6/2007 5:49 PM (GMT -7)   
((((Barb))))  Bless your heart!! I hope you are doing a bit better at home with your pain meds and your INR is much lower now. Hang in there sweetie and rest. You are always in my thoughts and prayers.
                                        Lots of love and hugs, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/6/2007 7:57 PM (GMT -7)   
Thanks Lynnwood. That's great news. I know Barb is always so much more comfortable at home.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/7/2007 6:54 AM (GMT -7)   
Barb, I'm sorry I got to your post a little late. I'm really sorry you had to go into the hospital again and that your labs look so bad. I was frustrated for you about the whole pain med thing, so I'm glad you are home where you can hopefully be more comfortable.

Barb, you are always in my thoughts and prayers. I hope you are getting well taken care of at home and that your pain is under control.

Lots of love,
Hippi
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/7/2007 10:45 AM (GMT -7)   
Hi All:

Just wanted to say I came home yesterday. I'm not feeling to good, so I'll post more later. Just wanted to say thanks for all your well wishes.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 10/7/2007 11:33 AM (GMT -7)   
(((Barb))),
    Your in my thoughts and prayers sweetie. I hope you get some relief soon.
                                            Love and hugs, Babs
 
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/7/2007 3:17 PM (GMT -7)   

Hi Barb--

I haven't been on much, I have been having back trouble and having trouble sitting up and laying down and standing, basically just living.    Certainly nothing like you are going through.  I'm sorry they cut the pain meds,  is there a reason why they don't cut back on the blood thinner?  It sounded like it was too thin?  I don't know anything about this, but if its working too well...  It seems the pain meds are always the first thing they want to take away.  I hope you are ok coming off the fentanyl, I know I hit my klonopin a little extra during that time.  And I hope you are comfortable at home and getting a chance to be back in your own bed with your family is the best medicine.  I hope that maybe your new doctors will give a new perspective and more treatment options overall.  I've never heard of pain meds thinning the blood, unless they contain aspirin, but fentanyl doesnt and if anything, I would think it would dehydrate you and thicken the blood.  Antihistamines, which they mix with narcotics, do. Well, I hope what they are doing does the trick.  I will keep praying for you Barb, and keep you in my thoughts and sending good wishes for you to get better coming your way.  I just know you are going to get through this trouble and get back on track healthwise.  You are so strong.  (((((hugs)))))


Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/7/2007 5:22 PM (GMT -7)   
Good Evening:

First off thanks for your posts and prayers. I know it seems like I'm always asking for support or I'm complaining most of the time. I'm going to sincerely work on not being so negative all the time. To answer your question Ginny and Marji. I take coumadin and they did stop my blood thinners. Until my levels return a safe level I'll not take any blood thinners. Marji the new doctors were only available to me during my hospital stay. This isn't a permanent change in doctors. I know it's hard for everyone to understand how my doctors work. The military system is different the civilians. Overall, I'm very pleased with my regular internist and she's very good to me. I'll be seeing her on Wednesday. The trouble I have with military teaching hospitals is when you need to be in the hospital you get the admitting team of doctors that are on duty for that week. The will contact and seek help from my normal doctors but the admitting team overall has the say of what will happen with me at that time. I hope that helps clear that up a bit.

As far as how I feel, well lets just say I'm here. At least my Nascar driver won today at the race. My hubby is now officially retired from the Air Force and we've had our last regular paycheck. Next month starts the retirement checks. Still no word from the judge that oversaw my hearing. I sure hope it doesn't take 8 weeks to get a decision. Oh well, other than my doctors appointments this week, the only thing I need to do is find shoes for Nikita. She's decided she's going to go to the homecoming dance. It's semi formal, it's hard to believe my baby is growing us so much. She got a short black halter top dress with sequins on the bust, it was shocking to say the least. So we need to find silver shoes and a handbag this week. Wish me luck, since I really don't feel like shopping. Hope you've all had a good weekend. May your week be good and pain free. Thanks for being here for me I love you all lots.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 10/7/2007 6:08 PM (GMT -7)   
Prayers for you, Barb! I am so sorry to hear you are back in the hospital - here's hoping and praying for some help and painfree times for you.

Love always!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/7/2007 6:35 PM (GMT -7)   

Hi ya Barb, I hope you are doing better now that you got to your meds. I always forget that you get treated at a military hospital. I know when my hubby was there they had 3 difference doctors in 5 days because he went there on a thursday so with the weekend and monday. Yep. I get it. Anyway, It's pretty dog gone hard to be upbeat when you are so sick. Plus your head wants to do one thing and your body wants to do another. You need to be able to come here and talk about what is going on with you. So Nakita has a halter top outfit huh? LOL I guess that would be a shocker for mom. Good luck with the silver shoes and purse. I bet she will look gorgeous! Is dad going there to follow her around and chase the boys away? I hope you are able to find what you are looking for at the store quickly so you don't have to shop too long. Shopping can be so hard on ya.

thanks for updating us

love and prayers

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/7/2007 7:02 PM (GMT -7)   
Hi Barbara . . . I'm sending you a little shawl to go with that beautiful dress! Is there enough time for you to shop online and have it mailed? If not, maybe Nikita could go with a friend and bring home some selections for you and her to go over together and then return the items not needed. I'm worried about you going shopping any time soon.

You don't complain at all!!! You are just keeping us updated. We really do like to keep up with everyone's issues and it helps us to be able to encourage you. There is a difference between complaining and letting people know you hurt.

I hope you sleep well tonight sis!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 10/8/2007 8:58 AM (GMT -7)   

Barb,

I forbid you to feel like you are being too negative here or to feel like you are always asking for help. We love you and care about you so much and we are the ones that you CAN be negative with and ask for help and we will hug you up and make you feel better : )

You are a constant in my prayers dear one and I hope that you are feeling better soon.

Darlene


Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/8/2007 9:50 AM (GMT -7)   

Hi Barb, I was just wondering if you and your daughter  found what you were looking for. with the shoes a purse. I hope you didn't have a hard time finding the right things and you were able to enjoy spending time with together.

love and prayers

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 

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