Shaking chills with no fever?

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Razzle
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Date Joined Aug 2007
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   Posted 10/9/2007 12:02 PM (GMT -7)   
Does anyone else here get shaking chills without a fever when they are flaring?  I got to the doctor's office yesterday and after sitting down in the waiting area I started shivvering and shaking.  I didn't feel *that* cold, and didn't have a fever.  I've had lots of these episodes before, but never at a doctor's office waiting area LOL.
 
Thanks,
-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, malabsorption/malnutrition, etc.
Meds:  Pulmicort, Claritin, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 10/9/2007 12:41 PM (GMT -7)   
I get this weird jittery feeling,  almost like a kid on Christmas morning kind of anxious feeling.  I hope that
made a least an ounce of sense. Anyway,  I think I know what you're talking about.  Judi

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/9/2007 12:55 PM (GMT -7)   
If I'm really weak, I'll have trembling for a bit after mild exertion . . . then it goes away.

Anything interesting happen at the doctor's appointment?

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
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Date Joined May 2005
Total Posts : 5797
   Posted 10/9/2007 7:18 PM (GMT -7)   
When that starts I head to bed and usually end up sleeping really hard for 2 hours and then am fine when I wake up.....dunno what it's all about...

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
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Razzle
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Date Joined Aug 2007
Total Posts : 4151
   Posted 10/9/2007 11:44 PM (GMT -7)   
Thanks for your support. This is actual shivvering, shaking and teeth chattering like you get when you're really, really cold, but I just don't feel like I've gotten that cold.

Anyhow, as for what happened at the dr visit, he drew some labs to check inflammatory markers, blood counts, iron binding capacity, food allergy antibodies (this doctor and another of my doctors also thinks food allergies are playing a role, but not much comes up on the skin tests), and a new one I've not had done before called the Lymphocyte Differential. He wants to make sure I don't have some kind of fundamental immune deficiency at the root of most or all of the stuff I'm dealing with. He also talked about an iron infusion, but didn't actually order one yet (waiting results of blood tests first). And we also talked about getting me a small tank of oxygen to have on hand for these annual Autumn out-of-breath episodes I've had for the last 3 years. The trick is getting insurance to pay for all of this, LOL

Thanks,
-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, malabsorption/malnutrition, etc.
Meds:  Pulmicort, Claritin, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


CNSKris
Regular Member


Date Joined May 2006
Total Posts : 236
   Posted 10/10/2007 7:50 AM (GMT -7)   
Razzle - I never had a fever with or without flares. I am sure I am in the minority on this one. If I get a temp of 98, I know I am very sick - usually severe infection, pneumonia, etc. Otherwise, I have a constant very low temp between 96 - 97 normally. If I drop below that I am also very sick too - usually with bood count or mini-stroke problems. I do get sweats and/or chills with my flares (as well as with flu, infection, pneumonia, etc.).

Hope this answers your question. Best wishes - Kristin
 
  Dx:  Lupus CNS 11/2005; Current - Mitral valve sclerosis, MVP/regurg, dementia; GERD; vision loss, narcolepsy, RA, IBS, ovarian cysts, raynauds, EBV/CFS, inflam. liver/spleen. Rx:  Atenolol, Aricept, Flexeril, Motrin  Previous-rashes, hemi-pelagic migraine, sensory loss, amnesia, PTSD/Dep., host of neuro problems, pregnancy compl., False pos. syphilis, fine speck & homogen ANA; IgM; staph/strept infections, colonitis, pancreaitis, gastritis, costochondritis, pericarditis, Hashimoto's, dyspnea, hyper/hypotension, lipedemia, ulcers, pneumonia, anemia, Scleroderma symptoms, vein swelling, etc.  
 
 


Purple40
New Member


Date Joined Oct 2007
Total Posts : 4
   Posted 10/10/2007 10:57 AM (GMT -7)   
Razzle,
I typed in shivering without the chills on the search for this site because I have been experiencing those symptoms. along with a lot of other weird stuff. I can slowly feel the shakes coming on. Sometimes I get short of breath and sometimes I don't. My mouth goes dry and I have to take little sips of water. Then my body starts to increase in the shakes. I will lay in bed, propped on pillows, on my side and try to tough it out. It usually hits at night, and gets stronger then fades out in about 45 minutes to an hour. My entire body shakes. It seems to be worse in the waiste down. I go from hot to cold back and forth, very quickly. It happened to me last Friday evening. It seems to happen about once a month. I am trying to find someone who understands some of my symptoms. I have not been diagnosed with Lupis.

monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 10/10/2007 11:16 AM (GMT -7)   
Razzle,
I have this happen very often. But usually when I take my temp, (thinking its gonna be high) its 97.0 or 97.2. It feels every bit like I have a fever, but what I actually have is the opposite. Its very strange.

When this happens I drink hot tea, bury myself under blankies with a hot water bottle or hot rice pack and try to get warm. If that doesnt work I get in a hot bath.

I think our bodies temperature regulation is off. Other times I do have 99 or 99.4, but I don't feel nearly as shivery with that.

Hope that made sense.

Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 10/10/2007 1:49 PM (GMT -7)   
Razzle . . . since your iron is WAY low . . . I wonder if that could contribute to the shakes. Just a thought.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4151
   Posted 10/11/2007 5:53 AM (GMT -7)   
Thanks so much for your help and information and support. I do appreciate it a lot.

AlwaysRosie, yes it is very possibly related to iron deficiency - thanks for pointing that out.

Take care,
-Razzle
Gluten & Sulfite Sensitivity, Multiple Food & Inhalant Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, malabsorption/malnutrition, etc.
Meds:  Pulmicort, Claritin, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.


Jon W.
New Member


Date Joined May 2011
Total Posts : 1
   Posted 5/11/2011 1:27 PM (GMT -7)   
Hello - does anyone have any more insight into this issue? My father is in pretty good health but has suddenly come down with these episodes and has been in the hospital for 2 weeks (on life support for 2 days).

• Random Fever
• Bad shakes for about an hour
• Difficulty breathing during these episodes

The shakes don't necessarily correspond with the fever although sometimes they happen at the same time.

We are desperate to find an answer since they have a number of doctors working with him and can't find the solution.

He's had blood drawn for labs & cultures pretty much every few hours and a number of imaging (CT, MRI, etc..) done on specific parts of the body with no glaring issues.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12540
   Posted 5/11/2011 3:36 PM (GMT -7)   
Sorry your father is so sick. I have no idea if there's any other information.
Joy

5ballerinas
New Member


Date Joined May 2006
Total Posts : 18
   Posted 5/11/2011 10:06 PM (GMT -7)   
Razzle: As for the origional post, I get that when I have problems with my P.O.T.S. (Postural Orthostatic Tachycardia Syndrome) also found it was causing a lot of my other issues as well. This is the one thing I continue to be plagued with despite my Lupus being under control.POTS can also cause digestive issues as well as food and medication allergies!

Post Edited (5ballerinas) : 5/11/2011 10:11:25 PM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5797
   Posted 5/11/2011 10:29 PM (GMT -7)   
Did you know you've posted on a forum that deals with Lupus? We have over active immune systems that casue a lot of inflamation and associated fevers. Anything we might suggest would be radically different for someone without Lupus.

If your father is elderly (or even if he isn't) they should be looking for inflammation or infection somewhere - they are a better bet than we are here!

Hope he feels better soon,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

BTW
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/23/2011 8:18 PM (GMT -7)   
Purple40 - Your description of what you are experiencing sounds just like a friend of mine and she was diagnosed with P.O.T.S.  You may want to check that out. 
 
I am looking for answers to my son having episodes of headaches, chills, tender joints, back ache and sweating.  We went to a walk-in clinic, but it was limited and then of course he was fine in a couple of days, but it's happened again.  It happened several times before we went to the walk in clinic, but we thought it was the flu.  Now we are beginning to really question it.

mechiko
Regular Member


Date Joined Jan 2011
Total Posts : 82
   Posted 7/23/2011 11:34 PM (GMT -7)   
When I am sick (with infection, flu, etc.) or flaring, I will get the shaking chills, feel feverish, but have a normal temp or just very slightly elevated. I think my normal temp is on the low side of things, 95 or 96 when I'm feeling normal.


Kathryn

Rovngypsy
New Member


Date Joined Jan 2010
Total Posts : 18
   Posted 7/26/2011 11:19 PM (GMT -7)   
 Hi Razzle,
Yes, I get chills a lot and no fever.  I am one that is always and I mean always hot.  Seems my body overheats no matter if I'm walking across the yard or minor house cleaning.  But, sometimes all of a sudden I am freezing.  Sometimes I wake up freezing.  I mean teeth chattering and shaking all over freezing.  It may last from an hour to 2-3 hrs.  Usually it is just before a flare up, the beginning of a flare up or it could be within a day of a flare up. 
 
And, like you say, sometimes when in a flare or just real tired, I feel like I have a fever and constantly sweating, but take my temp and it is usually in the normal range.  My normal temp is 97 and occasionally it will be 99, but most of the time it is normal.
 
Gypsy
 
 

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12540
   Posted 7/27/2011 10:07 AM (GMT -7)   
I used to get something like a hard chill. I'd go and sit on the heat vent going full blast, wear a heavy coat, and still freeze.

I also have a low body temperture-96.8-97.1.
Joy

yash888
Regular Member


Date Joined Dec 2010
Total Posts : 21
   Posted 9/13/2011 2:38 PM (GMT -7)   
Hi
I have been having these freezing spells as well and I put a coat on and my fireplace and wrap myself in a blanket and lie on the sofa but still freezing, then sometimes, my chest will pain on the left side, and I am always thinking its my heart because its like a squeezing pain.
Hard to breathe as if an elephant is sitting on the chest, I try to make sure not to eat anything with sulfites but its really hard.
Wish I knew what to do, my doctor is useless and its hard to find a doctor who will take new patients and who understands what sulfites are, I had hard enough time explaining to this one.
 
Any suggestions on what tests I should have taken?  I feel I am truly going to die soon
Thank you
Yash
Yash

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12540
   Posted 9/13/2011 5:01 PM (GMT -7)   
Ask for an ANA blood test along with a full blood panel to check for autoimmune problems.
Joy

yash888
Regular Member


Date Joined Dec 2010
Total Posts : 21
   Posted 9/14/2011 6:33 PM (GMT -7)   
Hi Joy
thank you for your reply.  I have a physical due next thursday sept 22 and will be sure to request this test to my doctor.
I try to read about the sulfites but sometimes, even if I am so careful, I get the reactions and then I am lost and keep on trying to go nack and start from the beginning.
 
Can anyone with this sulfite sensitivity from Canada tell me exactly what they have safely to eat for b.fast, lunch, dinner, snack, to drink other than tap water, fruits, veggies, because I am in real trouble here.  Organic is not organic if it is from USA as they put sulfited scraped ice in the boxes that come packed over the border in trucks to keep them fresh, in case someone did not know this.
If you live in USA, organic is 100% organic, but dont buy USA organic in Canada thinking its ok for you to eat, it has sulfites in the ice put on it, please. 
I enrolled in the CSA farm and in summer enjoy the few veggies I get to eat, I still cant eat swiss chard, kale, onions, garlic although these are organic they are very high in sulfur content and does not agree with me.
 
Thanks for reading my woes, seems like there is no cure for it, my allergist is actually useless, when I tell her about the sulfite oxidase missing from my body perhaps and how to test that, she does not know what test to be done. 
What tests do you ask the doctor to do for seeing in your body the vitamin and minerals, the enzymes or lack of etc and what would I need to ask him?
 
thanks, hope everyone is doing ok and I pray always for all of our sulfite friends for a miracle for us.
Yash
Yash

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12540
   Posted 9/15/2011 5:14 PM (GMT -7)   
Yash, There's a lady who posts in the allergy forum who has a sulfite allergy. If you go there and ask for "Alcie" she'll talk to you about it.

Meanwhile ask your doctor to check your vitamin and mineral levels in a simple blood test.
Joy

yash888
Regular Member


Date Joined Dec 2010
Total Posts : 21
   Posted 9/16/2011 8:41 AM (GMT -7)   
Hi
Yes, I believe I have spoken with her, she is the one from whom I learnt not to have black pepper because I was putting it on everything literally, love it and so basically was 'sulfiting poisoning' myself.
She is very knowledgeable, I don't see her on the forums, I will write and see if she responds.  Thank you.
Yesterday, I went to pick up my veggies for the week from the organic CSA farm that I pay for to get them and had chest pains although I only had one organic whole grain whole wheat pita (I made it myself) and Tea.
 
I ended up at the doctors office and he was surprised to see me, told him I have a physical due next week but the pain is today and he just wrote out a stress test for me, thing is there is sulfite in the injection they put for this test, I will ask Elsie if she knows about this.
 
Keep well and talk to you soon
Yash :)

Yash
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