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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/7/2007 3:02 PM (GMT -7)   
I have been trying so hard to stay upbeat and I don't want to complain, but I feel like I'm heading into one of those downward spirals both physically and emotionally and I just came here for a few shoulders to cry on.  I have no idea what is causing all of my symptoms and maybe I don't need to know.  Maybe it's the wild weather fluctuations, maybe it's that I've been really busy and I'm stressed about my son, maybe it's that I've started on my slow prednisone taper, or maybe it's D: all of the above or E: none of the above.  Everytime I start feeling better it seems like something else crops up and I get worse again.
 
Yesterday morning my daughter had a dance performance outside at a fall festival and instead of fall weather, we had temps in the high 80's with lots of humidity.  I stayed in the shade most of the time, but I was in and out of the sun here and there.  We also did a few activities for my daughter's birthday.  I felt myself getting sicker as the day went on and took pain killers to get through the day.
 
Today I'm miserable and have diarrhea again and a headache and a fever.  The thing that worries me a little is that this afternoon my d- was tar black (sorry for the graphic description) and I know that can be a sign of some bad GI stuff, so I will definitely keep an eye on it.  Maybe it's just from the chocolate cake we had for my daughter's b-day.
 
What I need to do is force myself to stay in bed for a few days during the day while the kids are at school and let everything else go.  Then if things don't get better I think it's time to call my rheumy.  I wouldn't think my prednisone taper would be causing this.  I've gone from 10mg daily to alternating between 10mg and 7.5mg every other day.

Thanks for listening.  I do realize that I am very fortunate so far with my lupus that even though it makes me feel miserable, nothing I've had with it has been life threatening and I know a lot of you here are dealing with really serious health problems.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 10/7/2007 3:28 PM (GMT -7)   
Hi hippimom--
Sorry you are having a bad time of it. This GI stuff, I'm beginning to wonder if it isn't a flu or something. My bx came back "inflammation" and thats it. I think I've developed an allergy to chocolate, unfortunately. It seems I always get sick when I stop prednisone, but not while I'm on it, funny enough! I figured it'd be the other way around. Maybe that's all it is and it will go away soon, once your immune system gets ramped up a little more. I think you are right that all the little annoyances can really get to you after a while. It's like life is just an obstacle course and we are constantly dodging this affliction and that. I'm glad you posted and I hope that your meds are helping and you get the chance to rest. Usually it takes me a few weeks after prednisone to get "normal sick" again and then I have a good spell for a while after that. I hope that you get a good spell, I don't know if it is cold where you are at and if you have a fireplace, but if it is and you do, I'd be lighting that fireplace and sipping some warm something (I used to like hot cider) in front of it. Take care and know I'm thinking of you and will pray that you get better.
Love, Marji
--Doctors are men who prescribe medicines of which they know little, to cure diseases of which they know less in human beings of whom they know nothing.--Voltaire (1694-1778)
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Klonopin, Soma, Ultram, Vicodin, Restasis, Albuterol,steroid injections, Protopic & Triamcinolone Acetonide ointments


Leta
Veteran Member


Date Joined Aug 2005
Total Posts : 590
   Posted 10/7/2007 4:28 PM (GMT -7)   
I am so sorry you are having this flare. It seems like many of my fibro friends from another site are in one heck of a flare too. I know you are ill but just because your labs may not show much does not mean that you are not ill. I too, with my labs show good but I show symptoms out the wazoo. You also take care of your family, and one sick little boy. redface As I am sure you do your best and too much, pamper yourself with lots of rest, good movies in bed, hot baths or whatever you need to do to get better.

I know the doc is trying to cut your prednisone down but have you spoken to him about going down maybe 1/2 mg at a time until your body can adjust to the change?

I am sorry I have not been here, as I have been on bedrest for a month. I get up and move and my body rebels.
I just want you better, all of you as I miss you all. sad

Leta :-)
sle 01 w/cns/autonomic 11/05, photosensitive 04/04, sjogren's 01, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, multiple allergies 6/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06-gone, TIA 5/06, Porphyria 5/06, Vitamin D deficiency 4/07, Iron deficiency ferritin 8/07, Chronic migraines 01. Meds- baclofen 40 mg, prenatal tabs, potassium, calcitriol 50 mcg, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 400 mg, darvocet 100 mg, percocet 5mg, amitriptyline 10mg, chromagen, verapamil 40mf, Amitriptyline 10 mg. <font color=...></font> Purple Text


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/7/2007 4:38 PM (GMT -7)   
OH NO Hippi!!!

That tarry poo means bleeding higher up in the GI tract (unless of course the chocolate cake came coursing through your body to confuse things). You really need to talk to your doctor in the AM or even go to ER tonight. The pred taper really could be a big part of this.

Of course you wanted to see your daughter's recital and celebrate her b'day!!! (umbrella is my standard companion ALL summer). YES . . . the heat was more like August!!! You cooked yourself girl.

Remember LOTS of liquids . . . good old water and even try some gatoraid or juice if you aren't eating . . . it might give you some strength.

Please don't wait a few days to see this thing through . . . you need to decide to go to ER tonight or talk to doctor in the AM . . . . you have some really bad stuff going on.

Update as you are feel up to it sis.

Prayers and blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/7/2007 4:56 PM (GMT -7)   
Hippi:

Honey I'm sorry you're having difficulties. The tar looking stool is something to be worried about, just what you need is something to worry about on top of things. Please make sure you contact you doctor regarding this. I'm sure you enjoyed your daughters recital and b-day but like Rosie said you most likely cooked yourself.

Know that I'm here for you whenever you feel like you need a shoulder to cry on. I'm always here for you honey. I know my email isn't listed, but if you'd like to have it I'll make arrangements to get it to you. Sometimes it just nice to chat with some one and I'd more than be willing to give you a phone call at anytime.

I hope you've had some rest today and awaken in the morning feeling better. I agree that you should just rest once you send the kids off to school. The household things will be there for another day. Try to remember spending a few days resting is better than pushing yourself and making yourself sicker. I truly understand how you feel and I wish I could do more for you. Just know that you're in my thoughts and prayers everyday.

Hugs to you,

Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 10/7/2007 6:05 PM (GMT -7)   
Thinking of you, hippi, and hoping you get some time to rest and de-stress this week. I bet it's the stress of your son's illness & the unknowns there that are pushing you over the edge. Just doesn't seem like the right time for pred decrease.

(((hippimom)))

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 10/7/2007 6:13 PM (GMT -7)   
Hi, Hippi. ((((Hugs)))) I'm sorry you are feeling SO poorly. You do have a lot going on at once. Aside from the regular stress of your disease and the worry over your son, it sounds like there's more in play. I would have to question my rheumy about a drop of 2 and a half mg (even though it's every other day) being slow. I've read that when you go below 10mg prednisone, you should only taper 1mg at a time. I'm tapering now from 9mg and I was so concerned over that pain in my chest coming back, I asked my rheumy about doing the taper to 8mg every other day. He said that was the equivalent of taking 8.5 daily, but he agreed with no problem. (I've already had 2 EGD's trying to find the cause of that pain with no success.) So you might consider calling your rheumy and try to work out a slower taper. Also be sure to advise them of the extra stress and worry with your son right now. Stress while tapering can cause problems before you even get started. I also agree with what others have said about the black stool. That could be big problems. I hope you will call your rheumy and see what they advise. Please do rest when you can, but do consider giving your rheumy a call. Take care and keep us updated.
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 10mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 10/7/2007 6:15 PM (GMT -7)   
Hippi please try to stay in bed for a few days and get well. You really can try to control some of these flares sometimes and it a good idea to try.

You spirit is inspiring! Watch out for that sun!

Prayers!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/7/2007 6:21 PM (GMT -7)   

Oh ((((((Hippi)))))))), bless your heart! You sound so miserable. I am with the others about seeing your doctor. Are you on any anti-d's? I'm glad you came here to talk about what your going through. I know you can't wait for the weather to cool off and some sun to hide behind the clouds. I applaud you for making it through your daughters program though. I was reading what you wrote and could invision every muscle in your body hurting. Like Lynnwood said may this isn't the time to try to decrease the pred. You might want to wait until the weather changes a little. Sleeping when ever you can is always a good idea. After all you tell me that all the time! Please don't wait too long to see your doctor. My prayers are with you and your son. BTW I don't think you ever complain so please don't worry about that.

love ya

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 10/7/2007 8:28 PM (GMT -7)   

hippi

    black,  tarry stools are nothing to ignore.  You need to let you doc know.  Please take care of yourself.  Chocolate cake may cause diarrhea, but not black,  tarry stools.  In my thoughts and prayers,   Judi


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 10/7/2007 9:47 PM (GMT -7)   
Hi hippi,
You have way too much going on, hun. I'd say I agree that now might not be the time for a pred taper or if you do, you need to do it in much smaller increment at a much slower rate. I also think seeing the kids off to school, taking some nice juice to your room and resting is a super idea. At lunch, get up and have some yummy fruit or yogurt...whatever sounds good and some more juice, tea or water. Then back to your room with you. Set the alarm for when the kids are due home.

Plan dinners that take minimal preparation or ones that hubby can do while you spend some time some time with the kids, helping with homework, visiting, whatever. Give Josh some special attention with his aches and pains with some heat or ice whatever helps him. Then read with your little girl. Eat...bedtime. Talk with hubby. Bed for you.

Oh, aren't I bossy??? As far as the stools go, see how it goes for a day or two. I've had the same thing, only to see it go away. If it persists, then by all means call and tell them how long it's been going on and that you want to see someone ASAP.

Okay, after this long post you're probably exhausted. OH, another thing to consider is an anti'depressant. I know you've said that they don't agree with you. There are several new ones out. Tell your doctor which ones you've tried and the trouble they gave you. Ask if there are any others that are chemically different or work in a different way that you might try. With all you have happening in your life, this might help you a lot. (I know mine does!)

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 10/8/2007 8:55 AM (GMT -7)   

Oh dear one!

I am so sorry to hear that things are so hard for you right now. I am having a hard time too, so my brain is thick and sticky and can't think of comforting things to say.

I am thinking of you, praying for you and will be waiting to hear that all is ok with you.

We try so hard to be what we think we should be, when all we really need to be is just exactly who we are.

I have no idea where that came from, I think its me talking to myself. I just know that I can't keep pushing it and ending up so sick like this, and it sounds like you are doing the same.

Please post after you go to the physician.

Did your bowel trouble clear up in between the diarrhea and the dark stools? Sorry for graphic nature, but do you have mucus in your stool or abdominal pain? I know that prednisone can affect the GI tract in a bad way, so please make sure that you get it checked out ok?

Will be sending incredilby strong healing thoughts your way all day!

Darlene


Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/8/2007 9:39 AM (GMT -7)   

Hi Hippi, I just wanted to check in with you and see how you were doing today. Did you contact your doctor? Please keep us updated. We all love you very much!

love ya

carol


God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/8/2007 10:13 AM (GMT -7)   
I'm overwhelmed by the support and response from everyone. THe good news is that even though I still have diahrrea, it is no longer black, so I have no idea why that happened yesterday. My stomach is a mess though and if it doesn't get better in a few days I guess I'll head to the doc. Last night was one of the few times I actually got scared because I felt so sick. I knew I wasn't going to die, but I sure felt like I could.

I went to bed shortly after I posted last night and then I did go back to bed after the kids got off to school. I'm planning to head back to bed for a little bit before the kids get out of school. We have a meeting set up with Josh's school after school is out to set up a plan to help him be more comfortable at school. It took a long time to set it up so I hate to cancel it.

After reading all of your responses, I do think this is probably not a great time to try to taper my prednisone - I just really want to get to a lower dose of it so badly. I think I probably need to stay at 10mg at least through October. Also I probably need to get in to see my rheumy or maybe even just one of the PA's if he can't see me. I'm going to give it a day or two to see if some intense rest helps.

I do think I continue to try to push myself but it's so hard not to when I have two young kids and I want their lives to be as normal as possible. I have to remember that my kids just enjoy being with me and they enjoy snuggling in bed watching a movie just as much as doing something else. emmi, I loved what you proposed and it sounds heavenly - I think I'll let my husband read it. He's very supportive but isn't home much during the week.

Thank you to all of you who took the time to respond - I want to say something to each of you, but am getting really tired again. Everything you wrote means a lot and I know that a lot of you who responded are very sick yourselves, so thank you again. I'm off to bed again.

Lots of love,
Hippi
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/8/2007 10:22 AM (GMT -7)   
Hippi,

I'm sorry I haven't been here for you but I think you know I've been thinking about you. I'm so relieved to hear you say that you aren't going to taper right now. I think that's a great idea. I sure do understand how much you want to get off prednisone because I feel the same way, but it's just not worth tapering while you're in a flare. I thought I was over my 3 year flare until I awoke yesterday and the steamroller had rolled over me again. Take care of yourself and let's just rest till we feel better. I loved all of the comments and suggestions you got.

You're in my thoughts and prayers Hippi,

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 10/8/2007 11:53 AM (GMT -7)   
(((((Hugs))))))) I hope you feel better soon. Stay resting. I also think that going back to 10mg is a good idea. You are in my thoughts and prayers.

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/8/2007 1:05 PM (GMT -7)   
I'm glad you are resting Hippi!!! Keep telling yourself that the more you rest now, the more available you will be for your family later. MONTRA The more you rest now, the more available you will be for your family later.

Emmi's post was perfect!!! Kids remember that little stuff and story books in bed are great too.

More tea for your sis . . . and ice and lemon if you want!!! :-)

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 10/8/2007 6:04 PM (GMT -7)   
**Hippi** I read your post last night but didn't have a chance to respond but I wanted you to know you have been in my thoughts and prayers. I am glad to read today that you no longer have the black stool, that happened to me once when I took some PeptoBismol, scared me to death! I agree with you that if you continue to have diarrhea, you should see the doctor, you may even need to see a GI doc. You know I have so many GI probs I think it's safer to go straight to the specialist!

Take good care of yourself and know you are in my thoughts and prayers. hugs and love
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 10/10/2007 2:54 PM (GMT -7)   
(((Hippi))) I'm so sorry that I am now just seeing your thread. I have not been on too much for the past week so I got so behind and I'm finally catching up. I am so worried about you. You have so much going on right now with everything and it sounds like you and your body is very overwhelmed. I feel for you because I remember how hard it was with one young child and you have two to care for and one that is having a hard time himself. I wish I could be there to help you out.

I hope that you haven't had any more black stool incidents. Blood is a possiblity but I hope that maybe it was just discolored from meds (I too had the Pepto scare). Big hugs to you Hippi... please get plenty of rest!!

"Des"
Co-Moderator ~ IBS Forum & Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/10/2007 3:24 PM (GMT -7)   
Hippi, I'm worried about you and hope and pray that everything is ok. The only times I've seen you stay away this long were when you were either on vacation or having a bad flare. I just hope you're feeling so good that you've been playing for all this time, but I doubt it. You're in my thoughts and prayers.

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 10/10/2007 7:57 PM (GMT -7)   
Hi Hippi:

Just a quick note to say hi, I'm thinking about you and hoping that you're feeling a bit better. It sounds like you're trying to get extra rest. I hope that this flare settles down really quickly for you. I'm so sorry that your stomach is so bad. If it's no better tomorrow I hope you'll call you Dr.

Lots of hugs, and prayers coming your way.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 10/10/2007 8:11 PM (GMT -7)   
Hippi,
   I'm sorry I'm so late responding to this tread. It sounds like you have been dealing with alot lately. I agree you may need to see a G.I. doc to get things checked out with the stomach and bowel issues you have been having. I hope you are resting and feeling a bit better by now...((Hugs)). Please rest and take care. You are in my thoughts and prayers.
                                                                     Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/11/2007 4:10 PM (GMT -7)   
I just wanted to let everyone know that I'm slowly starting to feel better. I've been resting a lot and doing very little - my body wouldn't let me do much else. Being back at 10mg of prednisone everyday is helping and my pain and my diahrrea are getting better. Of course the fatigue is hanging on, but I can deal with that. I think I must have had a really bad reaction to the sun when I was in it for my daughter's dance performance - I was in it longer than I realized. Either that, or I had the flu which is also possible - I had a lot of chills and headaches too.

I'm just relieved to be starting to feel better. Thank you again for all of the support and kindness - it's one of the things that keeps me going. I don't know how much I'll post tonight, but I will at least read some and try to catch up.

Lots of love,
Hippi
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/11/2007 6:00 PM (GMT -7)   
Great Hippi! Thanks for the update. Be careful so you continue to improve!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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