What to do when we have a flare

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Gidget^
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 10/8/2007 8:18 PM (GMT -7)   
Today my husband asked me "what should and shouldn't you be doing when you're having a lupus flare?" Other than the obvious of trying to get more rest, I really didn't know what to tell him. So I'm going to the experts ... (which is you guys on the board) ... and asking you what should and shouldn't we be doing when we're having a lupus flare?
Gidget^
 
SLE 9/07, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, Parotid Neurofibroma 8/04, Cervical Cancer 9/06
Plaquenil, Clinoril, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Folic Acid, Toradol, Percoset, Loratab
 
There is no psychiatrist in the world like a puppy licking your face.
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/8/2007 8:28 PM (GMT -7)   
I take extra anti-inflams as soon as I start getting into trouble and I rest more.

I have a rule in running my household when I'm not feeling well. I only do the chores that will "stack up" if they aren't done. That includes, laundry, dishes and keeping things picked up. That eliminates dusting, vacuuming, floor washing and most other chores. I've found that those three things can be done in a small amount of time and I feel better when the are done. If I can't vacuum for long periods of time, it is no harder when I finally get to it. If I don't make the bed each morning, it doesn't hurt anything. . . etc.

I also eliminate my "good deeds". If I can't take care of my own house, then I don't go around helping friends and family. I find that the better I care for myself when I'm flaring or fragile, the faster I'm back on my feet.

I'm sure that lots of you are worse when you are flaring and need to actually go to bed. We each learn to read our bodies and follow our own rules for pacing and resting.

When I AM feeling good . . . I try to VERY gradually do things that will strengthen my body . . so that when I do flare, I'm not so weak too.

I hope this helps.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 10/9/2007 7:43 AM (GMT -7)   
IN a flare.....

While rest is important, I also find that making sure I have "deep, restorative sleep" is helpful. That may mean I need some sort of sleep-aid from time-to-time.

Eating regularly, 3 meals a day, of healthy foods with a good amount of clean protein helps. (Clean means not processed/preserved or fried, somewhat low fat.) Vegetables with fiber are good; hold off on white carbs (bread, popcorn, sugar, flour).

And a little bit of exercise. A *slow* walk to the mailbox & back, once or twice a day; if you can do it without pain. OR maybe just some isometric stretches from your lounge chair.

Nap as needed, with ibuprofen or whatever your dr has suggested w/your particular medication mix -- taken whenever you feel soreness, weakness, or a fever coming on.

Do NOT .... sit in the sun, do more than 1 activity outside the house in a day, do anything that isn't necessary & needed around the house (and don't do that much if you can avoid it), have too much excitement or stress around....

Pamper yourself,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/9/2007 8:45 AM (GMT -7)   
Lynnwood said exactly what I thought. If someone has a problem tell them to take it to your husband. Stress will make things worse. I live by myself so I pretty much just keep a micro wave meal around. Try not to feel quilty and stay in bed as much as you can. You will probably need to talk to your rheumy and see if he/she wants to increase or add somthing to your meds. Tell your hubby I think it's sweet that he cares enough to ask questions like this.
hugs
carol
God Bless
Carol
Lupus, possible Crest, COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/9/2007 9:06 AM (GMT -7)   
Hey Lynwood . . . GREAT STUFF! You put things into words so well. I'm going to copy this over to Lupus Resources so we can direct people to it in the future!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Gidget^
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 10/9/2007 1:25 PM (GMT -7)   
Rosie, Lynwood and okie,
Thank you so much for your replies, it always helps to get imput from others. My husband is wonderful, I couldn't ask for anyone more loving or understanding ... he is a keeper!
Gidget^
 
SLE 9/07, FMS '90's, Spinal Stenosis, Osteoarthritis, Sinus Tach, PVC's, Kidney Stones, Parotid Neurofibroma 8/04, Cervical Cancer 9/06
Plaquenil, Clinoril, Toprol XL, Prozac, Zyrtec-D, Zocor, Vitamins B6 & B12, Folic Acid, Toradol, Percoset, Loratab
 
There is no psychiatrist in the world like a puppy licking your face.
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/9/2007 4:23 PM (GMT -7)   
Great replies, ladies. I can't think of a thing to add.

Gidget, when you're feeling well, the hardest thing in the world is to keep from playing catch-up and trying to do all the things you put off while you were feeling bad. That's a sure way to get down again.

It's a lucky lupie who has a wonderful hubby!
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 10/9/2007 7:50 PM (GMT -7)   

Hi Gidget,

   I can't really add anything to the wonderful advice you have already gotten. It's great to hear you have a wonderful supportive hubby. Kuddo's to the hubby!! Take care and rest, rest, rest. You will be in my thoughts and prayers.

                                                                  Babs


 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:Methotrexate,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folic acid,prednisone,lunesta,Chantrix,Tramadol,Nitro.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 5:26 AM (GMT -7)
There are a total of 2,732,452 posts in 301,021 threads.
View Active Threads


Who's Online
This forum has 151186 registered members. Please welcome our newest member, debbixij.
192 Guest(s), 8 Registered Member(s) are currently online.  Details
Georgia Hunter, 73monte, imagardener2, mtm3461, Tudpock18, Hilander64, Nomar Lupron 4 Me, Buddy Blank


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer