Seeing Doc tmw and possible Lupus

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emerson80
New Member


Date Joined Oct 2007
Total Posts : 12
   Posted 10/11/2007 9:17 PM (GMT -7)   
I am seeing my doctor in the morning and everything that has been going on. I am a little nervous. Sometimes it is hard to not think all of this is in my head.

Here are my symptoms:

Fainting/Dizziness - dating back 1 year 10 episodes (apx.)
Fever – 99.5 to 101 2 months *unsure about previous*
Extreme Fatigue – 15 hours of sleep a day – 1 month
Muscle Aches – All over – unsure of length of time
Joint aches – ankles, wrists, neck, fingers (can’t open soda bottles easily, open cans) – unsure of length of time
Back pain – dating back 2 years
Rash on face – 5 days
Diarrhea – 2 months
Vomiting – lasted 3 weeks, ended a week and a half ago
Nausea – 2 months
Cold nose/feet/hands – as long as I can remember
Temperature sensitivity – as long as I can remember
Mouth sores – tongue and behind bottom lip – as long as I can remember
Nose sores – every few weeks, as long as I can remember
Constant pressure on Bladder (peeing 5 times before can fall asleep) – 6 months, no UTI
Abdominal Pain – 2-3 months
Frequent Headaches/Migraines – every two weeks or so, 2-3 years
No period – 10 months (no reason found)


What does everyone think? Is it possible that Lupus will be my Dx? I am so tired. I have worked only 5 of the last 6 weeks.

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/11/2007 9:49 PM (GMT -7)   
Welcome to the forum Emerson . . . I'm so sorry you are having such trouble.

I hope your doctor appointment goes well. There is a list of suggestions for new members contained in a post under the topic "Lupus Resources". Look down a few posts to find it. There is a link to that topic in my signature. There is also a link to some other helpful websites.

Emerson . . . you definitely have something going wrong with your health. Lupus can be very difficult to diagnose and it may take several doctor's appts to figure out what is going on. I hope your doc will check things out thoroughly for you.

Please update us after your appointment.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


emerson80
New Member


Date Joined Oct 2007
Total Posts : 12
   Posted 10/11/2007 9:58 PM (GMT -7)   
Thanks Rosie :)

I also have an appointment with a rheumatologist on the 29th of the month too.
I forgot a couple of symptoms: no appetite (6 months), swollen ankles (2 months) and weight loss (17 pounds in 5 weeks)

The rash I have looks like a flush, or like someone slapped or pinched my skin. Have you had the rash before, or seen it? It on each cheek and on my nose, and maybe some on my forehead. It gets worse after heat, sun or a shower/bath.

From what I have read everything fits....... I guess I am scared and wondered if you feel like the symptoms fit?

Thanks again!!!!

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/11/2007 10:07 PM (GMT -7)   
Hi Emerson . . . take pictures of your face when the redness is present and of your mouth soars. (That is one of the tips in the link I gave you)

Your symptoms really could be Lupus . . . but Lupus is the great imitator and can mimic lots of other disease and other diseases can mimic Lupus. It is really good that you were able to get an appointment with a rheumy. That would the right doc if you do have Lupus.

I'm sure some of the others will be around tomorrow to say hello. I know you are scared . . . but there is also some huge relief in finally having a name for your problems. So, I hope the docs can help you pinpoint what's causing all your trouble.

Hang in there!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 10/12/2007 7:09 AM (GMT -7)   
Hi emerson and welocme. Rosie gave you some really great information and I can't think of anything to add. I just wanted to say that I'll be thinking about you and hoping that your appointment today goes well. Like Rosie said, a lot of your symptoms fit with lupus, but it's so hard to diagnose.

I don't blame you for feeling scared - I remember being very scared and overwhelmed when the doctor first mentioned lupus to me. Hang in there. It can sometimes take a while to get a definite diagnosis, but the most important thing is to get some kind of treatment for your symptoms. It's good that you have a rheumatologist appointment later this month and hopefully he can help you get to the bottom of your symptoms and give you a diagnosis.

Please ask any questions you have and also know we are here for any support you might need. Being sick can really be hard emotionally. The wonderful thing about this forum is that you are among people who truly understand what you are going through and we are very supportive of each other.

I hope you'll let us know how your appointment goes.

Take care and I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



emerson80
New Member


Date Joined Oct 2007
Total Posts : 12
   Posted 10/12/2007 10:23 AM (GMT -7)   
Thank you everyone!!!

I just got home from the doc. He is going to try and get me into see a rheumatologist next week, instead of having to wait until the 29th.

He really feels like it is autoimmune. I took him a list of all of my symptoms (Thanks Rosie!).
He got some blood. Normal CBC and no UTI. He could feel some swelling in my joints, Lymphs are not swollen.

ANA, Sed Rat and some other tests were ordered and I should know by mid next week.

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 10/12/2007 10:48 AM (GMT -7)   

Hi Emerson, I'm carol. I'm glad your doctor is trying to get you into your rheumy faster. Waiting is just awful. It took me 4 months to get into a new one. I hope her doctor was able to give you something to help your symptoms until you can be seen again.

Welcome to the group. I'm sure you will find the people here very supportive and knowledgable

carol



God Bless
Carol
Primary Biliary Cirrosis,  COPD, Cervical Cancer survivor. Osteoporosis
Prednisone 5mg, Plaquanil 800mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3
 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


emerson80
New Member


Date Joined Oct 2007
Total Posts : 12
   Posted 10/12/2007 12:04 PM (GMT -7)   
Good news!!! My doc has been able to get me an appointment for MONDAY afternoon. He is so worried about how sick I have been.
How great is my doctor :)

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 10/12/2007 5:11 PM (GMT -7)   
Emerson,

Welcome to the forum. I'm so happy that you have a great doctor who shows concern for your health and is getting you in to see a rheumy on Monday. Hopefully the rheumy will have the results of your blood work by then so will be able to get a real good picture of what's going on with you. Rosie gave you some good advice when she suggested that you take a list of your symptoms to the doctor. Before I was diagnosed I only told my rheumy about symptoms I thought could be related to lupus, but I soon learned that my periodic eye infections and other things I assumed were totally unrelated were also caused by an autoimmune disease. I'd also take a written list of questions you have. Lots of luck. Let us know how your appointment goes, or if you have any other questions between now and then.

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 10/12/2007 8:48 PM (GMT -7)   
Emmerson . . . . GREAT!!!! Your doc did great getting you in to see the rheumy on Monday !!! Wooo Hoooo!! to Emerson's doctor.

Try to stay calm over the weekend . . . I'm sure you are a huge combination of scared and excited. Hopefully the bloodwork results will be available to the rheumy. He'll likely order a ton more. My first rheumy visit, he ordered 25 different blood tests. Can't wait for your update on Monday or Tuesday!!

Glad you found us!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 10/13/2007 9:09 AM (GMT -7)   
Hi Emerson,
 
Another welcome coming your way!  I am sorry you're dealing with so much.  You do sound very unwell.  That's actually a good thing considering you're seeing a rheumy on Monday.  So many of us have the symptoms and then while we wait to get in to see someone, the symptoms go away!  That is one very frustrating part of this disease.
 
I don't have any more advice to add.  The other ladies gave you perfect advice.  Please let us know how your appointment went!
 
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


emerson80
New Member


Date Joined Oct 2007
Total Posts : 12
   Posted 10/14/2007 9:27 PM (GMT -7)   
Thanks everyone for being so great! I see the rheum tomorrow! YAY! I am hoping he will have the results of my blood tests. I have a LONG LONG list of symptoms for him.

I am so worried though because I can't work. I haven't worked in almost 5 weeks. I am sure I am close to losing my job, but what then? SSDI? I am only 26 and this is such a scary situation to be in.

sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 10/17/2007 1:01 PM (GMT -7)   
Hi, Emerson and welcome. I'm trying to play catch-up here. I'm sorry for all you're having to deal with. It's great that your PCP got you worked in quickly to see a rheumy. I'm interested in finding out how your appt. went. Try to take this one step at a time. Sickness and disease can throw a lot at you all at once. If you do have lupus or another AI disease, it may be able to be managed with the right meds. I wish you the best and hope your appt. went well. Let us know,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 9mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg, DocQLace 200mg, Flax Seed (milled) 2Tbsp


sharentrials
Regular Member


Date Joined Jul 2007
Total Posts : 261
   Posted 10/17/2007 1:47 PM (GMT -7)   
Hi, Emerson. I've just read your update regarding your dr. appt. Try to be patient while the tests results come in and go for the addtnl test as well. Lupus is very hard to diagnosis. Be glad you have a dr. who is taking the time to try to diagnosis you correctly. I'm glad to hear about your employer. Take care,
Always looking for the silver lining, Sharen

SLE '06, Sjogren's '06, Traumatic Head Injury '94
Prednisone 9mg and tapering, Caltrate 1200mg, Multi-vitamin, Prevacid 30 mg, Actonel 35mg, DocQLace 200mg, Flax Seed (milled) 2Tbsp

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