more problems with AVN

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Regular Member

Date Joined Oct 2003
Total Posts : 262
   Posted 10/8/2007 10:14 PM (GMT -6)   
hey all,
its been a little while since i've posted, i guess i am doing ok, the docs say that we have the go ahead to start trying for a baby, so i have to start coordinating with my transplant nephro, my neuro, and i see an ob/gyn in about a week.  but my primary care doc told me that i am being to show signs of AVN (avascular necrosis) in my hips and ankles, and for any one who does not know the only thing to do to fix it is with replacements, and i already have it in my knees, so now i am gonna have to see another ortho surgeon so they can take a look at my knees.  its really hard to walk and my pcp has started prescribing me percocets to help ease the pain when i do walk, which is only for short distances.  What kills me is that when i walk in to a store and as if any of the motorized wheeler chairs are available they always ask who its for then look at me strangely when i tell them its for me, they are probably thinking that i really dont need one and i am just being lazy about around in the store, and that kills me cuz all i want to yell is that i cant walk far and who are they to judge me, but all i do is smile and say thank you when they give it to me. it makes me sooooooo mad, ok maybe i do look like i'm only a teenage, i actually 25, but is it really any of their business, its not like i'm taking it out for a joyride, i'm using it to go shopping in their store. sorry i just needed to vent about this, sometimes i really hate people and their ignorance and just run them over with the wheelchair they just gave me. but anyways, i hope everyone is at least doing somewhat better than i am, i'm just sick of being sick, i think i have said that like a zillion times in the last 12 yrs but its true.  Redrose congrats on the baby, i am really very happy for you, and i hope that my husband and i are just as blessed very soon. much love to everyone
Hugs and prayers,                      God grant me the serenity to accept the
   ~Suzanne~                                     things I cannot change, the courage to      
                                                              change the things I can, and the wisdom
                                                              to know the difference.
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 10/9/2007 5:31 AM (GMT -6)   
I totally understand the chair thing. Once the woman who 'guards' them got mad that my husband got a chair for me. I asked her if she would enjoy walking with two broken vertebra and RA. She got huffy and went to her manager to complain I was too young for the chair. I never saw her again. I think she was fired. So if they give you too many problems just tell the manager how disrespectful they are. I get funny looks when I park in handicap spaces but I need it because though I can walk some I really can't handle much walking and especially not on uneven ground and the parking lots around here all have inclines no matter where you are. I hate how much it hurts to walk but do so anyway. I am lucky to have avoided bone death so far. But I still have inflammation and damage to deal with in my spine and knees.

So far so good with the pregnancy.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Celebrex, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 10/9/2007 12:38 PM (GMT -6)   
The "chair" thing just happened to me recently. I went into a department store with my sis. She dropped me off at the door. The lady said the last available chair was broken. I had to sit on a bench at the front of the store and my sister had to do my shopping. While I was sitting there an elderly friend of the greeter came up and she promptly gave her the "broken" chair. My sister was livid when I told her. She called the store and spoke to the manager. I would never have said anything. It's humiliating enough to have to get in one when you are young and don't have a "visible" problem.
Anyway, people can just be down right ignorant. Judi
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