In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
I want to thank you all for your quick reply.I have been so stressed about all of this and felt like i was feeling somewhat isolated for some reason.I'm glad i'm not alone.
I'm going for a second opinion.I want to seek out a female Rheumatologist this time.I'm going to keep a daily diary of my symptoms.Though i have noticed that some foods make me feel REALLY CRAPPY.Food that are salty and processed have a negative effect for me.I wake up with a terrific headache and body pains.I started a new diet last week.An anti-inflammatory diet that i got from Dr.Weil's website.I'm going to keep a diary on that and see if it makes a difference.
As for the Sjogrens....NOPE.I have no dry eye,dry mouth or any dryness period.Just joint pains and hand swelling in the morning.I'm off to work now.7pm-7am.I'm a Registered Nurse:)
Have a Good night and i will be looking forward to seeing more replies tomorrow.Thanks for being supportive.
Thanks again for your input.I do appreciate it a lot.While at work last night i looked up some Rheumatologists at my hospital.There are not many to choose from but made an appointment for my second opinion.
BTW...i noticed diagnoses and meds under everyone's names.Is that what your diagnosis is and your meds? How long did everyone have symptoms before being diagnosed ? Has anyone made serious dieatary and lifestyle changes since their diagnosis?If so,has it helped?? I know for certain that the enviroment and diet can impact all autoimmune disorders.For the better or worse of it.I did extensive research on Autoimmunity and it's diseases for my dogs.As a hobby i breed and show Pomeranians and certain lines of Pomeranians have autoimmune problems and my research has allowed me to follow a different path with them.I no longer vaccinate my dogs and they eat only a home cooked diet and have a high omega 3's in their diet.My dogs dont suffer with some of the diseases known to the breed.Diseases like Autoimmune Hemolytic anemia,Addisons/Cushings,and Hashimoto's.I wonder how much diet can influence us with these Autoimmune problems??
I know i asked a lot of questions but would appreciate feedback.
BTW..LOVE your name...;) I'm glad you see the connection of food and autoimmunity.I mention this to my primary MD and he kinda gives me this blank look.As if i'm saying something crazy.Your so right about the Partially hydrogenated oils...that stuff is POISON.I noticed a while ago that certain foods gave me TERRIFIC headachces and just an overall crappy feeling.Sort of like a hangover feeling.I wonder how long i have had a high ANA now.The Rheumatologist said i may have had this for years.Eventhough i still dont know what i have yet.
Back to diets for a minute.YES,we do DESTROY our foods by processing it.Whole raw food is best.It has all the enzymes and nutrients intact.I have researched diets and the connection to autoimmunity about 7 years ago.Commercial dog food is CRAP and really causes lots of damage.Well enough about dog food but we can all benefit from a Holistic diet and foods that are as close to their natural state as possible.I had surgery for a benign breast tumor two years ago.Before the biopsy came back i totally revamped my diet.Red meat and chicken was out.Too many hormones and antibiotics.Sugars were cut down as they feed tumors so i made some changes two years ago.I didnt cut out the ''white fluffy stuff'' that Dr.Weil says causes inflammation.The white fluffy stuff is white breads,white flour,cakes ect...I cut down on them but should have avoided it alll togther.I just gave up dairy last week.I'm supplementing with a Calcium/vitamin D/Magnesium now.I'm replacing milk protein for soy protien now.I hope this helps.I also started a Omega 3 supplement along with my new breakfast drink that has lots of ground organic flaxseed meal.
As for vaccinations,if you must vaccinate your Westies only do puppy vaccines.There is NO NEED to do annual vaccines.There is a LOT of info online about this now and new vaccine protocols are in action now.There is a strong connection for autoimmunity,DNA damage and vaccines for certains lines and breeds of dogs.I wonder how much damage was done to us when we got our Immunizations as babies.Lupus and it's relatives Scleraderma,Sjogrens are all genetic and i wonder if having vaccines somehow damaged our DNA because we have a predisposition to these problems.Too late now but just a thought.....
You made a very interesting statment on how you have no organ involvment and this is what i'm curious about but want to tell you about my Mom first.My Mom was never diagnosed but were both certain she has Lupus or some sort of Autoimmune problem.She would always tire so easily and going in the sun would TOTALLY wipe her out and give her bad diarrhea.She would be sick on the couch for almost two days after going to the beach.She would complain of pain a lot too.When i was a kid and in my 20's I thought she was just being lazy and didnt want to be bothered with me or the family.She would say ''something is wrong with me;i think i have Lupus'' She WAS also VERY emotionally explosive.Now that she is in menapause she is like a new person.Like i mentioned before,she never would go to a doctor cause she said she would never take the medication for Lupus anyway.So my point is this...if we seek out a diagnosis early and take some of the meds which are immunosuppressive are we benefiting or making this autoimmunity worse?? .Do you take any Meds for your Lupus and when were you diagnosed? For some reason i dont think i would take any meds unless it was 100% abosolutly needed.I would rather try and diet,relaxtion exercises and supplemental approach first.I have an appointment on the 16th for a second opinion.
P.S.I bet you will begin to feel better soon.My mom has not had a period in almost three years and she claims to have more energy now than ever before.She is certainly more pleasant too and never argumentative like she used to be.I used to walk on egg shells with her and now she's like a sweet little lamb now...lol.
When i signed up to this forum it said to use another name so i used my middle name Marie.I'm Fran Marie
Thanks for sharing your history and sorry to hear about those severe symptoms you had recently.I can only imagine how uncomfortable that must have been for you.Glad your feeling better though.That is very interesting how your symptoms improved with the pregnancies.I have M.S. Patients who said the same thing.That their M.S. symptoms go into a total remission with their pregnancy but i get them at the hospital after childbirth with a severe exacerbation.I believe the stress,severe drop in hormones and like you said...cortisone.I bet that drops drastically too and brings on the exacerbation.
Mom and I have been playing detective and looking back at symptoms we both had and just over looked as they were not severe enough to seek treatment for.I also had hand pain for a long time now.Like you,it feels more annoying than anything else.My Mom for YEARS and YEARS had what she called ''a frog in her throat''.It sounded like a backwards burp.Like a burp/belch that was stuck in her esophagus.She was always so uncomfortable with that and she said it felt like pressure on her esophagus and she even had trouble swallowing from time to time.It would scare the heck out of me when i was a kid.I thought she was choking.It would disappear just as fast as it came on.She would also ALWAYS complain of feeling like she had cotton in her mouth.She would always have to suck on a lozenge or something like that.Now,that we look back at these things.I bet she was having symptoms of Sjogrens.Guess what though,now that she is in menapause she has NO dry mouth and i have not heard her frog in years now.We were sitting at lunch the other day and she said oh crap...you know what;i have not had any problems with my frog in a long time.So for her,menapause has many perks...
My Mom as a kid had severe back and leg pains.My grandma took her to several doctors and they said it was all in her head.She couldnt and didnt have the strength to play like the other kids.I never had that as a kid though.I'm now just getting symptoms of feeling tired more easily.Over the past year or so.I force myself to keep on keeping on.I guess i should just give in and rest.