Seasonal changes and lupus

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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 10/7/2007 9:16 AM (GMT -6)   
Somewhere in my foggy brain I'm trying to remember if someone else wrote about this not too long ago, but I can't remember, so I'm sorry if this is a repeat.  I was just thinking of this because it seems like a lot of people have had flares lately.
I was just wondering if any of you think the changing of the seasons from summer to fall and fall to winter, etc, etc are hard on your body and make your symptoms flare up some.  Or, do we just feel rotten a lot of the time and don't know if our symptoms are related to seasonal changes.
In Iowa, we've had one heck of a time trying to make the transition from summer to fall.  It's cool for a few days and then it's back up in the mid to high 80's for a few days.  This cycle has been going on for over a month and I'm SO ready for consistent cool weather.  I feel like this constant back and forth of the weather had been hard on my body and is bringing out lots of aches and pains.  Is anyone else having a similar experience?
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 10/7/2007 9:54 AM (GMT -6)   
Hi Hippimom,
Oh yes, I notice that too. When the barometer is doing a crazy dance I notice my fibro get worse for sure.  The headaches are bad too.  I'm in "chinook" country out here in the Rockies.  When one of those big winds blows over the mountains, I am sick 2 days before it blows through.  I'm like a walking weather station... Hehe.. 
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 10/7/2007 10:01 AM (GMT -6)   
Hi Hippi, well we finally found one thing we don't have in common. I hate the cold weather! I do have to say though that this summer hasn't been anything to cheer about either. Last year was the first year my pcp said she thought I had lupus so I really don't know what to expect. I actually cheated and spent 6 weeks in arizona when it was really cold in oklahoma. I will be keeping track of it though. Maybe I will find that my winters aren't as hard on me.
Like you said though it seems everyone is really having a hard time right now. For me though it's my lungs so hey who knows maybe this new rheumy will tell me I don't have Lupus after all!!!!!!! Since the old fossil I had was no help. Wow than what would I do? After getting to know all of you so well. LOL this has absolutely nothing to do with your question I know. I just had to down the pain killers and pred. just to get to church this morning. So now my brain is off to the races.
I hope the weather calms down for you and your flares will be less frequent. It's doing the same thing here. Not at all like an oct. day in oklahoma. Still way above average.
Love ya
God Bless
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

Regular Member

Date Joined Jul 2007
Total Posts : 261
   Posted 10/7/2007 10:49 AM (GMT -6)   
Hi, Hippi. I was just diagnosed with lupus early in '06 and it only really started flaring wildly in late '05, so I don't guess I know for sure about the weather change effecting things. I have noticed just since this "cooling" pattern (if you can call it that) has started, my nose is already started to stay really stuffed up all the time like I'm heading for a cold. Fortunately, I don't deal with too many aches and pains right now. It only gets cool here at night and in the early morning, but it has been enough to really worry me about what I will face when the real winter weather comes this year. During my first appt. with my new rheumy back in June, my nose was really stopped up then and he even commented about how bad it was while doing my exam (and it was nothing then compared to what it's already like now). He mentioned about my having the sjogren's antibodies and that could be the cause. I have wondered if anyone else specifically deals with a stuffed up head, congestion, or cold type symptoms on a regular basis. If it's doing this now, I don't know how I will keep it clear enough to breath this winter. My previous rheumy suggested a humidifier, but using those always makes me sicker (with really bad cold symptoms). Maybe we'll get different experiences from others. Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 10/7/2007 1:32 PM (GMT -6)   


   Great topic! I can definately feel the season change. I love the cooler weather but here it has been in the mid to high 80's during the day and in the low 50's at night. My body feels like its going to rain everyday lately. It is very humid during the day still. I think once the cooler air is here during the day and night it will get better for me, anyway.

   Hang in there, hopefully it will get better soon...((Hugs)). Take care and keep us updated. You are in my thoughts and prayers.


 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Regular Member

Date Joined Jan 2007
Total Posts : 135
   Posted 10/7/2007 3:37 PM (GMT -6)   


The weather here has been in the high 80's to 90. And it's supposed to be in the 60's right now. It's like Fall will never come. Plus the humidity went way up too. When the weather get hot after a cool off period my body goes on the fritz. I flare like crazy. I hurt all over and my joints hurt bad. I feel like a flu is coming on. Sometimes I get a slight temp. And then my face breaks out. It sucks!!! i can't wait till the cool weather comes and stays. I'll feel better. Let it snow let it snow let it snow! LOL.


Polycystic Ovarian Syndrome 1992, Restless leg syndrome 1998, SLE '07,
Arthritis '07 ....Plaquenil, Relafin, Folic Acid (for mouth/nose sores), Multivitamin, magic mouthwash, Prednisone.

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